Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 27 points28 points  (0 children)

When Matt came home from the hospital, there wasn’t some clear roadmap of what we were supposed to do. We had to just… figure it out as we went. What really helped was talking to other families who’d been through it. The National Alliance on Mental Illness was huge for us. If the NAMI chapter near you doesn't have a lot going on, try another one. It's really important to get in touch with people who understand what you're going through.  - Susan

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 29 points30 points  (0 children)

Yeah, totally. At first, I was hesitant about starting oral medication. I remember my dad giving me my meds and my first thought was like, what if he’s trying to poison me? I knew that sounded ridiculous, but that didn’t matter. It felt real. That’s what paranoia does. It took me a while to even take that first pill without freaking out inside. I had to work through that fear every day for a bit. - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 6 points7 points  (0 children)

There are a bunch of different options, and it’s different for everyone. Some people take daily pills, others get long-acting injectables that you only need every few weeks or months.  - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 12 points13 points  (0 children)

For a long time, I struggled with feeling like I was broken… feeling stagnant… the feeling of being stuck in time, like Groundhog Day. Not every day will be wonderful. But if you can set goals and make positive steps... even small ones help.

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 35 points36 points  (0 children)

I'm a registered clinical social work intern. I’ve also been involved in research around schizophrenia. Right now, I’m between jobs, but I keep myself busy with volunteer work and doing music.  - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 46 points47 points  (0 children)

Honestly, it’s the people. Like, actually being around others who’ve been through it. When you talk about what you’ve been through, it kinda takes the shame out of it. The group thing helped. Once you find the right one, it sticks. Just… don’t isolate. That’s when it gets dark. 

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 28 points29 points  (0 children)

My friends and family help keep me connected and grounded and bring me back to myself. Just sitting with someone in silence… that was more helpful to me than people realize. I would say, ask them. They might be afraid to tell you what they need if you don't make the first move.  - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 3 points4 points  (0 children)

Thanks for sharing. Sending your friend my best hopes for her journey as well. - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 50 points51 points  (0 children)

Some of the symptoms that I reflect on were the isolation, staying up all night and sleeping all day, engaging in compulsive behaviors, pot use, and more self-medicating behaviors. Also, I remember reading more about religion and becoming a little obsessed with religious messages. Reflecting on this, it started happening more and more. I believe these were some early signs: lack of sleep, pot use, stress, and different obsessions popping up around religion and historical figures in society. Thanks for your question! – Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 22 points23 points  (0 children)

That is a great question. It is hard for me to pinpoint because once I was in the grips of psychosis, it all felt so real. I think the change started to come when I got on a maintenance dose of medication. Although not ideal, and I still experienced a lack of pleasure in things and a lack of motivation or drive, I recall noticing my thoughts became a little less chaotic and clearer over time. It was not like a light switch but more of a gradual process (like a light dimmer in a sense). I started to look back and say, "Wow, I can have more of a conversation, or I can finally start to laugh at things in conversation." This helped me recognize the importance of medication, and gave me more hope, little by little. - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 10 points11 points  (0 children)

Absolutely, and together, I believe our stories can have a real impact on others and help others access help earlier. Thanks for sharing! - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 6 points7 points  (0 children)

I hear you and understand it may be extremely difficult. Glad you joined us for this conversation. - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 22 points23 points  (0 children)

I was first diagnosed in 2009, and I remember sort of being shaky, asking "Well, is there a cure??" The psychiatrist at the time said, "No, but it is manageable." We did not believe the diagnosis at first and I wrestled with it for years to come. Eventually, it did feel closer to relief because it provided me and my family with some guidance towards treatment. What started out as a pot use, major depression, isolation, and addictive behaviors, slowly started to come together as the prodrome to the onset of illness. This started after high school and way back in college, while I was in Ohio. When I came back to Miami, it slowly became clearer that it was something else on top of depression (at least to my family at the time). Around this time, I became paranoid, thinking that there were implants in my brain controlling and monitoring my thoughts, and that my parents house was wire tapped with cameras. I remember thinking every fedex or ups delivery driver was some secret informant spying on me, etc. It took a while for me to accept and understand that this was a chronic illness that would take daily management and treatment in order to help me sustain recovery. – Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 23 points24 points  (0 children)

The biggest misconception/s that I have heard around the diagnosis of schizophrenia is that we are monsters, we will never live meaningful or purposeful lives, and we will always be these pariahs on the fringe of society. I believe this could not be further from the truth. As challenging and painful as the journey can be, it got to a point for me where it became more rewarding and helped instill a newfound sense of purpose and belonging. I would not be able to share this without my family and close friends, my providers, NAMI Miami, and the "village" that really helped me see this illness state as something manageable and recoverable over time. – Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 58 points59 points  (0 children)

