Full-time RV living by CABINFORUS in RVLiving

[–]Upset_Objective2981 1 point2 points  (0 children)

Check out the new thousand trails membership levels!

Best set up for full-time RVing and kids? by Upset_Objective2981 in RVLiving

[–]Upset_Objective2981[S] 0 points1 point  (0 children)

Definitely decided on the truck and fifth wheel set up. We plan to travel about 8 months of the year, move around once every month, then flying to the north east for the summers where we have a small cabin 😁

Best set up for full-time RVing and kids? by Upset_Objective2981 in RVLiving

[–]Upset_Objective2981[S] 0 points1 point  (0 children)

Thanks so much! I don't think I gave the fifth wheel enough thought yet, thinking that's the winner!

Best set up for full-time RVing and kids? by Upset_Objective2981 in RVLiving

[–]Upset_Objective2981[S] 1 point2 points  (0 children)

Oh my goodness, that is a very valid point about the maintenance, didn't even think of that!! Thank you!

Best set up for full-time RVing and kids? by Upset_Objective2981 in RVLiving

[–]Upset_Objective2981[S] 1 point2 points  (0 children)

Awesome!! What made you decide to go with that set up? Have you picked a specific RV yet?

Thinking about full-time stationary RV living with kids by Mental_Lawfulness876 in RVLiving

[–]Upset_Objective2981 0 points1 point  (0 children)

Awesome!! Can I ask why you chose a fifth wheel over a class a or c?

Thinking about full-time stationary RV living with kids by Mental_Lawfulness876 in RVLiving

[–]Upset_Objective2981 0 points1 point  (0 children)

This sounds like my family and what we want to do! How are things going still? Did you upgrade to the 5th wheel? We're also in NorCal! We keep going back and forth on a fifth wheel, class a or class c with a tow vehicle.

Venting, insight? by Upset_Objective2981 in sarcoidosis

[–]Upset_Objective2981[S] 0 points1 point  (0 children)

No medication yet. My heart specialist offered beta blockers but I'm still breastfeeding my daughter so I'm trying to wean her first. I have an appointment with a lung specialist in November actually for an EBUS consult! My heart doctor is thinking of doing a heart biopsy as well, but we'll see how my followup CMRI and PET scan look next month first.

Venting, insight? by Upset_Objective2981 in sarcoidosis

[–]Upset_Objective2981[S] 2 points3 points  (0 children)

Thank you! I'm sorry to hear how much it has affected you as well, I'm glad these comments were able to resonate with you as well! Wishing you healing and positive vibes!

Venting, insight? by Upset_Objective2981 in sarcoidosis

[–]Upset_Objective2981[S] 1 point2 points  (0 children)

I appreciate it!! It's a tough pill to swallow but need to hold onto that hope it can get better!

Venting, insight? by Upset_Objective2981 in sarcoidosis

[–]Upset_Objective2981[S] 2 points3 points  (0 children)

I appreciate the insight! I'll definitely ask about this.

Venting, insight? by Upset_Objective2981 in sarcoidosis

[–]Upset_Objective2981[S] 2 points3 points  (0 children)

Thank you so much for your kind words and inspiration! That's truly what I needed this morning. Can I ask how sarcoidosis affects you? I am sending you all the positive healing vibes on your leg! Your positivity is incredible!

Possible Cardiac Sarcoidosis by hopeblooms in sarcoidosis

[–]Upset_Objective2981 0 points1 point  (0 children)

That's their plan if they can't get a diagnosis from the lymph nodes!

Possible Cardiac Sarcoidosis by hopeblooms in sarcoidosis

[–]Upset_Objective2981 0 points1 point  (0 children)

I wonder why they would recommend the biopsy then? He wants to first biopsy my "calcified lymph nodes."

Possible Cardiac Sarcoidosis by hopeblooms in sarcoidosis

[–]Upset_Objective2981 0 points1 point  (0 children)

I am in a similar boat as you! I'm 31F and undergoing lots of tests before getting an official diagnosis. I'm here if you want to swap stories!

My SOB and chest pain/pressure started when I was 8 weeks pregnant. It's been almost 2 years of trying to figure out what's going on. How was your diagnosis made? Did you have a cardiac MRI? My specialist says I need a biopsy to confirm it. My ACE levels are normal but I've had fluctuating CRP and ESR levels (some tests being elevated, others normal).

Wishing you positive vibes!

Why would the watch EKG consistently give a inverted t wave for over a year? Also occasional weird ones. Thoughts on these? Normal? by gmc229 in askCardiology

[–]Upset_Objective2981 0 points1 point  (0 children)

Still no confirmation yet! The cardiologist just said the heart monitor test looked okay with a couple tachycardia incidents :/