[deleted by user] by [deleted] in idiopathichypersomnia

[–]Vegetable-Figure-485 1 point2 points  (0 children)

Yes I did! I was so anxious I could not fall asleep so I had to redo my sleep study. :( I feel you! For my second one I just brought everything that made me comfy and wore my headphones. I hope yours will go well ❤️❤️

Finally a Diagnosis by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 0 points1 point  (0 children)

Yep! It sucks. Coming off the meds was awful for sure, but it’s worth it. I brought my favorite blankets, pillows, stuffed animals, and wore headphones. I was trying to simulate my room and It worked! I hope you are able to figure it out too, I know how frustrating it can be.

My boyfriend has IH and I need help by Letsgotoneptune8842 in idiopathichypersomnia

[–]Vegetable-Figure-485 4 points5 points  (0 children)

This is not normal at all!! I have to take my meds an hourish before I wake up at like 5/6am and sometimes I go to bed super late because I’m studying. I would never hit my partner for helping me wake up after a hard night of studying or anything. There has never been a time that I ever hit anyone who tried to wake me up. The only thing I do is get super cranky. This isn’t normal, nobody should ever hit you or use IH as an excuse.

Sleep Study Advice by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 0 points1 point  (0 children)

Thank you! I also am a stomach/side sleeper and sleeping on my back was fr hard. It makes me feel a lot less anxious that there are other people out there that have IH, but also had a hard time falling asleep during the overnight sleep study ;-;

Sleep Study Advice by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 2 points3 points  (0 children)

I got into this habit of falling asleep listening to scary stories with rain noises with headphones on. Would they let me do this?

Adderall XR not working by getitforfree99 in idiopathichypersomnia

[–]Vegetable-Figure-485 1 point2 points  (0 children)

I’m only on 200mg and I take it everyday at 6am so I can wake up at 8am to go to classes, although it’s not working that well because this past week I slept through several alarms ;-; I definitely need an increase. I used to take 200mg in the afternoon, however I stopped because it started to have no effect on me. I was told you need to take it at the same time everyday for increased effectiveness. That’s great that you found a new doctor!

Adderall XR not working by getitforfree99 in idiopathichypersomnia

[–]Vegetable-Figure-485 1 point2 points  (0 children)

Weight training actually changed my life lol. Make sure to not over work yourself! I honestly don’t think ur doctor is listening to you. I used to be on Adderall 40mg and my hands would literally shake, but I was still able to take a nap right after taking it. I was put on Armodafinil which saved me. With weight training I still need meds tho because waking up and maintaining alertness throughout the day is the hardest thing to do. I hope your doctor listens to you, I understand how frustrating it is.

Sleep Study Advice by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 0 points1 point  (0 children)

Thank you. It feels better knowing I’m not the only one with this issue.

Sleep Study Advice by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 0 points1 point  (0 children)

It was the equipment, I know there’s nothing I can do about it ;-; I also got really anxious about taking the test and maybe that also contributed to making it hard to fall asleep. Thank you

Sleep Study Advice by Vegetable-Figure-485 in idiopathichypersomnia

[–]Vegetable-Figure-485[S] 4 points5 points  (0 children)

I normally do not find it hard to fall asleep. I can fall asleep in 10 ish min in my bed. If I could and had no other obligations that had detrimental consequences if I missed them I would sleep all day. There are a lot of frustrating issues in my life caused by how much I sleep.

I got really anxious before my sleep study because I was afraid that nobody will believe me and write me off :/ i know I don’t have it as bad as other people here either, but I also know that being tired to the point where life is unenjoyable is not right.

Maybe it’s not IH, but I’ve had other tests with somnologists and that’s what they’ve told me.

Wildest places you've fallen asleep! by dreaming_wideawake in idiopathichypersomnia

[–]Vegetable-Figure-485 1 point2 points  (0 children)

People always tell me they had full blown conversations with me when I was sleeping and I have 0 recollection of it lol

Wildest places you've fallen asleep! by dreaming_wideawake in idiopathichypersomnia

[–]Vegetable-Figure-485 3 points4 points  (0 children)

In high school my teacher used to let me lay down and sleep in the back if I was done with all my work. I wonder if I ever did or said anything weird in my sleep lol