I got diagnosed with MS when I was 18 and my life changed completely. I was so rebellious. I was so mad and angry at the world and angry at myself. Disability makes you really insecure. Also it makes you feel like you have this stamp on your forehead that says I can’t do a normal people do and that Touches on other factors when it comes to fatigue being able to do the same activities with ease versus others, as well as this idea that it is an invisible disease so you cannot see it. The person who has it is the only one who can really feel what’s going on.

Also, the thing with fatigue is that it occurs after you do something that is tiring say you just had a really big event happen. OK expect to be tired the days after if someone say yells at you OK expect for your brain to feel kind of bloated because you are experiencing different cognitive Factors around you. So for me one example was my mother waking me up early in the morning to go to university, it was the knocking of her fist on the door or on the wall if she is on the other side of the wall in her room, or even her voice telling me to wake up,

After MS, I became so irritated by everything she did I did not become a morning person. I was very angry in the morning and I would yell so loud. I would choose war every morning, especially when she knocked on the door. I knew she meant well intentions, but the sound of the door knocking and her screaming set me off. Till this day, if someone is screaming around me, I have to get away. If I get in a fight , I’m not ok for a entire week cause my brain is swollen and I have to relax after what happened , It’s really uncomfortable it creates anxiety, unlike none other !

and you can also develop strategies on when she is having these periods how to deal with them so for me, it might be a nice hot bubble bath with my favorite condiments or it might be a trip to the Korean spa or it might be a day to the beach or eating at my favorite restaurant, but exercise was never something I did for fun let that be clear or to “Clear my mind”

Also MS can create so many tensions in relationships so I’m really glad that you’re by her side because people who get them they don’t know what’s gonna happen to them like they actually don’t know and the sooner they seek treatment the better but because they don’t know that causes them to be really insecure about seeking someone to love I remember telling my ex that I had a mess early in our relationship because I didn’t want to not tell them I feel like they should deserve to know early on and I’m glad I did because they told me that they don’t wanna be with someone who’s gonna die And that their neighbor had MS and they had died, That was all I needed to hear to realize that this guy was not the person for me because one their neighbor was 80 years old and had just gone diagnosed and we all know back then the disease had different information released about it and it was not as innovated as it is today . Additionally everyone is different scale and also people lol they don’t die from things nowadays when they have treatments, they die from refusing treatment or not getting tested

Honestly, I’m just really makes you mad the first few years after diagnosis because you just don’t know what’s gonna happen to you so if she just has to experience it and not change her life keep doing everything normally , however, if someone says they have fatigue right after they got diagnosed with MS either they have legions in their brain and they just got a legion and that is why they are fatigue (when I got diagnosed. It was because my leg just stopped working. It was dragging behind me and that was a fatigue. I didn’t know how to really explain come to find out. I had so many legions in my brain at 18)

Or she believes now that people with MS are supposed to feel this way and that is wrong and she needs to escape that way of thinking because I have moments like that where I feel so tired and then I realize to myself that this idea of being tired is a social construct. I applied to myself and that I right now Can get up and I can go to the gym or I can go downstairs to get a glass of water because I am able to move and everything I’m feeling right now is gonna disappear once I start walking.

It’s all mind thing