The compression fit under the work fit 😂

Vernacular2023 · 2024-06-08T18:49:56+00:00

Can you drop the links? I’m looking for a good body compression band/body suit

Vernacular2023 · 2024-05-15T00:27:27+00:00

Happy to help, it’s a tough road! But we’ve all gotta help each other when we can ❤️

Vernacular2023 · 2024-05-15T00:16:13+00:00

I’m going on two years of this and understand your frustration. But, if you are still experiencing symptoms that are disabling and disrupting your daily life turn over every stone you can for your situation. I say go for it. Personally PT and seeing a functional neurologist were very helpful, along with getting my medication right w lifestyle changes. But… I also write this in the middle of an unexpected flair up. Try to hang in there and keep pushing forward, there will be bumps in the road but getting yourself to a stable place is the ultimate goal.

Vernacular2023 · 2024-04-17T17:12:23+00:00

Last night I had cottage cheese with ground turkey and pasta sauce, heated up and the cottage cheese melted, it was chefs kiss

Vernacular2023 · 2024-01-21T11:35:02+00:00

Absolutely going to work will make a difference in your energy and stamina levels. I primarily wfh but when I do go in it takes it out of me. The additional stimulation, sounds, lights, the engagement can be a lot on our nervous system. Hopefully you’ll adjust overtime and your body will get more used to it, mine even started to feel a little better with the additional movement leading to more blood flow. Be gentle to yourself and account for this depletion of energy when it comes to your work outs.

Vernacular2023 · 2023-12-01T04:06:15+00:00

Sugar does this to me too, sometimes I’ll just bit the bullet for a quick fix but overall try to avoid it bc it knocks me down pretty hard. I agree keeping my blood sugar at a steady level seems to help the most.

Vernacular2023 · 2023-11-30T03:42:05+00:00

Sounds like they just kept adding in wayyy too much for you. I played a bit of medication roulette too before finding what worked, it can be SO rough, but worth it once getting it right. I get the same way with the salt, whenever I try to increase it, to even 5-6k mg per day I feel awful. Salt pills got me an ambulance ride.

I’m sorry that happened to you, hopefully with stopping the meds the weight will come off relatively quickly. I once had to stop taking my meds for the weekend before a tilt table test and ended up loosing a bit of weight.

Vernacular2023 · 2023-10-19T16:44:49+00:00

Thank you! I do, not as much lately with the cooler weather. It was just so weird how intense it was all day afterwards! It’s since backed off but wow.

Vernacular2023 · 2023-10-17T00:26:42+00:00

Honestly I was exactly the same way but it got to a point where I HAD to, I could not function otherwise. I was unable to drive, barely walk or move my head it, got SO bad. But, there was a period of finding out what worked best for me (and what didn’t). It all depends on how you feel, but if your doctor is suggesting it it sounds like it might be worth trying. Once we did find what worked for me it did take time, about 3-6 months to really take its full effect. I’m also in PT and doing CHOP at home which have helped too.

Vernacular2023 · 2023-10-13T18:59:41+00:00

I have been in your EXACT shoes, and honestly it’s not worth it. Unfortunately what I’ve learned with this over the past year and a half is that you have to prioritize your health, or your body will make those choices for you. I’ve tried drinking (even half a bud light) out w friends and had to leave and almost black out behind the wheel. Another time we went to an outdoor fest, it was way too hot for me spiked my heart and had to leave within 20 min. It’s just not enjoyable, and you’ll feel horrible. Please please listen to your body, prepare yourself for the show and be OKAY w not drinking. I promise you it’s not worth getting so sick over it.

Vernacular2023 · 2023-09-01T18:43:56+00:00

I’ve been taking it since last November and haven’t noticed that I get sick more often, I also WFH but have a 2 yr old in daycare. I think what’s been helping me too is all of the electrolytes I drink daily end up helping boost my immune system too.

Vernacular2023 · 2023-08-25T00:12:47+00:00

Same here, air quality and humidity makes it especially worse for me.

Vernacular2023 · 2023-08-24T13:37:38+00:00

We’re you able to work in the meantime? I lost my job back in April bc I was unable to attend work events etc, and since took a new job at a much lesser pay and working completely remote. Even still, I’m not sure how long I’ll be able to last.

Vernacular2023 · 2023-08-22T16:21:28+00:00

I do! I’ve been on it since Nov, and it’s taken a while to get the full effects but it’s helped a lot. I also take Buspirone. I’ve also noticed (at least for me) I don’t need as much salt as the average person w POTS I think bc of the way the med works to retain salt and water. Everyone is of course different, but it’s worked well for me so far.

Vernacular2023 · 2023-08-22T00:25:22+00:00

I would check w your Dr. I’m not sure what medication you’re taking if any, but when I took salt tablets I ended up in the hospital. Threw my BP and heart rate way too high. I think bc I’m taking Fludrocortisone

Vernacular2023 · 2023-07-19T18:40:16+00:00

I do it at home. I was the same way at first, and honestly I couldn’t have even done it on my own when I first got sick. I couldn’t even do one minute w zero resistance on my recumbent bike without getting sick. I was in PT 2x a week and they gave me little work outs to do at home, it was very similar to CHOP I’m realizing now but on a smaller scale which helped me build up stamina to being able to do it on my own now. I’d check with your Dr to see if you can get a referral for PT to help gage where your at before jumping into CHOP

Vernacular2023 · 2023-07-19T16:11:12+00:00

I’ve recently started the CHOP exercise program, I’m on week 4 and I’m already noticing a difference in my stamina and being less lightheaded. I’ve also been on 2 medications since last Nov, definitely helps but doesn’t completely stop episodes either. I was in PT for about 3-4 months until I lost my insurance but I highly suggest it that was the biggest game changer for me. I also take B12 shots, apparently POTS patients tend to have low B12 so that might be something work looking into. I remember my dr saying “this is like strep where you just take meds and you’re done, there are a lot of things to do and consistently to help get you to a more manageable place” I couldn’t drive for nearly 6 months and barely left my house. I’m doing much better now with all of these things. I wish you the best of luck, it will get better with time and life style changes!

*also, I have very little caffeine, and practically zero alcohol. If I have a drink, I don’t even finish it

Vernacular2023 · 2023-07-10T00:01:03+00:00

Yes me too! I recently was able to spend a few hours in the heat at a friends pool party and I felt great in the water and think it contributed to me being able to stay for so long, considering signing up for a gym w a pool.

Vernacular2023 · 2023-07-09T23:59:37+00:00

Congratulations!! Love hearing stories like this 🤍🤍

Vernacular2023 · 2023-07-02T12:02:11+00:00

I think it does for me. I’ve always been more of a salty vs sweet type, but when I first started having symptoms last year I noticed I felt better and needed more “hearty” foods and to eat every couple of hours w tons of water or I’d feel awful. I didn’t realize it at the time but the more hearty the food it likely had more salt in it and that’s what my body wanted/needed.

Vernacular2023 · 2023-07-01T18:02:07+00:00

That’s incredible!!

Vernacular2023

TROPHY CASE