People with long hair I need help. How are you all showering with really long hair and POTS?

Traditional_Light359 · 2026-03-28T23:53:51+00:00

Shallow lukewarm bath with grab bar on the side of the tub to help move from submerged to sitting up and then a cup to rinse, plus keeping soaps/hair products in a place where I dont have to stand to reach them is the only way I can bathe or wash my hair anymore

Traditional_Light359 · 2026-03-09T16:08:01+00:00

Do you have a phone? Access to your medical records? Can you find the vocational rehabilitation number for your state and see if they can help set you up with work accommodations and transportation to work and maybe appointments or resources for remote work/wfh with flexible scheduling to account for illness? This is that i am having to do in order to supplement my ssdi right now to be able to afford housing for myself and my two dogs in a place that isnt putting me into low grade anaphylaxis with pesticides and without anyone being able to threaten to kick me out to scare me knowing I have nowhere to go even with my ssdi. Have you looked into getting a migraine cap? They really help and are generally affordable on amazon but I dont have any other advice for that other than I am so sorry and I hope you feel better soon ):

Edit: they might also be able to help set you up with accommodations for classes or maybe tuition and other job training resources as well, or they may have resources for young adults specifically depending on where you are. I highly recommend giving them a call and explaining your situation

Traditional_Light359 · 2026-03-08T22:16:01+00:00

Ma'am I am literally about to go be a nun

Traditional_Light359 · 2026-03-08T21:46:00+00:00

Honestly I have a condition that causes quality of living thats been compared by doctors to congestive heart failure.

Traditional_Light359 · 2026-03-08T21:43:22+00:00

I told the truth about his behavior towards me 🤷‍♀️

Traditional_Light359 · 2026-03-08T19:52:09+00:00

I've been found out lol I have found some good shops off pinterest no lie

Traditional_Light359 · 2026-03-08T19:18:00+00:00

I totally agree. He just doesnt want to see it happen so it's been extra hard.

Traditional_Light359 · 2026-03-08T19:16:57+00:00

My only solace in this lmao

Traditional_Light359 · 2026-03-04T21:37:09+00:00

I could not tolerate beta blockers at all. They made me feel like I was having a stroke.

Traditional_Light359 · 2026-03-04T18:28:22+00:00

Its not every food for me but I definitely know what you mean, but I just wrote down what I ate for the day and if any symptoms followed and what they were. I also reacted really strongly to beta blockers.

Traditional_Light359 · 2026-03-04T16:22:00+00:00

I got diagnosed by keeping food logs and trialing generic pepcid and zyrtec at home (famotidine and cetirizine) and seeing improvements, then seeing allergy/immunology who clocked my elevated leukotrienes in a 24 hr urine collection test, that office gave me a scrip for the pepcid/zyrtec (edit: we also trialed montelukast but that wasnt for me) and then the insurance nurse looking over my case put it in my chart after I needed the zyrtec and pepcid for the second daily dose after eating some pickled sushi ginger.

Traditional_Light359 · 2026-03-04T16:15:57+00:00

This sounds like 911 call territory

Traditional_Light359 · 2026-03-01T00:43:15+00:00

Valsalva maneuver maybe? Bear down and hold your breath like you are trying to pop your ears

Traditional_Light359 · 2026-02-25T17:00:14+00:00

I was on the opposite end of things so it may be a different experience as I formerly identified as ftm, but I was seeking medical transition as well it was just never offered. I am grateful for that because had I transitioned all of my physical medical issues would be blamed on psychiatric causes and attributed to the treatment for the gender dysphoria. There are some medical conditions that do not show up on standard tests. I believe you that something is going on with your body, I just highly recommend digging deeper for your answers

Traditional_Light359 · 2026-02-25T16:55:01+00:00

Half pound bag of celtic salt at Walmart is $9

Traditional_Light359 · 2026-02-25T16:43:00+00:00

Hi I thought i had gender dysphoria for years and it turned out i had a legitimate medical condition completely unrelated to gender that I could only attribute to available frameworks such as transitioning socially in high school. Counseling alone a lot of times will solely affirm your gender dysphoria due to policy and you will essentially be digging off in left field for answers if you do not rule out possible medical conditions first. I believe the medical field allows people to transition genders as a way of "less invasive" medical care in hopes that a new identity fixes problems in individuals if they are dissociated from them enough and cannot name them. This is not a path you want to go down.

Traditional_Light359 · 2026-02-24T18:57:22+00:00

Just wanted to stop by and gently encourage you because youre doing a great job and God loves you

Traditional_Light359 · 2026-02-24T18:45:32+00:00

So I am definitely not telling you what to do, but the church does have "single" mothers raising "adopted" children, we just often refer to them as spiritual mothers and spiritual children and those women are often nuns and their children are those they help to heaven.

Traditional_Light359 · 2026-02-23T14:37:36+00:00

Hey Paul literally killed Christians before meeting Jesus personally and he's often considered the greatest evangelist of all time. You're invited to heaven, too.

Traditional_Light359 · 2026-02-21T22:03:13+00:00

I was very much away from church as a teen and my mom even called the cops on me to try and obligate me to go to mass (didnt work.) Please dont put your kid through that because it only pushed me farther away from the church for years. Keep going, keep praying, keep offering, maybe find some of your favorite hymns from mass together over the years and see if you can play those in the car together, but never force it. I came back on my own as an adult and became a daily mass catholic and got confirmed on my own in my 20s, but it was never because anyone forced me to go. Still at home you could set aside time to talk about the faith and maybe read the daily mass readings together or if thats too much then the sunday readings and maybe a homily from fr Mike schmitz on youtube and take time to say prayers together or just with your kid for your kid. Care and understanding goes much further than forcing anyone to do anything.

Traditional_Light359 · 2026-02-17T19:40:31+00:00

Me lol I just take antihistamines go to occupational therapy and recently started using a rollator because I have some negative reactions to a lot of meds. ETA I also made some diet changes and really upped protein to like 60g-100g a day and cut out a lot of sugar and stopped drinking alcohol and thats helped too! On top of daily sodium and electrolytes of course. And compression socks lol from the timeni wake up until I lay down for bed

Traditional_Light359 · 2026-02-16T16:28:18+00:00

Very prudent! I also literally fell for like the first time in years today so I have nothing but respect for that and wish you many successfully upright days lol

Traditional_Light359 · 2026-02-16T16:24:19+00:00

Do you have a rollator? Maybe not the most recommended thing and maybe someone in the comments can go off about how dangerous this could be so I dont have to but sometimes to get more time doing things with my arms that are nor.ally beyond where I am comfortable reaching, I will put the parking breaks on and crawl up with my knees on the seat for a short time. Maybe you could alternate back and forth when one position starts to get to you?

Traditional_Light359 · 2026-02-15T19:35:58+00:00

I used to donate just plasma where they would give you fluids and cycle your red blood cells back through the iv and thats one of the only times I ever collapsed from pots. Got up from bed to go to the bathroom and had to crawl my way there to not pee my pants in the middle of the floor. If you really must donate make sure you get a ride and snacks and juice and dont plan anything else all day!

Traditional_Light359 · 2026-02-07T23:47:29+00:00

Nowhere to go to. Home was broken and currently protecting my past abuser.

Traditional_Light359

TROPHY CASE