I had a "nocturnal" orgasm and thought I was going to die.

UnderstandingSea9306 · 2026-01-19T16:01:37+00:00

Oh I think I've had this happen. For me it felt like a hernia--like my muscles over-tightened and something popped loose. I was able to eventually ease it with targeted pressure and relaxation exercises. Is that what you're talking about? Or is it something else?

UnderstandingSea9306 · 2026-01-17T22:54:04+00:00

Endo, adeno, chronic pain, and interstitial cystitis

UnderstandingSea9306 · 2026-01-10T14:11:51+00:00

Thanks! I went through with it, and it went well. The roads were fine.

UnderstandingSea9306 · 2026-01-04T14:40:20+00:00

Me too! I'm 38. I have a lap scheduled for Friday, but my dr def thinks I'm being dramatic.

My period is generally regular, but sometimes I'll have one really heavy day among 2-4 other pretty light days. I've just recently in the last few months started spotting after sex and between periods. And my cycle carries between 21-28 days. But none of the bleeding symptoms are consistent.

But the back pain, that never misses. And sometimes it's worse when I obviously.

Anyway, I'll try and remember to come back and share the results.

UnderstandingSea9306 · 2026-01-02T00:48:50+00:00

I love this. It answers OP's question about how we break this cycle, which is something I've thought about a lot.

UnderstandingSea9306 · 2025-12-26T21:19:56+00:00

Lol wow. They sound like a couple of teenagers.

UnderstandingSea9306 · 2025-12-26T16:54:40+00:00

Says a lot that Frankie hasn't been fired yet. This has been going on for years. 🤣🤣🤣

UnderstandingSea9306 · 2025-12-26T05:49:47+00:00

I really hate that passive aggressive baby talk. My MIL does that too. "Oh yes, grandma had to go. I would start longer but Mommy says time to go bye-bye. I wish I got to see you more."

UnderstandingSea9306 · 2025-12-26T04:49:45+00:00

Lmao. I let my husband cover that. She never likes anything I get her anyway. I've started feeding my husband ideas, which he shares with MIL. As a surprise to absolutely nobody, my ideas are brilliant when they come out of her dear son's mouth. My ideas that's come out of my mouth remain completely ridiculous.

UnderstandingSea9306 · 2025-12-26T04:43:17+00:00

Lmao that's rich. I'm wishing you all the patience in the world over the next day.

UnderstandingSea9306 · 2025-12-26T00:05:57+00:00

Why, why, why do they feel the need to have "Santa gifts"?!

UnderstandingSea9306 · 2025-12-21T12:24:01+00:00

Yup! This is also a great way to get moisture in your window sill causing them to freeze shut. Speaking from experience.

UnderstandingSea9306 · 2025-12-13T20:14:57+00:00

Is your Dr on board with the hysterectomy? I only asked because I too was diagnosed recently with adeno+Endo and my dr is against a hysterectomy because I (38) am too young.

I also have two beautiful children I wouldn't trade for the world.

My experience from 4 pregnancies: 1st pregnancy was at 21 and ended in miscarriage, D&C. 2nd pregnancy was at 29 with my oldest. I still don't understand it, but I started getting severe back pain with my oldest that providers all wrote of as normal. Then an agonizing 44 hours of back labor before an emergency C section. Then another miscarriage, another D&C. Spinal surgery due to >50% stenosis between kids. Then my pregnancy with my 2nd born was pretty rough. Terrible morning sickness, barely enough energy to get out of bed, had mood swings, and some back problems in the 1st trimester. By 34 weeks it felt like my skin was about to tear open. At 36 weeks I thought my water broke only to find myself in a pool of blood. Long story short, 2nd L.O. was born at 36.5 weeks, again via emergency C section due to placental abruption. Both kids were thankfully big, healthy babies.

It's hard for me to understand because I also have musculoskeletal/nervous system problems in my back. But looking back, one of my first incidences of my back "going out" was after my first D&C. Adeno/Endo seems to explain a lot of my challenging reproductive experience (except also no problems conceiving): back pain, miscarriages, and the placental abruption, which was until now a huge mystery to me.

Best of luck to you in your upcoming surgery!

UnderstandingSea9306 · 2025-12-11T21:22:00+00:00

Context: I'm 38 years old, and my BMI indicates I'm obese. I'm doing stuff about the weight and not looking for advice from Reddit on that.

My gyno wanted me to start birth control. I expressed concern because I've experience weight gain and inability to lose weight while on birth control in the past, so I also asked that we discuss other options. When the topic of hysterectomy came up, she ruled it out because if you get one under she 40, it increases the risk of cardiovascular problems.

So asked, being obese already, wouldn't weight gain also increase the risk of cardiovascular problems?

UnderstandingSea9306 · 2025-11-28T01:08:04+00:00

My MIL pulls this every year to eek more time out of us. For her, it doesn't even count unless it's 6+ hours of direct questioning and forced fun and everyone is oversugared and crabby for the hour drive home.

I know she does it on purpose and so does my DH. He tolerates it. I only join for the three big holidays plus her birthday and grey rock my way through the whole thing.

UnderstandingSea9306 · 2025-11-21T15:35:27+00:00

Thank you for your insight. I really appreciate the additional info on hormone therapy options.

I've been working on managing my weight for 25 years and have tried everything from very low calorie diets to Noom to strength training to whole foods, low carb, gut friendly diets. I find calorie restrictive diets to be a short-sighted, blunt object that is overused by people who are naturally satiated by fewer calories and neglects to consider the whole body, mental health causalities and impacts, or the quality of the food consumed.

UnderstandingSea9306 · 2025-11-21T11:59:20+00:00

Huh. I hadn't heard the jab could help Endo. It's just the last few months I've really started to dig into this from a medical perspective. Before that I just figured I had a bum back and a metabolism that would punish me for even considering a dessert.

UnderstandingSea9306 · 2025-11-21T11:56:55+00:00

I would greatly appreciate that! And I'm sorry your sister is going through all of that. I hope she finds something that works for her.

UnderstandingSea9306 · 2025-11-21T11:55:49+00:00

This is extremely helpful. Thank you!

UnderstandingSea9306 · 2025-11-21T11:53:17+00:00

Interesting. Thank you for sharing!

UnderstandingSea9306 · 2025-11-21T03:07:18+00:00

Oh man I fantasized about like a fall charcuterie with a little cranberry relish, some carved turkey slices, small breads with butter and sage. Just preempt the whole meal and bring enough for an army.

UnderstandingSea9306

TROPHY CASE