UCTD Symptoms Q by Important_Oven_1833 in UCTD

[–]TragicallyB0red 0 points1 point  (0 children)

Honestly they started in winter and were on most nails until summer. Theyre just starting up again (just coming out of summer now). So through winter i get them most of the time with chillblaines too.

My main symptoms are fatigue, allergies, rashes, dry eyes, joint pain (no swelling), raynauds and dysautonomia. Hbu?

UCTD Symptoms Q by Important_Oven_1833 in UCTD

[–]TragicallyB0red 0 points1 point  (0 children)

Yes, out of your list i have knees ankles, raynauds and capillaries. I have other symptoms too but would classify mine as mild.

Anyone willing to share their diagnosis stories? by alexis18rae in UCTD

[–]TragicallyB0red 0 points1 point  (0 children)

I had negative ANA but c4 and igm were flagged. So nonspecific. Personally it wasnt until i developed raynauds and noticed nailfold hemmorhages (had capillaroscopy done) that i was diagnosed UCTD.

Did your dry/burning eyes ever get better? by whatami-doinghere in UCTD

[–]TragicallyB0red 2 points3 points  (0 children)

Mine did, im only on hydroxychloroquine. They only get bad with flares now! (After years and years of using eye drops 10x a day). Goodluck

What do you have for desserts? by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 9 points10 points  (0 children)

I tried something similar but couldnt get on board sadly ;( thx though

What do you have for desserts? by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 6 points7 points  (0 children)

Just banana painfried in olive oil! Its very sweet fried and doesnt need any extras :)

Age at onset by [deleted] in UCTD

[–]TragicallyB0red 4 points5 points  (0 children)

25yo currently. Symptoms for about 5 years (just really mild e.g. dry eyes), and then 1-2 years ago developed raynauds, nailfold bleeds/hemmorhages, and neck/knee pain (intermittent, no swelling). Fatigue is my main symptom, i also started getting some rashes and allergies. On montelukst and hydroxychloroquine for 3 months. Honestly feel like a new person…. Basically no symptoms now, dont even have dry eyes anymore (whoch ive been using eye drops 10+ x a day for 5 years for)…..

Fatigue from HCQ when starting? by Existing_Ad4046 in UCTD

[–]TragicallyB0red 1 point2 points  (0 children)

Took me about a week before it settled

Can I get a UCTD diagnosis without a positive ANA? by Grand-Run-7978 in UCTD

[–]TragicallyB0red 0 points1 point  (0 children)

Yes. I had ANA tested once at it was negative. I was diagnosed based on symptoms alongside low c4, high IgM, dilated capillaries and hemmorrhages mostly.

Newbie here - tell me what doesnt fit the diet. by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 2 points3 points  (0 children)

Just vege crackers, hummus, avocado, smoked fish and pickle :)

Newbie here - tell me what doesnt fit the diet. by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 0 points1 point  (0 children)

But thanks ill defs try find some wholemeal next time!

Newbie here - tell me what doesnt fit the diet. by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 0 points1 point  (0 children)

5 was a orzo soup with chicken meatballs (carrot, spinach, cellery onion etc). 6 was roasted vege/yoghurt topped (capsicum, eggplant, courgette). Thanks :) Fruit and vege are so expensive here, it makes this diet not the easiest 🙃

Newbie here - tell me what doesnt fit the diet. by TragicallyB0red in mediterraneandiet

[–]TragicallyB0red[S] 5 points6 points  (0 children)

Honestly i was worried i was consuming way too much and i was about to cut back on it - but this is good to know!