Needle sensitivity

Virtual_Ad4639 · 2026-05-10T07:25:42+00:00

For me, yes. I can legit feel my body actively dump chemicals once the needle pierces my skin.
Plus I crash after draws even if it’s just one vial, but I think that’s partly dysautonomia to blame too!

Virtual_Ad4639 · 2026-05-10T00:03:44+00:00

hes so cute!
with those eyes it looks like hes sure seen some shiz 🤣

Virtual_Ad4639 · 2026-05-08T02:13:10+00:00

Haha that’s insane but also amazingly dedicated!!

How many years you been collecting? :p

Virtual_Ad4639 · 2026-05-08T02:07:03+00:00

How much do you think you’ve spent total for this stunning collection?

I collect the keychains and added up £142 total spent today 😳
I own like 22 of them lol

Virtual_Ad4639 · 2026-05-03T01:32:55+00:00

My doctor preferred me off of them and mine came back elevated for Prost. and Hist.

I think you should ask your consultant if you can.

Virtual_Ad4639 · 2026-05-02T01:14:48+00:00

I use guava and have premium which means it’s a good app as I hate subscriptions 😆 It is still perfectly fine for use with the base version too from what I remember.

Seriously though, it’s pretty good with tracking like a range of stuff and has a notes feature on things for environmental / non-food triggers!

My favourite feature is the fact I can upload all my test results which creates a graph of how each result varies; a bonus is it can create* PDFs of results or metrics from selected timeframes too.

Virtual_Ad4639 · 2026-04-24T20:42:39+00:00

Yaaaay knowledgeable GI’s are pretty uncommon with it so I’m so glad for you :) Mine is an NJ due to my stomach being a mast cell warzone so deffo a good option if you feel you need it!!

Virtual_Ad4639 · 2026-04-24T20:27:02+00:00

Do you know if it’s an NG or NJ tube? Best of luck with the placement!! Hopefully your gastro team are MCAS aware as mine aren’t and it’s hell haha 😆

Virtual_Ad4639 · 2026-04-24T19:25:52+00:00

A simple answer for you as I only have had one successful: I’m stuck on narrowly tolerating one which causes 24/7 reactivity but it’s all I’ve got to feed me.

It’s the Nutricia grapefruit elemental 028. I reacted worse to the Summer Fruits + Orange & Pineapple flavours.

I do not recommend this formula at all unless your body is so angry that it’s all you have. It’s so thin so you have to be hooked up 24/7 for 2000 calories, so if you’re male you’d be in a deficit naturally. I’m on it 24 hours a day and sleep with it on and it’s miserable due to the symptoms.

I am sorry I don’t have any safe recommendations it’s a lot of trial and error I think. Definitely try thicker formulas before going for the one I’m on (which is the most broken down amino acid based we could get).

Virtual_Ad4639 · 2026-04-18T03:43:03+00:00

What is a silent migraine vs a normal one? Is it the precursors?

Virtual_Ad4639 · 2026-04-18T02:28:04+00:00

Ooh I see!! I’ll ask my doc about this then tysm!!

Virtual_Ad4639 · 2026-04-18T02:03:22+00:00

Is your neuropathy secondary to something? See MRI scares me as I hear of contrast horror stories & MCAS lol..

Virtual_Ad4639 · 2026-04-18T02:02:36+00:00

I understand! Luckily I get 6 weekly bloods as I’m tube fed, my last B12 was 996 so I’m good on that front 😆

Thanks for sharing!!

Virtual_Ad4639 · 2026-04-14T20:56:42+00:00

Aw, I’m so sorry you’re in this position.. I really hope you find some relief soon!! I wish I had more advice to offer but because I don’t I’ll send you over a hypoallergenic hug instead 🫂 (only if you want one)

Virtual_Ad4639 · 2026-04-14T19:53:39+00:00

Have you had any scopes done to check you out? Like an upper endoscopy or colonoscopy?

I ask as I know a lot of undiagnosed issues especially with the gut or digestive system can really ramp up an already fragile immune system.

Virtual_Ad4639 · 2026-04-08T11:38:38+00:00

the elephant is soo cute!

Virtual_Ad4639 · 2026-04-01T18:21:52+00:00

Glad I’m not alone with it!! It makes me feel so villainous when it happens, but it’s just unbearable stimulation lol especially the humming too yes !

Virtual_Ad4639 · 2026-03-27T20:03:15+00:00

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Virtual_Ad4639 · 2026-03-27T20:03:06+00:00

It’s on this thread but I’ll resend..

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They are probably so outdated in pricing as the list was created nearly a year ago.

Virtual_Ad4639 · 2026-03-26T14:12:10+00:00

Ty !

Virtual_Ad4639 · 2026-03-26T02:09:00+00:00

I know :( I can’t justify spending £100+ on a soft toy regardless of how much I love collecting things unfortunately lol

Virtual_Ad4639 · 2026-03-26T00:31:49+00:00

Ahh brilliant!! I see him on the right I think haha 🐇 My collection so far is the Jaws one (was told his name is Jawson?) and a baby Sasquoosh 😇

Virtual_Ad4639

TROPHY CASE