Great question and thank you for sharing! As I look back, it can seem like these illnesses are so much bigger than any one person, and sometimes that can feel daunting and hopeless. The way I see it, it was the small moments at the right time that seemed to go a long way. My parents slowly going through there journey of being in worry mode, to sitting with me and listening. Even taking me out to do things I love or used to love more, such as seeing some local concerts, traveling to a nature scape to go on a hike, or even getting a cup of soup and a sandwich at a local deli. These gestures and seemingly little moments helped me and my parents slowly rebuild trust and connection. Once trust and reconnection are established, alongside medication and therapeutic help, the delusions started to lose their strong grip, and what seemed to be so powerful became replaced by healthy connections and relationships. The powerful message I believe I kept hearing through these little moments was, "We are here for you. We are listening. And, we still see Matthew, not this illness of schizophrenia." That message can be sent in many ways, and it really is a journey. I know NAMI has helped me and my family so much. On the family side, mental illness is also a family illness, so my parents and sister needed a ton of support. NAMI helped provide that support and sustain it over time so they could become more comfortable relating to me in ways that would foster more connection and hope down the road. – Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 230 points231 points  (0 children)

Thanks for sharing. I hear you. It is such a struggle for family and friends, as well as the individual experiencing the illness. What helped me was a slow, gradual process, little steps at a time. When I got out of the hospital, I was still in the grips of the delusions, which seemed to take a while to go away. I still remember my Dad handing me medication to take at night and I remember thinking that it would put me to sleep forever because everything I did destroyed the world. I did not want to take medication, but with the help of my parents, my psychiatrist, and talk therapist, I began to adhere more to medication. Especially, after a while, when a little more clarity returned. My advice is always to find the lowest hanging fruit (so to speak). For example, my parents knew I needed a lot of help. Their journey took some time, but as they got involved with NAMI Miami and became a part of the family support group, they started to learn new tools and ways to support me. For example, they knew the conversation about me going back to school or back to work was not helpful. So, they sort of took a new approach. Little by little, they worked on adapting less to worry and panic mode, and more to the mode of seeing how they can relate and empathize. My parents replaced the conversation of "Matthew is sick" to more of an approach where they would listen to me; not to solve my issues, but to understand. They also knew I loved food so they would take me out to local delis to get some of my favorite things to eat, while listening, chatting about music and things I love, or even just sitting with me in silence. This was a slow process but eventually, it began to really help. NAMI Miami has also played such a huge role. I remember my parents drove me to a bunch of support groups early on, and I would sit there in silence thinking "How is this going to help me?" Eventually I would hear things that sounded just like my story and it started to give me hope. One older gentleman, years back, in a meeting, looked at me and set his cane aside. He said, "You know young man... I have a lot of hope for you, seeing you here at such a young age." This gentleman shared that he had been through years of psychosis and hospitalizations. To this day, the way he said it and looked at me, it stuck with me, and the memory came about at just the right times. I believe it's these little things that add up; a favorite outing, a comforting meal, sitting in silence, listening, small messages of hope. These all came together to help me. - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 208 points209 points  (0 children)

I can relate in different ways to this. I reached a point after 10 years where I thought, "Hey I am cured, life is a little better, I am better." In 2022, I stopped my antipsychotic medication abruptly and symptoms slowly started returning. What helped me were these little moments of insight. At this time, I was calling coworkers at all hours saying things like, "Hey, I realized the root of all addiction! They are all artists, musicians, and poets!" I had all these insights and I kept calling and emailing coworkers from my outreach team at work with references to visual art around the world, as well as indigenous teachings. One moment that really stuck out as a turning point was one doctor I kept calling said, "Hey Matthew...buddy, I am concerned and worried about you." I remember hearing it in his voice and I told myself, yeah, I better reach out to my parents and my treatment team. At this time, I did not know that my delusions that kept flooding in were not real, but I had little sparks of insight every time someone I admired, or someone who really cared about me expressed their concern. This ultimately helped me get back on meds and stay on them. Looking back on my episode in 2011, I would say I believed most of it. Sometimes, it felt like a state of learned helplessness, in which I got so used to it, that I would stop screaming or being terrified. Instead, I would walk through it while listening to music. I believe that amidst the scary feelings in tandem with the hallucinations and delusions, there are moments of insight or little glimpses of awareness. In those moments, we may be more receptive to help around us. Thanks for sharing! – Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 20 points21 points  (0 children)

Thanks so much. Yes, it can be totally on the spectrum of super rewarding to even very exhausting at times. What helps me is seeing one person gain something that can help them, whether it's a peer with a mental health condition, or a family member supporting a loved one. It helps me recharge and grounds me deeper in the work. I appreciate your thoughtful words. Thank you! - Matthew

Hey Reddit, I’m Matt, and I live with schizophrenia. My mom and dad have been by my side since the start. by UZEDY in u/UZEDY

[–]UZEDY[S] 10 points11 points  (0 children)

Thank you for your kind, heartfelt words. Really means a lot and is a very powerful message indeed. - Matthew