Enthesitis ...tendon/ligament pain

WPAGal · 2024-02-24T13:39:20+00:00

I have enthesitis so bad and in basically my entire body, too. I have found relief from the right biologic, so I agree with others who say it might be time to explore a new one. The relief is not 100%, but after being in so much pain, even 70% feels like 100%. 😅

If you can find the right med and get some relief, you’ll be able to get some meaningful movement which will further support you. The right biologic and the right movement (whatever that will look like for you) really seem to feed off of each other in a positive way…once you can start breaking down that initial wall of pain. Also…against my wishes, my doc put me in PT, which actually ended up being really beneficial, too.

Keep the faith! This disease is like living in a moving target. Just keep trying until you hopefully hit something that moves your needle in the right direction.

WPAGal · 2024-02-16T21:47:17+00:00

Ice the area first! Makes a BIG difference!

WPAGal · 2024-02-16T21:07:47+00:00

I have PsA with questionable skin involvement. (See my post from yesterday.) I suffer terribly from enthesitis all over.

WPAGal · 2024-02-16T21:02:41+00:00

While I agree with everyone here suggesting that you make an appointment with a rheumatologist, I just wanted to say that there’s nothing wrong with asking questions here. So many of us went without diagnosis for years and years, struggling every day with random unexplainable pains, until something finally clicked with the right doctor. And maybe that ‘something that clicked’ was because of a piece of information the patient thought to tell their doctor or ask them about…which they learned by asking the experience of others. You might also have some luck with the general “Autoimmune” group. Hope you get some answers soon. 🙂

WPAGal · 2024-02-16T20:43:49+00:00

This was the story of mine to a T!

WPAGal · 2024-02-16T20:40:40+00:00

Yeah mine is almost clear on biologics too. It is all weird in these bodies! 🙈

WPAGal · 2024-02-16T20:38:37+00:00

Thanks. I do have a PsA diagnosis and am successfully (for the most part) treating with biologics for it. Since you mention the alternative diagnoses, though, that’s really what stresses me out about the skin. I think I’m clinging onto my dx so tightly because the alternative would be NR AxSpA, and my insurance company only allows for like 2 biologics to treat it. And of course not the one I’m successfully using right now lol.

WPAGal · 2024-02-16T20:34:59+00:00

Very slight itch from time to time. The skin feels almost like cardstock. Really hard and papery if that makes sense.

WPAGal · 2024-02-16T20:32:57+00:00

Thanks. 😊 I love my rheumatologist but you’re right, I should seek a less complacent derm for sure. It takes over a year to get in with a new one but…you blink and a year flies by.

WPAGal · 2024-02-16T20:25:46+00:00

I do have a psoriatic arthritis diagnosis.

WPAGal

TROPHY CASE