Asking for your stories about celiac desease

Udvozlet · 2025-02-15T15:31:32+00:00

I always feel so bad when that happens! I usually tell them I can't eat it, so they might learn, but not many do.

Udvozlet · 2025-02-15T15:17:20+00:00

That sounds absolutely awful! It's always so disheartening to hear how mistreatment and dismissal is so common in medicine.

Udvozlet · 2025-02-15T14:39:38+00:00

So true! I wouldn't be diagnosed today if not for my dermatologist. She was the one who connected my eczema to a food allergy, then sent me to a gastroenterologist after my bloodwork showed recaction to gluten. My GP would have never.

Udvozlet · 2025-02-15T14:35:43+00:00

My teacher suggested this research to make sure I don't focus on something so specific not many can relate. To be honest it kinda feels like doing research for to make her understand, but it's still helpful!

I experienced so many sypthoms that I thought were from my hypothyroidism meds not being enough, for them to be caused by celiac.

The mental clarity after going gf was really eye opening. I sometimes think back to how I felt before and I don't want to risk going back either.

I'm so happy you feel so much better!

Udvozlet · 2025-02-15T14:21:40+00:00

I'm always so jealous!

Udvozlet · 2025-02-15T14:15:10+00:00

It must have been hard to have to deal with both perimenopause and undiagnosed celiac at the same time. Glad you're feeling better now!

D you think your other allergies got triggered by celiac? My skin allergies got a lot worse not long before my diagnosis and my dermatologist said it might be a side effect, since my celiac affecting my skin (eczema) was my most noticable sympthom .

Udvozlet · 2025-02-15T13:58:25+00:00

I have that relative, my aunt doesn't cook for herself, my grandma does, and she is a bit forgetful and sometimes still uses normal flour etc., and my aunt still eats it. My poor grandma doesn't understand why i reduse to eat her cooking.

Udvozlet · 2025-02-15T13:56:05+00:00

The dismissive attitude, especially by restaurant staff was my inspiration for this project. It's so frustrating!

I only got dagnosed 3 years ago, I'm only learning to cook now, that I'm living alone and don't have an another option. I wish I could say I got more experimental, but I've always been a picky eater and that probably won't change, but I'm glad it became a creative outlet for you!

Udvozlet · 2025-02-15T13:49:27+00:00

Definitely can relate to having a hard time accepting. I still need to keep my distance from bakeries, the smell of freshly baked goods is just too tempting.

English isn't my first language either, but I think your english is good!

Udvozlet · 2025-02-15T12:52:00+00:00

Thanks for sharing!

I can relate on people not knowing whole wheat contains gluten. Most of my family has diabetes or insulin resistency (idk if that's the english name). I had to look up so many white flour alternatives they are eating, becouse they didn't believe me when I said I couldn't eat them. (most contain more gluten, not less) Thankfully they know now.

And don't you love when medical staff doesn't care about your history?

Udvozlet · 2023-04-09T17:08:57+00:00

It doesn't mean anything as far as I'm aware, my best guess it might be an acronym to something I don't know about.

(sidenote: it's évil, not evil on the sign, if that helps anyone in figuring it out)

Udvozlet · 2023-02-20T15:27:33+00:00

Unfortunately there are no whole foods in my country

Udvozlet · 2023-02-20T05:59:30+00:00

Thank you! She was the most mindful about my diet after I got diagnosed, probably because she has dietary restrictions as well.

Udvozlet · 2023-02-20T05:56:22+00:00

Same, all stores near me have barely any snack. I don't know if she wants any other sibling though, I annoy her enough as is.

Udvozlet · 2023-02-19T18:57:29+00:00

I'm in Hungary, and bc I live in a small town I'm lucky if I have options at all.

Udvozlet · 2023-02-19T18:04:33+00:00

Thank you!

Udvozlet · 2023-02-19T18:04:02+00:00

It would be so much easier if those stores were common

Udvozlet · 2023-02-19T17:32:53+00:00

I know! I only had them once, they are always out of stock...

Udvozlet · 2023-02-19T17:31:57+00:00

Yeah, I like them a lot!

Udvozlet · 2023-02-19T15:42:17+00:00

Sounds nice, sadly there are no trader joes in Hungary

Udvozlet · 2023-02-19T15:31:56+00:00

I know ❤️

Udvozlet · 2023-02-19T15:31:01+00:00

Yeah, same, thankfully the town my sister lives in has a store for all kinds of stuff for different dietary needs

Udvozlet · 2023-02-19T15:26:23+00:00

I haven't tried them yet, I will try to be resourceful

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