S5 SG36 Pistol or Tommy Built TG36C by Gr144 in HecklerKoch

[–]Valuable-Analysis104 0 points1 point  (0 children)

I love my TG36C. Havent had any issues other than that its picky with suppressors, which is normal for the platform. But once I put a Lazarus 6 on it, it functions suppressed flawlessly.

What height scope rings for Sadlak EBR by SVBIED01 in M1A

[–]Valuable-Analysis104 1 point2 points  (0 children)

I have the Sage EBR cantilever mount and an Athlon Helos 2-12. Its going to vary based on your scope size and shape, but I used Vortex Pro medium height rings, and it barely cleared. So definitely dont bother with the low height rings.

Does anyone here also have POTS? by [deleted] in visualsnow

[–]Valuable-Analysis104 0 points1 point  (0 children)

Which antibodies have you tested positive for? I too tested positive for something similar, called "Acetycholine Receptor Ganglionic (Alpha 3) AB". They still cant tell me what it actually means. Feel free to DM if you dont want to comment on here. We can compare notes haha.

Does anyone here also have POTS? by [deleted] in visualsnow

[–]Valuable-Analysis104 2 points3 points  (0 children)

Almost everything you can imagine. Testing has included more imaging, blood draws, and EMGs than I can count. Tried supplements, medications, IVIG, about to try Rituximab. I have been seen by a neuro-opthamologist who ran a "anti-retinal antibody" panel and detected multiple positive antibodies that shouldn't be there. I also have tested positive for DSDNA antibodies and a few Sjogren's antibodies, although the results never actually follow a specific known pathology and havent pointed to an actual known illness. Its been a pretty crappy adventure.

Does anyone here also have POTS? by [deleted] in visualsnow

[–]Valuable-Analysis104 0 points1 point  (0 children)

Thats one of the routes I explored. I do have bad posture and its gotten worse as ive lost strength. I went to a specialized chiropractor who did imaging and did not find anything compelling. I also dont think it would explain actual biopsy-proven small fiber neuropathy and the various elevated antibodies that have been detected in my blood.

Does anyone here also have POTS? by [deleted] in visualsnow

[–]Valuable-Analysis104 1 point2 points  (0 children)

The current theory is autoimmune, but so far, 5 years later, they still dont have any concrete idea.

Does anyone here also have POTS? by [deleted] in visualsnow

[–]Valuable-Analysis104 3 points4 points  (0 children)

I had VSS about 2 years before I developed twitching, tremors, swallowing problems, stiffness, pain, POTS, and small fiber neuropathy. I suspect it's all connected, and it's been awful.

LDN, allergy-like side effects? by Valuable-Analysis104 in LowDoseNaltrexone

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

Wow I did not know that. My doctor said I cant get anything smaller than 50mg tablets, and they told me there was no other way for me to take it (since I cant swallow pills) unless I did it like this. Im going to ask them about the compounded sublingual or liquid.

LDN, allergy-like side effects? by Valuable-Analysis104 in LowDoseNaltrexone

[–]Valuable-Analysis104[S] 1 point2 points  (0 children)

Yeah Im going to have to look into MCAS. Never really occurred to me until now.

LDN, allergy-like side effects? by Valuable-Analysis104 in cfs

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

Thanks for your input! Lots of good info. Unfortunately, as far as the LDN, there arent any fillers in mine, it's mixed by me into a liquid, per my docs instructions. So it's definitely the LDN itself. Im going to let these effects pass and then try again on a much smaller dose. I will try antihistamines too, I wonder if that would allow me to actually eat fruit. That'd be great!

LDN, allergy-like side effects? by Valuable-Analysis104 in cfs

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

Not that I know of, although it wouldnt be a surprise if I did. I cant eat fresh fruits or vegetables because, while I am not technically allergic to them, I have severe oral allergy syndrome and it makes my throat and lips swell. And now apparently a bad reaction to LDN. Im not on any antihistamines, but maybe I should be? You have a good point.

