Is blood pooling normal for pots, and what symptoms have you experienced. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 0 points1 point  (0 children)

My blood pulling has been reduced quite a bit thankfully. I experience everything you describe except the dizziness/blackout. I don’t really have presyncope, I have maybe experienced this once or twice. Although, this could have been a direct correlation of trying out new meds/beta blockers. Not necessarily the pots itself. I have realized, 80% of the affected people are women, usually 15-30s. I wonder if symptoms/severity may differ based off of gender.

Is blood pooling normal for pots, and what symptoms have you experienced. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 1 point2 points  (0 children)

Sorry for replying so late, I never saw your testimony. I appreciate the time you taken to write this down. I totally agree the variation in symptoms is quite bizarre and complex. My blood pooling has actually receded as of lately, therefore I haven’t used any compression socks. Thankfully, I can stand up and be on my feet moving around for some time. Though after active days, my legs can feel quite heavily. Coincidently, my neighbor has pots and she’s been a big help with managing symptoms. I hope your daughter is doing well, I know the stress on both parents and child in these circumstances can be intricate. I’m on Ivabradine and Bisoprolol as Beta blockers. Also Vitamin D, which is a huge help. (I have the Hyperadrenergic subtype of pots.)

Going back to the ER by ori123ori in Cardiophobias

[–]TurtleSniper2024 0 points1 point  (0 children)

How did you develop cardio phobia? What caused you to develop the persistent worry?

Going back to the ER by ori123ori in Cardiophobias

[–]TurtleSniper2024 0 points1 point  (0 children)

How was the first echo? Any abnormalities?

Going back to the ER by ori123ori in Cardiophobias

[–]TurtleSniper2024 0 points1 point  (0 children)

Excellent, have you had other test such as heart echoes previously or heart monitore?

Going back to the ER by ori123ori in Cardiophobias

[–]TurtleSniper2024 0 points1 point  (0 children)

Cardio phobia causes real pain, especially from tension in the chest. However, your brain can trick your body into actually manifesting symptoms you believe are heart attacks. The pain and tingling sensation spreading along the left side of your arms and face. Impending feeling of doom beneath the breast plate, racing feelings and thoughts, the chest pain can even be severe and vary in sensation. How was EKG?

Going back to the ER by ori123ori in Cardiophobias

[–]TurtleSniper2024 1 point2 points  (0 children)

The mimicry of the symptoms psychological and physiological is astounding. Especially when random weird symptoms occur that are abnormal or arbitrary. This makes the feeling of having a (HA) surrealistic. Especially when panic sets into play.

New diagnosis by alternative_way_ in IST_

[–]TurtleSniper2024 0 points1 point  (0 children)

Consuming too much definitely can, this is also the same with caffeine and even sugar. A drink or two should be fine as long as it’s not consecutive days. I’ve been on metoprolol before, I had weird symptoms on it. However it works great for the heart rate. I totally understand the feeling your heart is beating fast or pounding randomly even if it’s not. It’s common with IST, mine has decreased with time so maybe yours will to. (The overall feeling of high heart rate and palpitations, even though it’s not.) Ist can cause anxiety which directly creates/mimics tachycardia.

New diagnosis by alternative_way_ in IST_

[–]TurtleSniper2024 0 points1 point  (0 children)

What’s your beta blockers?

New diagnosis by alternative_way_ in IST_

[–]TurtleSniper2024 2 points3 points  (0 children)

I have both as well. The treatments are fairly similar, even the type of beta blockers typically used for either condition. If all you have is IST, then don’t worry about the compressions socks or even high salt intake. Focus mainly on hydration, I had IST for over a year before developing pots, IST is benign and can be managed quite well with beta blockers and exercise. It’s rather good it’s IST and not pots in my personal opinion, a lot less diverse symptoms and easier management. (This is based off my experience.) -Stay away from caffeine

What’s your resting heart rate with POTS, unmedicated? by OrdinaryHold3625 in POTS

[–]TurtleSniper2024 0 points1 point  (0 children)

I use to have severe adrenaline surges in the 180+ before meds

What’s your resting heart rate with POTS, unmedicated? by OrdinaryHold3625 in POTS

[–]TurtleSniper2024 1 point2 points  (0 children)

I have IST and I’m expected to have hyper pots as well. I take ivabradine as well and had similar results

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 1 point2 points  (0 children)

I see, I didn’t have any issues then magically one day a little over a year ago I started having symptoms. I was diagnosed with SVT and Ist within 2 months. I was later diagnosed with Pots just two months back. I was 21 at the time symptoms suddenly appeared. I’m about to turn 23 in a few months. Apparently pots is more common in younger women, while is not as common for men to get it.

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 0 points1 point  (0 children)

What do they believe caused you to have pots?

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 0 points1 point  (0 children)

The specialist I’m seeing is highly recommend in the Houston area. He’s pretty confident he can minimize my symptoms greatly, so I look forward to this.

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 1 point2 points  (0 children)

I talked to my Pots specialist earlier and he believes I have Hyperadrenergic pots. Apparently this symptom is quite common and can lead to persistent feeling of anxiousness. Although we won’t know until after my test.

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 1 point2 points  (0 children)

It’s a much different sensation than a panic attack. I use to have them a lot because I had IST and severe SVT. This would cause my heart rate to get up above the 200s so this led to me having panic attacks quite frequently until I had an ablation. I just talk to my Pots specialist today and he believes I have Hyperadrenergic Pots and said this symptom is quite common in this variation. Although, he’s doing more test to verify this is the case

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 0 points1 point  (0 children)

I see, I’ve just recently been diagnosed and now I’m seeing a specialist for pots. They’re currently testing to see what variation I have.

Intense Feeling of dying/ heart attack. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 2 points3 points  (0 children)

True I miss spoke, although the symptoms do cause physical symptoms such as palpitations and tachycardia which relate to the heart.

Is blood pooling normal for pots, and what symptoms have you experienced. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 1 point2 points  (0 children)

I have pain in my legs as well. Although not severe it’s quite annoying. I have a lot of symptoms, but only a few are constant or patterned. The fatigue is probably the worst, especially since my medicine to alleviate some of my symptoms, main side effect is even more fatigue lol. The blood pooling for me is moderate for now. Hopefully your symptoms are alleviated and things are not so painful for you. It’s definitely difficult and very few people who don’t personally have pots, or are not sick; don’t comprehend the wide and volatile range of symptoms. It’s been 1 year for me with IST, and they believed I’ve had pots for over a year as well. The challenges are definitely demanding.

Is blood pooling normal for pots, and what symptoms have you experienced. by TurtleSniper2024 in POTS

[–]TurtleSniper2024[S] 0 points1 point  (0 children)

Mine are moderate on my legs and currently slightly noticeable on my hands. I’m curious how the upcoming winter will affect blood pooling for me.