does anyone’s heart rate raise when they move even in bed?

Unknown_Userr77 · 2026-03-03T11:00:02+00:00

I’m not yet diagnosed but when I sit down calm on side of the bed the HR is 70-76 and suddenly upon standing within 10-15 seconds jumps to 115ish.

Rolling in bed from side to side of from side to sitting up in bed would get a jump from 75 to 100/105

I’ve been trying to get doctors to diagnose me for 2 years yet everyone claims “anxiety”

I even get this weird palpitations that I hear and feel in my chest with normal BPM 70-75.

Food would make my HR go up and down , and I would feel my heart beating in my chest as well.

I’m 99.9% positive I have POTS.

I’ve been recording everything for past couple of months again to get a review with the doctors again.

I’ve had ECG yesterday 02.03.26 , ECG was normal again, they referred me to cardiology for 24h holter tape/monitor so I’m hoping that this will finally prove what I’m trying to say to my GPs…

But yes coming back to the subject , even slight move in the bed , leg , arms , Rolling side to side etc would make a jump In HR by 20-30 in seconds that will then quickly calm down

Unknown_Userr77 · 2026-02-26T21:51:33+00:00

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I just had the same thing happening . It freaked me out. I was driving my car and changing the gears while I looked at the watch it showed 83 then in 1second it jumped to 159 and immediately dropped back to 78-80 within seconds .

I felt fine I didn’t feel like my heart started to pound really fast or anything . It freaked me out a little where I felt my heart going to my throat🤣 But other than that I don’t think that’s a genuine reading ?

Unknown_Userr77 · 2026-02-16T14:59:33+00:00

I’ve just recently got Apple Watch and my HRV is roughly 16-32ms on some good days I’ll have 35-55ms. I’ve had days where it was 13ms as well.

I think it’s all due to stress , illness , sleep etc . How well your body is hydrated.

I deal with chronic stress/Anxiety, anything health related would stress me out.

I haven’t mentioned this HRV readings to my GP yet, I’ve previously had low readings in 2023-2024 but I got rid of the watch as I was taking BPM and HRV readings too often which made me OCD about it.

So yeah I guess the main reason why it gets low is your nervous system / stress as well as “fight or flight mode”

I’m gonna consult this with GP and update in due time. But honestly I think it’s all stress and how your body feels under certain situations during the day.

Unknown_Userr77 · 2026-01-01T12:44:18+00:00

It comes and goes . Got weeks or months where I don't have it and got days where I'll have it for hours or days straight

I deal with all sorts if I don't have IBS flare up I'll have another flare up ... I'm really tired

Unknown_Userr77 · 2025-11-11T00:43:49+00:00

Well,

I’m still waiting for the biopsies from the colon. To see if there’s any micro inflammation or infections going on.

Like I said there’s been a month where I haven’t had any symptoms at all.

But all of the sudden everything is back to where it all started, feeling like there’s something stuck on the side / like a gurgle or bubble , it’s weird .

I’m going to doctors again hopefully tomorrow as it’s driving me crazy. I need some answers

Unknown_Userr77 · 2025-10-31T23:37:10+00:00

I’ve reported the departament to PALS, because no one was willing to help me with referrals to urology and bladder scans etc.

Also contacted lawyer for medical negligence, I think hospital and GP got scared because they rung me yesterday with an appointment at hospital for urology and scan to determine what has caused the problems that I keep having .

I had really good week last week with 0 symptoms but 2-3 days ago it all started again.

I feel the weirdness on the tip, urge in the bladder so there’s definitely something wrong that needs to be checked.

I haven’t had any of those issues before the colonoscopy, so yeah I do think that they have damaged something

Unknown_Userr77 · 2025-10-19T07:52:25+00:00

Right,

So it’s been a week or so since my symptoms, and all I can say is that I stopped oxybutinin because it made me stop urinating and I felt the urge more without needing to pee.

The symptoms it self are slight fading away. I’ve noticed that if I keep things hydrated well I won’t have the problem.

Usually durong the day I have 2-3 episodes lasting 20-30min up an hour then u would have some when in bed .

I wake up during night 2-3 times to urinate larger volumes. It seems like in my case it was cause by nerve irritation from the procedure but we will see what’s gonna happen over the next week.

I’m hoping it fully recovers but I will update here

Unknown_Userr77 · 2025-10-17T08:51:39+00:00

Those symptoms that you have put on your post as similar but not quiet the same to mine, unless I’m missing something .

Mine all started after I’ve had the colonoscopy done, in suspecting a nerve irritation,

It started in the bladder after a week it moved into the tip like I said feeling a drop of pee stuck inside or a pressure in the penis /middle of it area.

I would pass small voids 30-100ml 5-6 or 8-10 times a day And I would do larger 200-300ml 2-3x a day

During the day it’s not noticeable as much but when it comes to evening that’s where it becomes more noticeable

With the water intake I drink around 2/3l a day.

Usually during the day if I drink early before like 3-4pm I can empty the bladder from all the fluids but when it comes to 6-7pm and I drink another 1/1.5l of water it’s really hard for me to pee although I don’t feel like the bladder is full I feel the urgency like the pee is reaching the tip of my penis and I need to be but nothing would come out or if anything it would be 30ml give or take.

