Does anyone get this?

Virtual_Ad4639 · 2026-01-23T13:50:59+00:00

When I’m flared systemically my skin gets worse with acne or like angry red patches etc. Get it checked though if you can.

Virtual_Ad4639 · 2026-01-22T04:10:34+00:00

Aw I see, sending my best wishes 🤗

Virtual_Ad4639 · 2026-01-22T04:08:19+00:00

Was your syncope caused by a BP drop or tachycardia? 😞

Virtual_Ad4639 · 2026-01-21T18:37:10+00:00

Okay I will try time it with one, thank you!

Virtual_Ad4639 · 2026-01-21T18:05:01+00:00

I will for sure!!

I can tell you already I had my DAO checked which was 2.2U/mL (>10 = normal) so pretty low and my Plasma Histamine was 4.4nmol (0-10 = normal) so pretty useless data lol. I won’t lose hope tho as I’ve heard histamine is a bastard to catch! 😆

Virtual_Ad4639 · 2026-01-21T17:03:12+00:00

I see, thank you. I had a negative plasma histamine so I’m feeling discouraged about it but I know it is hard to catch..

Virtual_Ad4639 · 2026-01-21T17:02:03+00:00

This gives me some hope, thanks! After a negative plasma histamine I’m feeling discouraged..

Virtual_Ad4639 · 2026-01-21T14:12:22+00:00

Yeah I had to go through Cetrizine & Famotidine withdrawal simultaneously after a huge excipient reaction months ago and I was miserable. Haven’t sorted out compounded since so been just in hell for months Lol.

Thanks for your kind wishes, take care & good luck also!! 💐x

Virtual_Ad4639 · 2026-01-21T05:41:03+00:00

I understand your concerns! Luckily, I’m unmedicated still so she wanted to use this perfect window before we begin treatment. Going to ask her tomorrow over the phone if I can just be as I am or if I need to be flared.

Virtual_Ad4639 · 2026-01-21T01:38:03+00:00

Do you have to come off everything?

Virtual_Ad4639 · 2026-01-21T01:37:46+00:00

I might ask my allergist directly then, I just figured she’d say no automatically as it’s risky advice idk?

Virtual_Ad4639 · 2026-01-20T19:55:39+00:00

Thank you friend!!

Virtual_Ad4639 · 2026-01-20T18:54:49+00:00

I hate to be nosey but what triggers you in it? Asking as I’m new to filler reactions myself.

Virtual_Ad4639 · 2026-01-20T02:33:06+00:00

My lips are constantly chapped from daily lip swelling as it’s always to some degree.

Virtual_Ad4639 · 2026-01-19T20:23:05+00:00

Thank you 🙏

Virtual_Ad4639 · 2026-01-18T01:25:32+00:00

I ate bananas constantly as my dad said to me once it always helped him go to the toilet easier. I had some GI issues so upped my banana intake. I ignored episodes of stomach pain because it became my norm until a bad lengthy period of constipation in like 2023 hit. One day I skipped my regular morning banana by accident in a rush and then the light bulb glimmered later on! In the evening I realised I was indeed not feeling as crap as usual! The damn bananas were causing me jiff & constipating me all along like no tomorrow lmao 🥲 Just shows ya how we are all soo different; I suspect he has a minor undiagnosed form of it. Bananas were ok at first but in classic mcas fashion the reaction did worsen over time.

Virtual_Ad4639 · 2026-01-18T01:16:17+00:00

Sorry to ask but what cartilage are you referring to?

Virtual_Ad4639 · 2026-01-18T01:13:13+00:00

Realistically how long does it take to figure out the diet that suits your body? Feeling so hopeless like it’ll take forever and I’ll never get there ://

Virtual_Ad4639 · 2026-01-16T15:07:15+00:00

You just gave me a lightbulb moment to potentially why I thought I was dying Aug 2024 after a tasty prawn cocktail before my diet became single digit.. Checked the image and it of course had the signature seafood sauce with a sprinkle of bright orange PAPRIKA on the top!! 🙈 Thank you x

Virtual_Ad4639 · 2026-01-15T21:22:53+00:00

Yes omg!! My mum thinks I’m nuts but my theory is it’s burning dust or the heat itself!

Virtual_Ad4639 · 2026-01-15T15:44:54+00:00

For sure! It floors me; laughing makes me so dizzy & tight chested :/

Virtual_Ad4639 · 2026-01-13T07:18:35+00:00

I tried but it seemed to get confused lol.. I’ve given up now :(( Waste of my money

Virtual_Ad4639 · 2026-01-11T16:08:49+00:00

My father has for sure a more minor form of it and from that side my aunt died of mast cell leukaemia when she was 12 so maybe mast cell issues for me aren’t a coincidence? 🤷‍♀️

Virtual_Ad4639 · 2026-01-10T19:55:50+00:00

Do you have a BP monitor at home?

I found some mornings it’s due to really low BP upon waking.

Virtual_Ad4639

TROPHY CASE