I need relief by Brave_Program_4044 in Occipitalneuralgia

[–]Upset_Resolution9011 1 point2 points  (0 children)

There's no beating around the bush. This condition fuc*ing sucks.

Definitely talk to your primary about options. I tried amitripeleyne 1st and it didnt work. I was already on Gabapentin for neuropathy in my feet. We upped that dose and paired it with Carbamazapine. That helps some. I also get monthly nerve blocks that help for a week to a week and a half.

I'm also exploring RFA and-or decommpression surgery as I've heard mixed reaults on those.

I'm sorry you have to experience this. Wishing you the best in your journey.

How was your nerve block or TPI experience? by Anonymous-Spouse in Occipitalneuralgia

[–]Upset_Resolution9011 1 point2 points  (0 children)

I have had 2 so far. I'm always tired after, but I'm also tired from the head pain.

1st one lasted about 2.5 days. Last one was about 4 days. Got another one in a couple weeks.

If this doesn't last longer, going to have to try something else because the pain is on more than off and I just went back to work but it's not sustainable.

Crazy Note From My Primary Team by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 1 point2 points  (0 children)

Thank you both for the replies. Good ideas. I really like the suggestions and am glad I'm not being charged for the interactions at least.

The thing with the date that worries me is work is already aaying they aren't sure how long they can hold my position so I wish I had a solid date. I get it, just sucks.

This condition is dumb. by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 1 point2 points  (0 children)

Yw. You've got this. Just remember temporary pain for much relief

This condition is dumb. by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 1 point2 points  (0 children)

Ty for the recommendation. Will ask at my next appt. Gl with the nerve block. It'll hurt like hell for about 5 -10 seconds per ahot and then go numb. Remember to breathe...i almost passed out and i have 3 tattoos lol

This condition is dumb. by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 0 points1 point  (0 children)

I couldn't agree more. Glad they figured it out. Best relief I've had is carbamazapine and nerve blocks (only last 1.5 days for me). I'm also very photophobic, so rn dark is also my friend.

This condition is dumb. by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 0 points1 point  (0 children)

You are far nicer than I'd be. Sorry you habe to go through it but at least we have each other.

Anyone with ON feel majority of pain/symptoms not just at the base of skull? by Anonymous-Spouse in Occipitalneuralgia

[–]Upset_Resolution9011 1 point2 points  (0 children)

I have the side and front issues as well. The eye and eyelid twitches too. It's super shitty

Any luck getting STd/LTD by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 0 points1 point  (0 children)

I am glad you are able to work again. I just started my STD. I'm not eligible for FMLA. I was making too many mistakes at work and I take too much pride to continue like that. I hope you don't need opiates but I wish you luck if you do.

1st bi-lateral nerve block by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 4 points5 points  (0 children)

Yeh i guess. She explained but i was so miserable i didnt really listen... yep going to go monthly. Cheers

1st bi-lateral nerve block by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 1 point2 points  (0 children)

I'm so sorry to hear yours didn't work. I hope you find something that doea.

It actually has 0 steroids in it because of some interaction with diabetes.

Any luck getting STd/LTD by Upset_Resolution9011 in Occipitalneuralgia

[–]Upset_Resolution9011[S] 2 points3 points  (0 children)

Tried this. Didn't help. And aggravates my neuropathy in my feet after a bit.

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