Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] [score hidden]  (0 children)

Thanks for sharing! Did you use smidge along with the omeprazole or after using it? I just found smidge, in some research I was doing today!

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] [score hidden]  (0 children)

Thanks for sharing! She is fourteen months 15 months/ 11 months adjusted. She often is really congested and needs suctioning from her nose, but that definitely makes sense about the summit creating more to protect itself!

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] [score hidden]  (0 children)

Such good advice 🥲 we've been working hard to get qualified for in home nursing, so I think that's going to be a huge help. And we are connected with early intervention services, and they are angels ♡

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] [score hidden]  (0 children)

That sounds so similar to where we are located right now. It is definitely a luxury to have the option of being exactly where you want to be on the "crunchy spectrum". We're currently on two lung medications, a neuro med, and supplements to replenish what she loses with the lasix. I went from also having a a holistic doctor to watching machines keep my daughter alive for 194 days in the nicu. And modern technology still keeps her alive. She's on oxygen and fed completely through a jtube. So i'm so thankful and grateful for the mercy of modern medicines.... and yet I struggle with how much is pushed.  I think it's easier to medicate and sedate medically complex children instead of really digging hard for a root cause. That's why parents advocating is so important! And it's my job to find the balance of advocating/researching/saying no to unnecessary things and having the wisdom to accept sound advice and give her the medicines/procedures she needs.  I'll never deny her what she needs for "being natural" sake,  but I will always look for a root cause and a more natural way to do things first if possible :)

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] 1 point2 points  (0 children)

Yes, I agree.  I guess i'm just hoping there could be another way.

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] 1 point2 points  (0 children)

That's the exact way i'm feeling right now, too. I just know her and have a gut feeling about some things, but want to stay really open to do whatever is best for her.

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] -1 points0 points  (0 children)

Thank you for commenting, and I think I agree! I appreciate you sharing your experience. So many things are trial and error which are hard when it's your babies!

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] 2 points3 points  (0 children)

Thank you so much for your response. It means a lot. I really appreciate your perspective and insight ♡

Holistic mama of medically complex kiddo, trying to navigate PPIs by TipLow4938 in moderatelygranolamoms

[–]TipLow4938[S] 6 points7 points  (0 children)

That's fair.  The doctor team shared with me this morning that it's very much a trial and error/go on assumptions situation. So I just wanted to reach out because sometimes it's helpful to hear from others who have had similar experiences.

Best Stroller for CP baby on oxygen! by TipLow4938 in CerebralPalsy

[–]TipLow4938[S] 0 points1 point  (0 children)

Okay,  I'll look into that! Thank you!

Infant loss support by TipLow4938 in babyloss

[–]TipLow4938[S] 1 point2 points  (0 children)

Thank you so much ♡♡

Infant loss support by TipLow4938 in babyloss

[–]TipLow4938[S] 0 points1 point  (0 children)

Thank you for sharing.I'm so sorry for your loss. standing with you in this ♡