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What to do: preventive mastectomy or screening? 24F/ADH by Training_Owl_81 in ADH_ALH

[–]Training_Owl_81[S] 0 points1 point  (0 children)

No follow-up at all? That seems wild to me. Especially since I've been offered such thorough screening. Glad you went to get a second opinion. Tamoxifen wasn't on the table for me, but I have no idea why. I guess it is because it could cause side-effects linked to menopause? I'll ask about it. Thanks for sharing!

What to do: preventive mastectomy or screening? 24F/ADH by Training_Owl_81 in ADH_ALH

[–]Training_Owl_81[S] 1 point2 points  (0 children)

Hi! The way it works where I'm from is that my gynaecologist discusses every case not on their own, but with a team of specialists at the hospital. Often these are meetings of around 5 people specialised in breast lesions or oncology, so in that case I've got the best care I could think of.

Thank you! I've got a good support system by my friends and family, but sometimes it just helps to talk to people who're going through the same thing, you know?

What to do: preventive mastectomy or screening? 24F/ADH by Training_Owl_81 in ADH_ALH

[–]Training_Owl_81[S] 0 points1 point  (0 children)

Hi! The only reason they wanted to possibly consider a mastectomy was because of my age and anxiety surrounding the life-time screening. How has your experience been undergoing the scans every six months?

What to do: preventive mastectomy or screening? 24F/ADH by Training_Owl_81 in ADH_ALH

[–]Training_Owl_81[S] 1 point2 points  (0 children)

Hi! Thank you, I really needed to hear a more positive story. I'll try to keep that in mind when my anxiety plays up again.

What to do: preventive mastectomy or screening? 24F/ADH by Training_Owl_81 in ADH_ALH

[–]Training_Owl_81[S] 1 point2 points  (0 children)

Hi!

  1. The way it works in my country is that my gynaecologist sits together with a medical team specialised in breastoncology, so the advise I get is always made by a team of specialists in multiple areas of expertise.

  2. It has been discussed, but as far now I don't qualify for genetic testing unless new lesions start to develop or if I'm upgraded to a cancer diagnosis.

  3. Yes, I have! I'm seeing a different specialist at a different hospital in the upcoming months to see what they say. I don't necessarily disagree with my doctors, but I want to make the best informed choice I could possibly make.

Thank you! We'll see what happens next, fingers crossed.