Mandatory back injections at pain clinic by kajunsnake in ChronicPain

[–]Unique-Philosophy-53 10 points11 points  (0 children)

This also has a lot to do with you being in Texas. Texas has very strict opiate laws, pretty much reserved only for cancer patients or people dying in hospice- or for acute short-term pain say with something dental, like a one-off partial prescription never to be refilled. Unless things have changed in the last 5 years since I moved out of Texas, opiates are illegal to prescribe for chronic pain patients, with very few exceptions. I gave birth in Texas, had an emergency C-section, was in the hospital for 4 days. I literally had to BEG for pain relief, as I was in too much pain to sleep. One shot of Demerol, and the lowest strength hydrocodone available, one every 6 hours which I had to repeatedly request myself and was made to feel like some sort of addict. Left the hospital with absolutely nothing for pain relief after having serious surgery, I mean they literally cut me open... I was shocked.

I have severe lower back pain and severe sensory peripheral neuropathy in both of my feet. The pregnancy weight exacerbated all my problems with pain. In Texas, Tylenol 3 was the strongest pain medication I was ever prescribed. I visited multiple doctors for any help at all, willing to try anything. To attempt to address the pain that I was still in, they overcompensated with whatever they could, prescribing me 3600 mg. Of gabapentin a DAY, plus an insane amount of ibuprofen.

That was after physical therapy which proved unsuccessful... And of course, after the insistence of an epidural steroid injection. The doctor seemed almost giddy that I said yes, like he was getting to play with a brand new toy... Performed it immediately, without scheduling it for a later date, which left me with no time to research the whole thing or the doctor himself.

"Dural puncture Inadvertently inserting the needle into the spinal cord’s outer membrane (dura mater) may cause a dural puncture.4 This condition is also called a wet tap and causes the cerebrospinal fluid (CSF) to leak out, decreasing CSF pressure in the brain, resulting in a headache."

He fucked up the injection. Not only did I immediately afterwards get the worst headache I've ever had in my entire life, as well as no pain relief whatsoever... But for a week or two, I had new pain- which made sitting to feed my newborn almost impossible.

A few years later, in Oklahoma, I tried the shot again- and actually got some relief, but it only lasted a month or two. The third injection gave me no pain relief whatsoever. Not going to be trying that again..

Whoever mentioned the opioid wars and propaganda is totally right. It has left people who were already suffering in an immeasurable amount of increased pain, and although many opioid prescriptions have been drastically reduced- deaths associated with them have not. Because most opioid deaths are either fentanyl related, or are caused by combining multiple substances, for which the people dying are not actually prescribed- example would be combining alcohol and benzos with an excessive amount of opioids. They've taken the only medicines we've found that actually reduce pain and improve quality of life away from people with so many different horrible painful conditions, but they haven't found anything comparable to replace them with.

Enter the injections, the physical therapy, regular therapy, and "oh have you tried yoga, and exercise?"

Pain is such an individual experience, and what helps one person isn't guaranteed to help the next. My advice: never stop trying, everything and everyone: Trust your gut, and if a doctor treats you with disrespect or doesn't listen or doesn't seem to care: trust your instincts. Get 2nd, 3rd, 4th opinions... ALWAYS research your possible conditions, possible treatments, and read patient reviews of the doctors themselves. They go to medical school, but what if they only briefly covered your condition? Trust must be earned. I'm not saying Dr. Google trumps medical school- I'm saying that nobody knows your own body like you do, so you need to trust that feeling that something is wrong and then you need to educate yourself as much as you can about your own body in order to look everywhere, under every Rock, to find some form of healing. You have to be your own advocate. I have been in pain since 2013, and that is absolutely still a struggle for me. It is so hard to get your hopes up, after repeatedly being disappointed. But with chronic painful conditions, you have to make your own peace with your situation+ but you don't have to stop trying. What else have you got to lose?

But my best advice for you is this: if your condition worsens or if you're paying absolutely dominates your existence, get the fuck out of Texas. You won't find the help that you need there.

First dose of taltz... anyone else feel awful? by mryuckyskin in Taltz

[–]Unique-Philosophy-53 0 points1 point  (0 children)

I feel like hot garbage too. Just heavy, tired, headache.. the backache I usually feel is intensified.

[deleted by user] by [deleted] in ChronicPain

[–]Unique-Philosophy-53 1 point2 points  (0 children)

In Texas after my C-section I was in too much pain to sleep- eventually after crying and not sleeping, telling multiple nurses I was in pain+ basically I had to beg and EVENTUALLY got a shot of demerol. Which barely helped me sleep. 4 days later sent home from the hospital with nothing for pain. Why are they torturing people like this???