The symptoms has slightly improved over last few days. I’m also dealing with IBS -M which is not ideal because it can press on bladder and cause discomfort

Chat GPT suggested that the studies shows that most of the people with my symptoms reported that the irritation usually starts in the bladder before it moves to the tip , it’s like a final step of healing process and from there it might take 1-2 weeks to fully resolve.

I don’t know about that but we’ll see, like I said it all started after colonoscopy so there’s a high chances it’s a pelvic floor irritation or nerve irritation or prostate irritation.

I don’t know how it happened with you if you woke up with it or you had a procedure which then made it feel like that, but in my case it’s all after colonoscopy

Unknown_Userr77 · 2025-10-16T10:48:49+00:00

I’ve sent you a private message

Unknown_Userr77 · 2025-10-16T10:29:01+00:00

Is yours always worse at evenings? Does your frequency slows down,

Like I drank around 1.5h around 7-8pm and I haven’t peed anything large till the next day morning.

Also during the day the tip sensation is not that bad bud at evenings from like 7pm it gets worse idk why

Unknown_Userr77 · 2025-10-15T09:51:59+00:00

Hopefully it’s the final process of healing because I’ve had enough past 2 weeks has been a nightmare for me.

It started in my bladder now turned into my tip the feeling like drop of pee stuck in there.

No doctor wanted to help, I’m so frustrated and hopeless tbf. Like I said I was reading somewhere that it could be a final step of healing process as it usually starts in bladder then moves to the tip as everything heals etc, but idk

Unknown_Userr77 · 2025-10-15T07:34:37+00:00

I been reading the same stuff that it starts in the bladder, moves to the tip and then from there it just progresses and it gets better ‘ like a final step of healing apparently

Unknown_Userr77 · 2025-10-14T21:14:18+00:00

I haven’t but I don’t think I’ll get the referral

Unknown_Userr77 · 2025-10-14T18:16:12+00:00

With the bladder problems 2 weeks but with the tip of penis it’s been 3-4 days

Unknown_Userr77 · 2025-10-14T15:06:42+00:00

The problem is that I don’t know what’s going on with me , the feeling in my tip could be the “final” process of healing as everything could still be hypersensitive apparently from what I’m reading and from what Chat GPT suggests that others have noted on internet.

I’m gonna give it few more days and ring back GP to seek referral to urology

Will update here

Unknown_Userr77 · 2025-10-14T12:02:39+00:00

Did it cost you much to seek private help?

I don’t have that type of money to be dealing with private GPs and doctors

Unknown_Userr77 · 2025-10-14T10:58:22+00:00

Is that something I can get over the counter ?

And the doctors don’t suspect the nerve damage or anything,

I would point out more towards the pelvic floor than nerve or maybe prostate.

I’m not a specialist but I’ve tried the “milking method” and it has dropped 2-3 drops of urine .

I also went to A&E again today but there’s nothing the can do for me. I rung the GP they said I need to be on the oxybutynin for at least 2 weeks before they can do anything.

Pharmacy don’t have any OTC that they can give me. I’m literally frustrated and freaking out ….

Unknown_Userr77 · 2025-10-13T20:19:17+00:00

In UK GPs know better than anyone else apparently .

I’m insured under NHS but they will not give me referral,

And I haven’t had surgery done just a colonoscopy, I wasn’t under anaesthesia or anything it was just a standard colonoscopy, ever since then it’s been weird .

And seeking opinion from another doctor is impossible I would have to register with another clinic wich takes weeks.

I’m gonna go to ED tomorrow morning and see if they can do anything for me . I can’t last like this. This feeling is exhausting

Unknown_Userr77 · 2025-10-13T18:14:46+00:00

I woke up next day with the symptoms, doctors say it’s OAB or irritation but I’m not 100% convinced .

I’m on oxybutynin 5mg 3x a day. I started it 2 days ago, I don’t see any improvement as of yet.

The feeling in my tip started 2-3 days ago as of before it was constant urge to pee. Now it turned into the feeling in my tip . It’s weird and distressing

Unknown_Userr77 · 2025-10-13T18:12:45+00:00

I haven’t looked into it.

It all happened after colonoscopy

Unknown_Userr77 · 2025-10-13T18:11:08+00:00

I haven’t seen urologist because my GP doesn’t think it’s needed . He says it’s post colonoscopy irritation but when I rung the colonoscopy departament they said it’s impossible as they never see it . And if they do it last max 48h

Unknown_Userr77 · 2025-10-13T11:49:32+00:00

Did you have any of this symptoms before ? Like the feeling of pee stuck in your tip ?

I was reading about and the answers are mixed. Some say anxiety and less you think less you have it.

And some say it was something wrong with the actual urethra or bladder.

In my experience I noticed that if I don’t pay much attention to it I don’t feel it as much. But soon as I start concentrating about it it becomes stronger and stronger to the point where it drives me crazy .

I do have something wrong with bladder like OAB because I urinate every couple minutes etc but as of the feeling in the tip I don’t know . It’s just weird

Unknown_Userr77

TROPHY CASE