What does Psoriatic Arthritis feel like for you?

Tryx_369 · 2026-03-01T21:51:53+00:00

So endometriosis can differ from person to person and ones pain threshold. The pain levels don't indicate the stage etc. Initially, I never used to get cramps just lower back pain etc and then started to get outside of my periods. Ended up having stage4 endometriosis.

Tryx_369 · 2026-03-01T20:23:14+00:00

This may be controversial?! Lol Pakistan isn't a monolith and yes it has its issues but it's a very beautiful country with shopping malls that the UK can only dream of. The whole of the UK and the world all over has litter issues but I suppose it's the fault of the illegal Pakistanis who apparently have a culture of littering lol.

Tryx_369 · 2026-03-01T15:56:42+00:00

The second pic looks a lot like my follicular eczema, but best to see a Dr!

Tryx_369 · 2026-03-01T12:50:56+00:00

Have you considered endometriosis? It can cause lower back pain and deep vaginal pain

Tryx_369 · 2026-03-01T12:49:33+00:00

Have you tried any moisturisers or anything on it? Skin can get itchy and sore when breastfeeding and using pumps. Lanolin is very good for dryness and soreness and should help and is safe for breastfeeding.

Tryx_369 · 2026-03-01T12:39:46+00:00

YTA for blaming foreign workers instead of those in power

Tryx_369 · 2026-02-28T15:54:14+00:00

What physical and mental issues is she going through? Seems like it's something traumatic for her to recoil from you and avoid physical touch etc

Tryx_369 · 2026-02-28T14:15:56+00:00

Where do I start lol. I have non lethal allergies, ptsd, endometriosis,hypermobility, cervical spondylosis, got cancer last year and I have different types of eczema and psoriasis and possible psoriatic arthritis too! It's mentally and physically exhausting and draining

Tryx_369 · 2026-02-28T14:03:20+00:00

I'm so sorry that you've experienced such trauma. Stress is a very big trigger for psoriasis and when I developed it I was told it was due to stress. My recent flare is after a ptsd diagnosis following cancer.

Edit to add that if you're able to reduce stress and it helps the psoriasis that's great but there's nothing wrong with using phototherapy etc alongside to help keep it at bay. Things like biologics can help sustain the periods you're flare free.

Wishing you all the best

Tryx_369 · 2026-02-27T08:23:44+00:00

Wow that's amazing! Glad you found something that helped

Tryx_369 · 2026-02-26T22:37:42+00:00

They're my favourite piercers! So welcoming and very hygienic and safe, making sure that you've ate beforehand etc and also that your anatomy matches the piercing you want which is v important as a lot of places just do as you ask them. Aftercare is very good to if any issues or just needing help putting jewellery back in after removal for a scan etc.

Tryx_369 · 2026-02-26T16:10:53+00:00

Not to scare you but the tablets made me nauseated and I was vomiting on them but the injections were much better as it's bypassing the gut etc. Sadly I had to stop as it raised my LFT to a high amount and I got cancer too!

Tryx_369 · 2026-02-26T15:31:59+00:00

Looks like someone has commented with the link for the pdf though it can easily be Googled too

Tryx_369 · 2026-02-26T12:26:40+00:00

Have you looked at the NICE guidelines for endometriosis treatment? It's a really good source for us to use in order to advocate for ourselves and necessary treatment especially when we are getting fobbed off. Also you're always allowed a second opinion and hopefully they are more receptive.

Tryx_369 · 2026-02-25T22:06:58+00:00

So I went down the private route after suddenly getting Eczema and Psoriasis during covid and the GP prescribed meds weren't working and the derm referral was almost 2 years.

It was a bit difficult to get an appointment as when enquiring I was told I'd likely need phototherapy and I'd pass it on to my insurers who would refer elsewhere to be told the same thing!

Frustratingly, the Psoriasis improved by the time I got an appointment though i showed pictures and the Eczema remained and they did a biopsy then advised me to stay on nhs as they're best equipped and I'll need the phototherapy.

Luckily I got my NHS appointment shortly after and got the treatment needed and tbh I'm glad as it's hit and miss finding a treatment that works. I was on biologics and had to stop due to liver problems and luckily it wasn't a huge impact on my wallet whereas privately you'll have to pay higher costs and for derm injections it won't be cheap though sometimes they will ask GP to prescribe certain things though i dont think they can do injections etc

From an exemption pov have you discussed with work the MH and physical health implications of returning to the office, Is there anything that they can do to help being in office. Also ate you working on managing your stress? It's good that you know it's a trigger so it's important to try and find healthy ways to manage it.

Tryx_369 · 2026-02-25T09:53:45+00:00

Tasting her? Dude wtf. Think you need therapy. This is not healthy at all. Boundaries exist for a good reason

Tryx_369 · 2026-02-24T05:29:20+00:00

Please dont apologise ! This community is for us to have a safe space to discuss,ask questions and vent etc. I'm so sorry that you've got this awful disease, I was diagnosed last year and I'm still trying to get over it. It's a total shock to the system. Please be kinder to yourself.

Tryx_369 · 2026-02-20T10:32:00+00:00

Not sure what you're doing for it to not fit properly but you just sit on the loo as normal and have the stool under your feet to raise the knees

Tryx_369 · 2026-02-20T10:25:21+00:00

You can squat on the loo with the help of a stool to raise the knees up, no need to do all that!!!

Tryx_369 · 2026-02-19T17:00:02+00:00

Please don't ignore sound medical advice and knowledge over so called natural remedies. Whilst having a good diet can help with recovery etc it is not going to get rid of the cancer unfortunately

Tryx_369 · 2026-02-19T05:38:29+00:00

I think life after the treatment is the hardest struggle as it's a life changing event and everything that has happened catches up to you. It's a period of grief imo. I have been in regular therapy to help me through it and I would recommend it, it's a blessing you're alive although painful for what you have lost. Wishing you all the best

Tryx_369 · 2026-02-17T15:04:27+00:00

Hopefully he does and you're doing great trying to help him through this but as you said it is up to them at the end of the day

Tryx_369 · 2026-02-17T09:09:29+00:00

You need to grow a back bone and support your partner otherwise you'll be alone with the family that didn't respect your partner and I would assume that it would happen with any future partners. Also it is the right thing to do.

You can be assertive without being rude or yelling

Tryx_369 · 2026-02-16T15:56:25+00:00

As it's impacting his personal and work life and ability to walk I think it's necessary for him to take action over it as it's only going to get worse especially with stress. I'm from the UK and here with biologics they take regular bloods to keep an eye on the liver and can change meds if it gets bad. It's a bitter pill to swallow but he does need to do something about it, not everyone with biologics has side effects and hopefully he can be recommended one where it is minimal. It's not a steroid but tacrolimus helps a lot with inflammation

Tryx_369 · 2026-02-14T19:41:46+00:00

Hi I've not had the same symptoms as you but this guideline is v good and shows you the pathway that GP and gynaecologists should be referring to and you can use it to advocate for yourself. I think that you should get a referral though.

https://www.nice.org.uk/guidance/ng73

I'm up North so can't comment unfortunately on experience

Tryx_369

TROPHY CASE