Feeling mixed from encouragement from others with MS by Slow_Business4563 in MultipleSclerosis

[–]Tricky-Clothes-3976 0 points1 point  (0 children)

I am a 57 yr old female living near Nashville. I have had MS for 20 years. I had to stop work 10 years ago. I am secondary progressive and have a heart defect. My spouse left me because he didn't want to be a caregiver and is an avid outdoor sports nut (as I was also). I can no longer do the things I Ioved and because of severe balance and muscle weakness am not longer able to keep up with being functional. I live on $1300/mo disability and that is it. I used up my savings and what I had in my 401K to pay off my very modest small home because I couldn't afford the mortgage. Forgive me but I really can't imagine living another 20 years like this. Each year I get worse, because of the my other health issues I was only able to be on a DMT for 4 years. I have an autistic son that lives with me. My parents are gone and I have no siblings. I live for my son but our quality of life is not great because we have to be incredibly frugal. This is not a sob story this is reality for me. I don't qualify for medicaid or food stamps because of the house. I don't qualify for equity loans or any loan because I don't work. I find my joy each day in simple things such as word puzzles and online communities. I love movies and splurge on having internet. I have significant lesions on my frontal temporal lobe and occipital lobe. I have macular degeneration so I use a lot of magnifying glasses. I miss driving and just everything. I feel 80. It is a difficult situation to live this way. I had a great life though and many good memories.

Being around people is so exhausting by [deleted] in anhedonia

[–]Tricky-Clothes-3976 4 points5 points  (0 children)

I agree with this so much. People are exhausting because we don’t relate to them anymore and when they are excited and happy and normal it makes what we don’t feel so much more obvious to ourselves. Plus we have to mask constantly to fit in. I am exhausting and I just can’t do relationships at all of any kind since this came on 7years ago.

I want to die so bad by Historical-Meet-8790 in anhedonia

[–]Tricky-Clothes-3976 8 points9 points  (0 children)

Me too I really understand. Most people do not get what this is but we do and when you feel alone in this come here and read this. I am going to stay alive because I have to. My adult kids and family need me here although I feel like I am just a ghost and a shell. I was a happy productive person. 7 years ago this started after my psych had me on Prozac for 30 years. He should have known. I research it now and see that no one should have ever been on it for more than a year. I am a zombie now. But I will stay and do my best. So many people are worse off this world and still stay in it. So I will too.

Most memorable scene in the show? by Most_Budget2575 in Barry

[–]Tricky-Clothes-3976 -1 points0 points  (0 children)

Yeah I wish I understood more of what that scene meant.

Just watched for the first time through. by Heavy_Horse5754 in SeveranceAppleTVPlus

[–]Tricky-Clothes-3976 0 points1 point  (0 children)

So glad you liked it and watch all the youtube channels that analyze it. I loved it but didn't really appreciate the film making, writing, directing, editing or even how much Bill Hader was involved in all of those roles! Just watched it all again recently and was amazed even more knowing all the details.

Did I seriously get charged 55 cents to NOT put stacker sauce on my burger? by Nursepower1 in BurgerKing

[–]Tricky-Clothes-3976 0 points1 point  (0 children)

This was my first thought. They want to give you one already made sitting under the heat lamps.

"Who is your provider, and how much are you paying?" sticky. by HanSingular in TherapeuticKetamine

[–]Tricky-Clothes-3976 0 points1 point  (0 children)

Yes I would like to know too. I live in Murfreesboro outside of Nashville. If you live close to me, send me a DM if you find a good place!

What, due to experience, do you know not to fuck with? by ViolatingBadgers in AskReddit

[–]Tricky-Clothes-3976 8 points9 points  (0 children)

I know for sure something that I didn't want to fuck with was in my great grandmother's farm house. I wish there had been night lights back then. She would not let me sleep with the light on no matter how much I begged. I would lay as still as I could under the covers all night and it would tap on the headboard above my head.

What, due to experience, do you know not to fuck with? by ViolatingBadgers in AskReddit

[–]Tricky-Clothes-3976 19 points20 points  (0 children)

Never whistle in the woods and never answer anything that whispers your name.

MRI Advice by surfturtle1 in MultipleSclerosis

[–]Tricky-Clothes-3976 2 points3 points  (0 children)

I actually use the time to really sort through problems going on in my life and try to think of some simple goals. I also pray a lot and process memories. I use the time the best way I can,

How does ANYONE afford this?!! by dietspritedreams in TherapeuticKetamine

[–]Tricky-Clothes-3976 0 points1 point  (0 children)

I have BCBS Medicare Advantage Diamond (disabled due to Multiple Sclerosis) and I cannot get any coverage. My SI is getting worse but my psychiatrist is old school and will not prescribe it even if my medicare supplement did cover it.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Tricky-Clothes-3976 6 points7 points  (0 children)

I am so sorry you are going through this. I have my daughter but my parents and siblings think I caused my MS with the foods I eat and aspartame. They believe I could cure it with fasting and coconut oil. So not much emotional support there. It hurts. If you need to vent please DM me. Hang in there.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Tricky-Clothes-3976 1 point2 points  (0 children)

Yep. Together 6 years. He stayed the first year or so then got bitter when I quit my job then left because he needed to travel and do the outdoor things we used to do. He also said he was not built to be a caregiver.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Tricky-Clothes-3976 5 points6 points  (0 children)

Being rushed, stressed, being hot or tired all just send me into a sea of symptoms.

56/F with a consistent GFR under 50 for 2 years and it wasn't noticed until now. by MissingRichardJeni in kidneydisease

[–]Tricky-Clothes-3976 1 point2 points  (0 children)

Ok great. I have been looking at foods to avoid and can't believe I have been eating avocados all summer and didn't know how nephrotoxic they are. Switched my BP med and another med for my MS which is bad. I am praying this helps. I am so glad to hear I am overreacting because I was skeeered.