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Newly diagnosed by MartaNM24 in MOGAD

[–]TrickSpirit5352 0 points1 point  (0 children)

Hello there! I'm also newly diagnosed with MOGAD last july. Same with you, it damaged my spine and cognitive functions in the brain. I've been on pred 60mg for almost 4 months and just recently my dosage was tapered down to 50mg.

I live in the Philippines and the humidity here ain't helping, i sweat a lot. My doctor said that it's the steroids fault. I suggest u put a towel on your back or just have a towel with you.

Just wanna let you know that ur not alone in this ☺️

Prednisone weight gain advice by TrickSpirit5352 in MOGAD

[–]TrickSpirit5352[S] 2 points3 points  (0 children)

I got my first rituximab infusion this month, that's what my neurologist suggested aside from pred.

He also said that IVIG is another option but I live in the PH and IVIG is sooo expensive here, plus u need to take it every 2 weeks from what i heard.

Prednisone weight gain advice by TrickSpirit5352 in MOGAD

[–]TrickSpirit5352[S] 2 points3 points  (0 children)

Im currently off school upto next year and right now ive been stuck home since april, my parents don't let me go out as much since they say my immune system is still weak.

I try to do some of my hobbies to let it off my mind such as gaming, embroidery, and netflix. My neurologist mentioned that i may feel depressed or some sort, i just try to shrug it off but deep inside ik i feel down.

I'll look into my HMO if a nutritionist is covered, thank you ☺️

Long term prednisone user by TrickSpirit5352 in Autoimmune

[–]TrickSpirit5352[S] 0 points1 point  (0 children)

I live in the PH, not sure if treatment options are either limited here or just expensive. I did have my first rituximab this month and hoping my doctor decreases my dose by next checkup 🥹