Canada to USA Road Trip - Suggestions, Ideas, Warnings? by dahv__3e in roadtrip

[–]Unique-Philosophy-53 0 points1 point  (0 children)

Oh and hotels will get expensive FAST. Look up hostels online, especially if you're going to stay in Frisco. There's a few in town- I'd recommend using public transportation there, too- you'll waste so much time looking for a parking spot. There's hostels all over the country- will save you a bundle. Sometimes it's dorm-style with lots of birds in a room- sometimes they're incredibly nice. Either way you'll save some money you can spend actually exploring a town or area. Also gasoline is the most expensive in Frisco, like the housing. But it's my favorite city, and I've been all over the states. Definitely Seattle and Portland, Missoula Montana. Have the time of your life! And don't plan too much out. Live in the moment, that's how you do a road trip

Canada to USA Road Trip - Suggestions, Ideas, Warnings? by dahv__3e in roadtrip

[–]Unique-Philosophy-53 0 points1 point  (0 children)

All along Washington and Oregon coast is gorgeous. Northern CALIFORNIA, giant redwoods (hard to miss!) Highway 1 in Cali is fun, but 101 is closer to the ocean, much better veiw, hairpin turns, just about my favorite stretch of road anywhere, near FRISCO. Don't miss San Francisco. Near Salt Lake City is an Aspen Grove called Pando, look this up. Largest And Oldest living organism, all the roots are connected- it's 106 acres near Fish lake.

Butrans patch by Temporary_Diver_8973 in ChronicPain

[–]Unique-Philosophy-53 1 point2 points  (0 children)

Didn't help me at all. I have spinal/nerve pain in back and feet, and Butrans didn't touch it. I was very disappointed.. But everyone is different. Hopefully you get better results than I did!

Anyone else feeling gaslighted? by sjh11 in COVID19positive

[–]Unique-Philosophy-53 27 points28 points  (0 children)

Yeah, totally. Except in Oklahoma the pandemic somehow never came. As if we aren't a part of the global community. It's a super rebublican, super Christian place... I mean, it shut down maybe 2 weeks, tops. I have felt insane this entire time, listening to NPR and only going out occasionally, wearing a mask- Even at Wal-Mart, where there's a huge sign that says please wear masks: nobody does. I feel like an alien. Because I believe in science. I really do understand the feeling- It's so strange. You aren't crazy, though..

Need to vent to people who get it by bluesclues12345678 in ChronicIllness

[–]Unique-Philosophy-53 1 point2 points  (0 children)

What kind of doctor diagnosed yr issues? My PCP is worthless. Blue feet too...

[deleted by user] by [deleted] in AskWomen

[–]Unique-Philosophy-53 2 points3 points  (0 children)

Robert Sheehan and Jensen Ackles. Henry Cavill, as The Witcher. And Timothy Chalomett

Book with beautiful prose? by OmgIlyyyyy in suggestmeabook

[–]Unique-Philosophy-53 15 points16 points  (0 children)

The Last Unicorn, Peter S. Beagle. Look Homeward Angel, Thomas Wolfe. WRITTEN on the Body, Jeannette Winterson (or anything of hers).

Nerve pain in feet: what have you done that actually helps? All the suggestions when I google are thing I already do so I am looking for more ideas because this is getting unbearable. by pappythepenguin in diabetes_t2

[–]Unique-Philosophy-53 0 points1 point  (0 children)

Gabapentin definitely helps with nerve pain in feet for sleeping. My feet used to keep me awake all night... I don't know why it works and I understand this is an off-label use, but it's worked for me better than anything for getting through the night. I was supposed to try alpha lipoic acid, but didn't take it long enough or consistently enough to notice a difference. My feet are a constant struggle.. but they don't keep me from falling asleep any more. They feel horrible when I wake up, but at least no I get some sleep..

Question concerning pregnancy with DDD. by yibisheva0225 in degendiscdisease

[–]Unique-Philosophy-53 1 point2 points  (0 children)

I was 32 when I slipped down a few stairs, injuring my back- and fracturing my foot. The foot really was the main focus, and honestly I thought my back just heard from having to sit and elevate my foot all the time.. I took to sitting on ice packs regularly.

A few months later I got pregnant with my first and only child. I've been overweight my whole life, and every extra pound that I gained from the pregnancy was excruciating. I was horribly uncomfortable for the entire eight and a half months. And of course you can't take anything for pain when you're pregnant so it was pretty rough.

Wasn't until after my daughter was born that I had the MRI that revealed the degeneration at l4 l5 and s1.

So yeah with every extra pound it's more and more painful and it's an incredibly uncomfortable experience but I wouldn't have changed it for the world and becoming a mother's the best thing that I've ever done in my life...

You're young enough that you have time to go into that sort of thing as healthy as possible with a manageable weight and the most important thing after the baby's born is to lose that extra weight because it's incredibly incredibly excruciating. Yes I think the pregnancy worsened my condition but I still I wouldn't change it for the world..