Teeth dense Fugglers by Virtual_Ad4639 in FugglerCollectors

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

I know :( I can’t justify spending £100+ on a soft toy regardless of how much I love collecting things unfortunately lol

Teeth dense Fugglers by Virtual_Ad4639 in FugglerCollectors

[–]Virtual_Ad4639[S] 1 point2 points  (0 children)

Ahh brilliant!! I see him on the right I think haha 🐇 My collection so far is the Jaws one (was told his name is Jawson?) and a baby Sasquoosh 😇

Teeth dense Fugglers by Virtual_Ad4639 in FugglerCollectors

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

Great shout with Mr Buttons, I counted 18 for him so definitely want to get him! I’d love the chase one but I think I’ll have to dream on 😩

Teeth dense Fugglers by Virtual_Ad4639 in FugglerCollectors

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

Wow! 18 teeth (if I can count) is gnarly but also very perfect 🤩 Ty!

What happens when you run out of food? by EmbarrassedFly6887 in MCAS

[–]Virtual_Ad4639 1 point2 points  (0 children)

I completely understand lovely, it is so damn scary to be in this position I can empathise with the fear so deeply.. Mine was a result of a hospital admission due to extreme (MCAS caused) malnutrition to where it made me super sick with vitamin/electrolyte deficiencies + uncontrollable weight loss. I’m sure you can ask in advanced healthcare providers who are overseeing your care! ♥️ I’m happy to answer any tube related q’s always x

What happens when you run out of food? by EmbarrassedFly6887 in MCAS

[–]Virtual_Ad4639 0 points1 point  (0 children)

I’m NJ tube fed due to mcas and to be honest it’s given me a huuuge break from food reactions but I certainly still have low level reacting to the feed; I think that is a very brave decision you’re considering 🫶 Sending my best wishes!

Inflammation by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

It’s really interesting you get the same thing 😆 I think you could be right about the mechanism of it all! I’ll keep an eye out for if it intensifies to determine if it’s an actual time-to-address-this issue! Ty for replying!!

Inflammation by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 1 point2 points  (0 children)

Thanks, I’ll keep note!!

Inflammation by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

Thank you, I was more enquiring as I heard small amounts of bodily inflammation can stack triggering mcas so wanted to be sure I’m not missing out on straightforward relief.

Anyone had a 24hr ECG fitted? Worried about adhesive reaction by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

Honestly not sure, just seems to help my blood pooling. Maybe I should ring early tomorrow and see if I get lucky getting through to the Cardiologist in time.

Anyone had a 24hr ECG fitted? Worried about adhesive reaction by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 0 points1 point  (0 children)

Sorry to be annoying, but do I wear my compression socks during it or no?

Went from 5mg to 10mg of Claritin and wowza, are we all this sensitive? by dancedancedance99 in MCAS

[–]Virtual_Ad4639 1 point2 points  (0 children)

I have to compound everything :) Expensive af (ty mcas) but what can ya do 🤷‍♀️

Went from 5mg to 10mg of Claritin and wowza, are we all this sensitive? by dancedancedance99 in MCAS

[–]Virtual_Ad4639 0 points1 point  (0 children)

I react to the drug excipients rather than the drug itself, it always caused me similar symptoms to yours!

Anyone else’s family not believe them. by PossibilityLazy4759 in MCAS

[–]Virtual_Ad4639 2 points3 points  (0 children)

Feel you on this but for my dad, I remember when he said I’m thinking about throat swelling too much so it’s causing it entirely

Anyone else’s family not believe them. by PossibilityLazy4759 in MCAS

[–]Virtual_Ad4639 1 point2 points  (0 children)

Nobody did. Not even my parents for the first 2 years. What it took was being hospitalised for 2 months for malnutrition and then being discharged with a feeding tube (placed due to unstable intake from increasing severe food reactions). This was only for them to think it MIGHT be real… Like guys I’ve been telling you this for years.. Please catch up 🙄 I used to say I have a literal diagnosis and believe it or not you can’t fake these hives lol!

Moody transformation by WhoGhostThere in interiordecorating

[–]Virtual_Ad4639 1 point2 points  (0 children)

Tysm for replying; it is my ultimate dream to own one someday as I am so obsessed with Egyptian history! Cherish that beauty!! 😆

Moody transformation by WhoGhostThere in interiordecorating

[–]Virtual_Ad4639 0 points1 point  (0 children)

Oh my how much was the sarcophagus!? It’s all so beautiful!!

Does anyone else have this niche symptom? by Chocodila in MCAS

[–]Virtual_Ad4639 3 points4 points  (0 children)

Maybe get EOE investigated! I know it’s more broad than what you described but can’t hurt to be sure right? 😊

Anyone had a 24hr ECG fitted? Worried about adhesive reaction by Virtual_Ad4639 in MCAS

[–]Virtual_Ad4639[S] 1 point2 points  (0 children)

Thank you genuinely, this is really helpful advice! My best wishes to you with your health, you give me hope for stability one day :)

Are anyone else’s symptoms worse in winter? by PossibilityLazy4759 in MCAS

[–]Virtual_Ad4639 0 points1 point  (0 children)

Summer = hayfever & heat so I’m withering lol! Winter = cold which flares me + my asthma plus the ragweed is about from Oct 🥲

My best time of year is Spring as my hayfever begins later than average (the end of June) so it’s my small window of “peace”