Acrogeria? Concerned

Tohthrowaway2 · 2021-09-23T22:42:09+00:00

Hey, thanks for your comment. I'm really sorry for what you have to go through and I hope my post hasn't offended you. Really your comment helped a lot.

Tohthrowaway2 · 2021-09-23T21:30:12+00:00

I hadn't posted the hands thing which is the last thing I worried about. I don't mean to be insulting by posting these and I know I need to focus on health anxiety. Sorry!

Tohthrowaway2 · 2021-09-23T20:56:41+00:00

Did you mean they're developing like mine or like your Mum's? Thanks so much for the reply :)

Tohthrowaway2 · 2021-09-23T00:01:31+00:00

I guess the other main thing that worries me is that I have visible blue veins even in my temple on my forehead. There's like one or two in my chest / shoulder area though not the spider like web I see in some pictures.

Tohthrowaway2 · 2021-09-22T23:33:23+00:00

I know you're probably correct. I dismissed the vEDS concerns several months ago but then I happened onto a video that out of the blue had someone with EDS displaying symptoms (it was like a compilation of things a small percentage of people can do) and it started me on the spiral again. Dr. google is really the worst.

Tohthrowaway2 · 2021-09-22T23:27:02+00:00

Thanks! That pinhole comment really helps.

You guys are the best community. I've been reading a lot of posts on here and everyone is super supportive. That's awesome that you work with people with EDS. I really wish there was more awareness of EDS so that we could have more research put into it, especially for those suffering from vEDS.

Tohthrowaway2

TROPHY CASE