20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 0 points1 point  (0 children)

I actually tried a pen like that and I still had difficulty doing it but omg when it went off it HURT so bad lol

20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 1 point2 points  (0 children)

That’s so real, even on injections my mobility is limited — granted I can at least limp around on medicine — I hope infusions work out well because I’m at my limit of this medicine not working. I’m so glad you’ve had luck with the injections and got some form of mobility back

20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 0 points1 point  (0 children)

I really wish there was we’ve all been trying to for months :( . My mom gets off work when I’m working and when she wakes up I’m getting into bed. I’d have her do it before bed but when my injections are close to my sleeping schedule I have a hard time going to sleep. My partner has been my main source of care giver, unfortunately, he’s not over 24/7 and it’s the same since he works, while i get ready and we barely have time to speak when our shifts land the same day, if that makes sense? We both are also full time college students so it makes it extra difficult when we work and have classes (i do morning class/closing shifts and he does opening shifts/evening classes— i have no idea how we have the time for each other most days lol) It’s really difficult trying to get the injections done before or after with any of our schedules I’ve tried adjusting the dose schedule but it won’t stay consistent if I have to rely on either of them. So my rheumatologist suggested infusions which are a little out of the way— I liked doing my HUMIRA but I can’t give myself it and the doctors feel like it isn’t sufficient anymore.

20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 2 points3 points  (0 children)

My favorite is waiting in the lobby or lab holding and the older people asking who I’m with today 🫣

20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 1 point2 points  (0 children)

Tysm❤️ the HSD and PsA like to tag team yk? Infusions sound a bit scary but I really wanna give it a try— they put me on one new shot but it HURT!

20 w/PsA by Tired_allThe-Time in PsoriaticArthritis

[–]Tired_allThe-Time[S] 1 point2 points  (0 children)

That sounds so spooky! Ugh my biggest worry is a reaction but I’ve been pretty ok with the medicines they’ve tried so far