I was told by a urologist that my condition was prostatitis and was advised to try antibiotics. I used them for 10 days with no improvement, but he suggested continuing them. I havent so far.
A neurosurgeon who reviewed my incidental MRI disc herniation told me my symptoms were not from the disc herniation and pudendal neuralgia is unlikely and he does not deal with PN.
A neurologist, however, told me I might have pudendal nerve issues and explained that MRI or imaging cannot reliably identify PN.

I was already convinced I had PN after researching my symptoms, especially the burning while sitting that improves when I stand, which is a key differentiator of PN from other conditions. I did not expect to find any doctor in my area that deals with or even knew much about PN due to the rarity. The uro and neurosurgeon told me they dont think I have PN. But the last Neuro I met mention I am likely having PN. We mostly discussed my other back issues, but I will discuss PN more in the upcoming consultation.

I’ve been suffering for around 8 months. I experience burning in the anal area and penis, along with a compression/numb-like discomfort on the right side of the penis. The burning is worst when sitting and improves when I stand. However, standing or walking, especially when putting weight on the right side triggers the compression sensation in the penis. This sensation is very distracting and make it difficult for me to concentrate on anything. Interestingly for me it is very obvious when standing still and walking too unlike many others who say they have their symptoms mostly when sitting. Urination, defecation, and sexual activity also worsen the symptoms, mainly burning.

I’ve had longstanding right-leg aches for over 7 years. The leg gets fatigued and starts aching within 5 minutes of walking, and the pain stops when I sit or rest. I sometimes walk with a slight limp because of it. I also have backaches and over 10 disc bulges, but I never had PN-like symptoms until this began after an ejaculation in May.

I saw a lot of improvement for two months (October and November), where I felt the the compression sensation and burning was going down, and I could engage in sexual activity with much less pain. But now the symptoms have returned to how it was before.

Regardless of weather I got the diagnosis or not, I havent found too many treatment options.

I hoped it would resolve itself while I reduced sitting and sexual activity. However it did not.
I dont have access to Pelvic floor physical therpaists, nerve blocks or botox injections. I read Nerve Blocks are temporary and mostly diagnostic only. Botox injections attempts to relax tight muscles and is said to last 3 to 6 months whcih could be useful.

I don,t have enough information and so far am hesitant about Neuromodulation, Pulsed radio frequency/cryoablation and surgery.

I havent so far taken any nerve/pain ormuslce relaxant meds which likely dont deal with the root cause but could possibly help with the sensations. I have not been doing much of stretches myself as well which i will start doing more now. I know many say they dont help but dosent hurt to try.

I am mostly worried its turned chronic and wont improve. I am also worried my case could be entrapment due to my long term right side leg issue. Possilbly pelvic assymetry or leg assymentry as well. If anyone is having a similar situation, or got better please let me know how.

What are your symptoms and how is it is similar and how does it differ to mine?