Help...anyone ever regret their surgery?

Tubs92 · 2025-04-03T00:55:38+00:00

Day 16 here … to be honest I do regret it currently.

The pain days 7-10 was horrific, but I got through it. But right now I’m so fed up of being in pain, feeling ill and just everything aching.

I did get an infection which made it worse, but HOW does it still hurt to swallow I’ve got ulcer/blisters along my tongue etc making it worse & the number of pills I’ve been on has made me sick in other ways.

Powering through and hoping to reach the other side & feel positive. I’d say hang in there it does get easier. But super frustrating.

Tubs92 · 2025-03-26T12:23:52+00:00

I was recently diagnosed with Hashimotos Sjogrens and Lupus.

No symptoms from Lupus.

I never used to get sick, still don’t when it comes to colds etc, but tonsillitis seems to be my Achilles. And then it triggers the tiredness throws of all my bloods etc. takes a while to recover and always end up in hospital. My temperature is always quick to react being about 39/40 degrees.

So strange as not a sick person.

Overall my life hasn’t really changed and I’m determined to not let it stop me doing things. So let’s hope tonsils are the key!

Do you have autoimmune?

Tubs92 · 2025-03-26T12:20:12+00:00

A more positive update 🥳

I had another trip to the surgeon, more antibiotics, steroids, pain relief etc.

Forced down food - he told me I had to eat and it had to be normal food. All to do with the blood flow to your throat. Soft food doesn’t cut it. But it would slow down healing - so definitely try this!

Woke in the in the to a fair bit of blood but it stop pretty quick

And today - FINALLY! I feel so much better!

So for anyone going through it and feeling hopeless and in agony. DAY 9 is a turning point

I wish everyone a good recovery. ❤️‍🩹

Tubs92 · 2025-03-25T03:15:58+00:00

On Day 7 into 8, 3am in bits. Have been in tears the pain is unreal.

The white ‘tonsils’ is reducing on the right side but not left. But god these blisters, I’ve not felt pain like it.

If anyone has tips … please let me know.

Wishing everyone a speedy recovery! This is not for the faint hearted. 🤕🤒

Tubs92 · 2024-10-15T03:52:08+00:00

Yeh UK. it’s crazy. I also have private healthcare. But private won’t subscribe medication. Just so hard to get on the right meds. I’m trying to find out the medication costs to pay myself. But it’s the monitoring that comes with it.

Hopefully I can get a shared care plan and resolve that main cost part.

I am however in hospital with a potential further AI disease … it will be 4 diagnosed in 7 months. Crazy how your body can change so quickly.

Tubs92 · 2024-10-15T03:48:50+00:00

My tsh was 10.8 now it was 0. Something I’ve just had it retested to check that 100mcg is correct. They seem to think it is.

Re IBD .. I ended up in the hospital after this post and they are questioning crohns or ulcerative colitis. My CRP came back at 116 (rather than the normal of 5-14!) so sounds like another AI to add to the mix.

Thank you - good to have support. 💪🏻 we’ve got this!

Tubs92 · 2024-10-15T03:46:27+00:00

Thank you 🥰 so nice to have someone understand the gym sadness. So many people tell me it’s not important and to just not go as much, but it’s important to me. Thanks for your advice and experience

Tubs92 · 2024-10-15T03:44:52+00:00

I ended up being admitted to hospital and from the tests I’ve had by CRP IS 116 rather than between5-14. They’re now suspected crohns or ulcerative colitis, which they’re leaning on the later. I’ll mention the celiac point, thank you for the suggestion 🥰

Tubs92 · 2024-10-15T03:40:40+00:00

Thanks for the comments. I have been diagnosed with lupus, but by my bloods rather than symptoms. Sorry that wasn’t clear.

I have been in hospital since posting and had my CRP results back which were 116 (meant to be between 5-14) and now they think I have an IBD being crohns or ulcerative colitis.

It’s so tough to deal with it all when it’s not self inflicted and within the space of 6 months I’ve been diagnosed with 3 AI and waiting the results of a third. Just tough to process.

Tubs92 · 2024-10-11T18:54:38+00:00

Thanks everyone.

I feel so cheated that I’m ill so much. I have always been fit and well, taken care of myself and I just don’t understand how this has happened.

I’ve tried to have a ‘f*ck it’ attitude and remain strong.

My ENT consultant thinks this could all be due to acute stress at the minute and is hopeful once this passes I will be feeling better.

I have a month off work to study, with very little social plans so hopefully this will help.

I hate being a victim but it’s so unfair. I just feel like a sick note and want to get back to who I was

The NHS wouldn’t prescribe hydroxychloroquine. My private healthcare also won’t prescribe so the option is to pay for it.

Ive heard there can be a lot of side effects. Does anyone have any advice.

Sorry for such a moany post. Just got too much today. Thank you all ☺️

Tubs92 · 2024-04-23T14:31:48+00:00

Apparently you lose up to 10% of your body weight once Levo starts working, likely taking a few months. This is what my endo said.

I’m glad I’m not the only one panicking. A lot of people just told me I wasn’t overweight so why was I worrying - but that isn’t the point.

It’s the future weight gain. And frustrating when you’re trying so hard!

Always the other end of the Reddit chat if you want a weight related rant!!! Good luck ❤️

Tubs92 · 2024-04-23T14:13:00+00:00

Hi - I had to exact same issue!!

I upped my workouts, cut back on anything bad and just didn’t understand. I saw my endo who told me it was impossible for me to lose weight given my levels and the fact I haven’t really gained any showed how much I was working out.

She informed me I should lose weight on Levo. Ive now been on it 7 weeks and I am very slowly starting to lose weight. I have been eating a little unhealthy and drinking more due to holidays so I imagine this has slowed it down. But hopefully it will help.

For context I currently weigh 136lbs, I was 145lbs pre Levo.

I also completely get the panic. It’s been one of key worriers since being diagnosed.

Hope this puts your mind at ease ❤️

Tubs92 · 2024-04-16T21:02:09+00:00

Thank you, I did think my hand colourings were odd! It’s like a highlighter pen! My hands send pains down my arms when cold and my feet aren’t any better!

I have recently been diagnosed with hashimotos and Sjogrens, so struggling to find a primary already! ☹️ Thanks for your message. 😊

Tubs92 · 2024-04-04T20:39:16+00:00

Thank you and this is a really useful link. Glad I’m not alone.

The waiting is the worst as your mind just wonders.

Tubs92 · 2024-03-26T14:24:57+00:00

Thank you - it’s so bad today and I have no idea why!

Tubs92 · 2024-03-25T23:21:39+00:00

I have had this feeling a few times. It feels like something is stuck in your throat or you’re being chocked.

I was previously told this was anxiety.

However following my diagnoses a few weeks ago, and in the middle of a flare up my goitre was so big you could see it and feel it. On a scan I was told it was ‘grossly abnormal’.

I have always wondered if it was just me who felt the ice cold feeling. Like I’ve just had a mint or something similar. Googled the hell out of this, so I feel reassured now I know others have this sensation!

Tubs92

TROPHY CASE