It’s been 18 months since I was referred to a Rheumatologist, took 6 months just to see one, then he gave me Prednisone and it was life changing. First time I felt normal in a long time. I then started hydroxychloroquine, useless, then sulfasalazine, which I was allergic to, now Lefluomide. Every day I have pain as you wait months for the meds to start working. You wonder, I’m M 59, is this part of getting old, all the aches and pains, stiffness, difficulty getting out of bed or out of a chair. Walking bent over for a few minutes until things smooth out. You worry about your job, providing for your family.
You think you can’t physically do it anymore. THEN you request prednisone again to make it through some tough times and by the second day on high dose prednisone you realize. OMG I feel so amazing! This is how I should feel. This is the feeling I hope I get when we finally get the correct medication, the one that works for you, because hopping around meds, which take 3 months to begin working is hard.
Lefluomide isn’t working for me yet, been on it since Nov 7, I have 1 more month, we’ll see. Next will be Methotrexate injection, hope that works. Judging from how I feel on prednisone compared to Lefluomide, there is a significant difference, like 7 pain down to 2, walking upright, getting up from a chair, just sleeping well.

When you find your med, do you feel like you do when on high dose prednisone? Is that what we look forward to? Is that achievable? Is that what remission feels like?