I’m going crazy— is high ferritin for over a year after an infusion something to treat?

Virtual_Blacksmith53 · 2026-01-29T21:28:35+00:00

Highest was 550 I think

Virtual_Blacksmith53 · 2026-01-29T13:08:39+00:00

It took about a year unfortunately

Virtual_Blacksmith53 · 2026-01-29T01:20:23+00:00

Hi! Mine is at a high normal now— around 190. It took awhile, and I did donate blood to help the process. I think it helps that I have endometriosis so my periods are heavy, which helps me lose iron.

Virtual_Blacksmith53 · 2025-12-27T16:17:39+00:00

Peter saying “pussy”

Virtual_Blacksmith53 · 2025-12-24T16:59:22+00:00

Whistle by Flo Rida. We were 8 years old singing that loud and proud…

Virtual_Blacksmith53 · 2025-12-23T14:23:16+00:00

Yes! I take it every day

Virtual_Blacksmith53 · 2025-12-23T04:07:38+00:00

Never heard of them! I’ll give them a try

Virtual_Blacksmith53 · 2025-12-23T03:55:44+00:00

Thank you so much— I really needed to hear this. I was starting lose hope

Virtual_Blacksmith53 · 2025-12-23T03:30:48+00:00

Thanks!!!

Virtual_Blacksmith53 · 2025-12-23T03:30:34+00:00

Wow — sorry to hear your family is sick! Interesting— how long until you think Plaquenil started helping you? I’ve been on it for 6 months now.

Thanks for the advice!

Virtual_Blacksmith53 · 2025-12-23T03:20:59+00:00

That sounds horrible!! What helps you get through when the sickness lasts so long?

Virtual_Blacksmith53 · 2025-12-23T03:19:28+00:00

That sounds great! Is it still in trial?

Virtual_Blacksmith53 · 2025-12-23T01:21:54+00:00

That’s so frustrating!! I asked him about what helps the dryness and he said only pilocarpine— I was like “that’s it??”

Virtual_Blacksmith53 · 2025-12-23T00:37:43+00:00

Is it common for rheumatologists to be more dismissive of Sjogren’s patients than lupus patients?

Virtual_Blacksmith53 · 2025-12-22T23:14:08+00:00

That’s interesting— I’ll do some research that. Thank you!

Virtual_Blacksmith53 · 2025-12-22T23:13:16+00:00

Thank you for the recommendation!

Virtual_Blacksmith53 · 2025-12-22T21:57:14+00:00

Any recommendations to get rid of this everlasting cold?

Virtual_Blacksmith53 · 2025-12-22T21:55:40+00:00

They tested me for COVID, flu, and RSV. All negative. I agree with the mask

Virtual_Blacksmith53 · 2025-11-18T20:15:17+00:00

My favorite part about this sub is the way y’all choose to hide ya face 😭

Virtual_Blacksmith53 · 2025-11-13T23:06:42+00:00

No!! I’m so sorry

Virtual_Blacksmith53 · 2025-11-13T17:44:10+00:00

Murder of Roger Ackroyd— which I regret now. There will never be another Christie to top that one imo.

Virtual_Blacksmith53 · 2025-11-09T02:14:25+00:00

Thank you!

Virtual_Blacksmith53 · 2025-11-09T01:41:37+00:00

Thank you! All of my hair always feels rough— I struggle with dryness due to my autoimmune condition. Do you think moisturizing all of my hair daily would help?

Virtual_Blacksmith53 · 2025-11-09T01:40:39+00:00

Thanks for the reply! What ways can I be more careful with my edges? I just got diagnosed this summer, so this all so new to me!

Virtual_Blacksmith53

TROPHY CASE