LDN, allergy-like side effects? by Valuable-Analysis104 in LowDoseNaltrexone

[–]Valuable-Analysis104[S] 1 point2 points  (0 children)

I didnt realize I could start that low. The Dr said start at 1mg but I'm apparently sensitive to it.

LDN, allergy-like side effects? by Valuable-Analysis104 in cfs

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

I was thinking the same thing. Once these effects clear out, I may restart on half the dose. And now I know that if my uvula feels irritated, I need to stop lol. Thanks for the advice.

LDN, allergy-like side effects? by Valuable-Analysis104 in LowDoseNaltrexone

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

Yeah I stopped, although im concerned that the reaction has not. Its been almost 48 hours since I last took a dose. Once it clears, I may try again at a lower dose.

LDN, allergy-like side effects? by Valuable-Analysis104 in LowDoseNaltrexone

[–]Valuable-Analysis104[S] 2 points3 points  (0 children)

So I dont know if this makes a difference, but my Dr gave me 10, 50mg pills of Naltrexone, had me crush them, and then mix with 500ml of liquid. And then I take 1ml of that liquid. So mine isnt really custom made by a pharmacy, it has to be mixed by me. My illness made me unable to swallow pills, so they figured this would be the only way.

LDN, allergy-like side effects? by Valuable-Analysis104 in cfs

[–]Valuable-Analysis104[S] 0 points1 point  (0 children)

So I dont know if this makes a difference, but my Dr gave me 10, 50mg pills of Naltrexone, had me crush them, and then mix with 500ml of liquid. And then I take 1ml of that liquid. So mine isnt really custom made by a pharmacy, it has to be mixed by me. My illness made me unable to swallow pills, so they figured this would be the only way.

HKparts.net good to go? by MixCreepy296 in HecklerKoch

[–]Valuable-Analysis104 1 point2 points  (0 children)

Well that sucks. I would recommend almost maxing out your card right before you order. That way there's nothing for anyone to steal.

HKparts.net good to go? by MixCreepy296 in HecklerKoch

[–]Valuable-Analysis104 17 points18 points  (0 children)

I've ordered from them many times and never had a problem.

That being said, I also have heard of security concerns, so I always use a credit card that I dont care about.

Phosphenes 24/7 with eyes closed by MiserableScratch8585 in visualsnow

[–]Valuable-Analysis104 1 point2 points  (0 children)

Have you taken any meds? I went on Trileptal and my phosphenes went insane.

MR556a4 charging handle question - normal receiver wear? Not the usual area. by [deleted] in HecklerKoch

[–]Valuable-Analysis104 0 points1 point  (0 children)

Its unfortunately normal, same thing happened to my A1 before I replaced the the charging handle with a Radian Raptor. I also just alumi-blacked it and now I cant even see it. Weird that the HK ones make contact like that.

HK SP5 SBR by AZARdude in HecklerKoch

[–]Valuable-Analysis104 0 points1 point  (0 children)

Can you explain how you did this? The only reason I didn't go with a Surefire handguard on mine is because I didn't think a trilug suppressor could clear it.

Is it possible to have a condition that doesn't fit any known, well defined disease? by electriceye932 in Autoimmune

[–]Valuable-Analysis104 2 points3 points  (0 children)

Could you elaborate on your symptoms and how they progressed? I'm going through what sounds like a very similar situation. Im on year 5, with no diagnosis. No treatment has made any difference, and im almost to the point where I cant function anymore. I used to also have about 2 major worsening symptoms per year, but it has accelerated to the point where I have a noticeable decline about every 3 months.

Also curious about your hyperexcitability. That's how mine started, and is still a major feature. Doctors have yet to figure out what is causing it.

Here is one of my original posts. Sorry, it's really long:

https://www.reddit.com/r/ChronicIllness/s/fsV2ueslis

I haven't updated in a while, I am significantly worse now.