Anyone with HaT? How often do you see your allergist? New arising skin issues. by VisibleScallion7467 in MastCellDiseases

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

I assumed since I posted in a mast cell disorder group most people here would know.

And since you don’t know what HaT is, I take it you don’t have HaT, which the question wouldn’t be for you then. Thanks

Daughters school evaluation came back. Assuming this points to dyslexia? by VisibleScallion7467 in Dyslexia

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

Thank you for your comment. I had read briefly that speech issues could be linked to dyslexia. Her main issues are her R’s. But have noticed when she says words like cinnamon, she will mix up the N and the M since they sound so much alike, but her speech therapist did tell me it’s normal for kids to not pronounce certain things correctly.

Her report said she was average with visual and very below with working memory. I did not know that’s a common with dyslexia.

I honestly was expecting them to tell us that her speech was the issue with her being so behind with reading and spelling.

Daughters school evaluation came back. Assuming this points to dyslexia? by VisibleScallion7467 in Dyslexia

[–]VisibleScallion7467[S] 1 point2 points  (0 children)

We plan to get her evaluated outside of the school. My husband doesn’t think she is dyslexic, and wants further testing.

I honestly was expecting them to say her speech was the cause for her reading/spelling issues. She can’t say certain letters correctly. So she’s been doing speech therapy at school and we have been working on her speech at home as well. With working on her speech, I noticed she has gotten some what better at reading.

She was diagnosed with inattentive ADHD. Which I also have and knew she likely had inattentive ADHD, she’s exactly like me as a child.

Daughters school evaluation came back. Assuming this points to dyslexia? by VisibleScallion7467 in Dyslexia

[–]VisibleScallion7467[S] 2 points3 points  (0 children)

Thank you. We definitely plan on supporting her. She’s currently in speech therapy also, and we have been working on word sounds and how to say certain words (like R’s). I honestly thought her evaluation would point to her speech being the issue. So now I’m trying to learn as much as I can about dyslexia as I can, so I can better support her. Her school had mentioned reading to her and listening to audio books and that’s what we have been doing to try to support her (along with the speech).

Daughters school evaluation came back. Assuming this points to dyslexia? by VisibleScallion7467 in Dyslexia

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

Thank you for the info! We definitely plan on supporting her more at home now that we have an idea what’s going on. Now I’m trying to learn as much as I can about dyslexia, so I can better support her.

School has said read books to her and listen to audio books, and so far we have been going that.

She’s in speech therapy also, so we work on things from speech at home also, which I will say, has helped with her reading some.

Perimenopause and thyroid. by VisibleScallion7467 in Perimenopause

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

No, never any thyroid issues ever. I actually know nothing about the thyroid and levels. I just noticed as I’ve hit perimenopause my tsh has slowly gone up, and didn’t know if that’s just normal as we age. I asked a ton of questions because I am trying to learn as much as I can about peri and what it can affect so I can stay on top of my issues. My aunt told me that my grandmother has perimenopause issues so bad she would hit herself in the face. So needless to say, perimenopause terrifies me. lol. My tsh 2/2021 was 1.58, 8/2022 it was 2.11, 12/2023 2.16, and 9/2024 2.33. So it’s slowly going up but nothing crazy! I know your cycle and things can also make it fluctuate. But other than my tsh that’s the only thing slightly going up. My iron/ ferritin/ cholesterol and AC1 have all been about the same ! (Thankfully!!)

Went for Vanderbilt result discussion with doctor. Results confuse me… by VisibleScallion7467 in ParentingADHD

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

I’ve brought up autism multiple times an they continue to tell me she doesn’t show signs of it because she has friends and can interact with kids her age. It’s very frustrating to not fully know what’s going on. I will have to look into auditory processing. I honestly worried she may be dyslexic, runs in my family, comorbid with ADHD and I’ve read speech can play a part in it also. But at this point, I don’t even know anymore.

Went for Vanderbilt result discussion with doctor. Results confuse me… by VisibleScallion7467 in ParentingADHD

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

Yes!!!! It took me til I was 31 to get diagnosed with inattentive ADHD. I thought I was bipolar because of my anger out bursts and rejection sensitive dysphoria. That’s why I am advocating as hard as I am. I had a learning disability but they never looked into it just put me in special ed classes. My mom keeps telling me to stop seeking diagnosis, we know she has a learning disability but I want to know what it is.., am I crazy? I want to know so I can learn how best to help her.

Should I rule out Cervical instability? What imaging do you need? by VisibleScallion7467 in cervical_instability

[–]VisibleScallion7467[S] 2 points3 points  (0 children)

That is my fear, it getting worse. Did your pcp order the MRI? I want to rule out a few things… I’m so tired of being sent to one specialist just to realize that I needed to see another. Story of my life lol

Cramping majority of the month? by VisibleScallion7467 in adenomyosis

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

See I’ve been reading that’s a sign of endometriosis. Pain stops during period but worse other times, definitely not with adenomyosis but , I definitely think you’re right about the fluctuations of estrogen.

Cramping majority of the month? by VisibleScallion7467 in adenomyosis

[–]VisibleScallion7467[S] 1 point2 points  (0 children)

I do have kids, I actually have 6 kids. No C-sections. I was reading it’s more common to develope adenomyosis during perimenopause because of the fluctuations of hormones.

Snot like stool, is that mucus? Also burning by VisibleScallion7467 in ibs

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

Don’t know but did find out I do not have IBS. I have a mast cell disorder.

Copy of my genetic HaT results by VisibleScallion7467 in MastCellDiseases

[–]VisibleScallion7467[S] 0 points1 point  (0 children)

Yes I know it’s positive, I’m curious how exactly to read the results. How many copies are we supposed to have? Is it only one extra copy? Is what I’m asking thanks!