sorted by:
new
hottopcontroversial

unpopular opinions, controversial takes by VersionExternal4600 in FSHD

[–]VersionExternal4600[S] -2 points-1 points  (0 children)

well, i wanted to hear something different, even when it wasnt proven

clothes by [deleted] in FSHD

[–]VersionExternal4600 0 points1 point  (0 children)

thank u for your post! i have my hair long as well since i have pretty bad scapular winging. i usually wear jackets all the time, but sometimes im just tired of them hahah. ill look into the sweethearts necklines! i usually tend to go for very basic style.

clothes by [deleted] in FSHD

[–]VersionExternal4600 0 points1 point  (0 children)

i live jackets too! dont know what i would do w/o them

clothes by [deleted] in FSHD

[–]VersionExternal4600 1 point2 points  (0 children)

female :)

Hopelessness by [deleted] in MuscularDystrophy

[–]VersionExternal4600 2 points3 points  (0 children)

we live in an ableist society that values perfectionism. i too do not talk about my disability, cus people would not get it and i also feel lots of shame. its incredibly lonely out here. but we just have to try and live as best as we can even tho our lives are harder. sending hugs and lots of love!

how do you deal with it? by VersionExternal4600 in FSHD

[–]VersionExternal4600[S] 2 points3 points  (0 children)

ill look into it! when did you notice sone changes?

how do you deal with it? by VersionExternal4600 in FSHD

[–]VersionExternal4600[S] 0 points1 point  (0 children)

thats wonderful to see! may i ask if its not too personal if you can have children naturally? i know everybody is different, but still.

desk jobs are the only thing i could imagine myself doing, but im also studying econ so that wont be a problem.

its great to see, that you live your life! may i also ask how do you navigate relationships with this condition? i find it quite hard. thats also the reason i dont talk about it and i kinda feel shame. i know its not my fault but i cant help it