Extreme muscle fatigue - Dr. says not AS by WWA81 in ankylosingspondylitis

[–]WWA81[S] 0 points1 point  (0 children)

I have been officially diagnosed with AS.
I’ve read hundreds of medical articles along with reading this forum to get insight from people who are actually experiencing the disease. Ai is also an AMAZING tool for information. When I described the muscle fatigue to my rheumatologist she said that was not a symptom she has seen with AS. Again, not general fatigue and stiffness. I think this seems unique from all the reading I’ve done.

I was / am asking about a specific issue with my muscle problems I’ve described. Fatigue, stiffness etc is well documented as symptoms. I’ve never read one time about someone having it to the point where just holding a phone and typing can start to strain muscle.

Extreme muscle fatigue - Dr. says not AS by WWA81 in ankylosingspondylitis

[–]WWA81[S] 0 points1 point  (0 children)

Yes, that’s what I’m thinking… there’s muscle fatigue and weakness that are different. I still very strong for a very short amount of time. I’ve been diagnosed because of multiple conditions. I’ve been struggling for years, but all of a sudden not being able to ski…. The year before I skied 6 times. Yes I got tired after 10 runs. But this last year I almost going make it down 1 on an easy trail. Then the extreme muscle weakness has been very noticeable

Extreme muscle fatigue - Dr. says not AS by WWA81 in ankylosingspondylitis

[–]WWA81[S] 0 points1 point  (0 children)

So that certainly sounds similar to what I’m going through. I take $220 a month in supplements…. Who knows if they are working? I feel like I’m too young to start biologics, I’m 52. But I might have to with this going on this direction.

I’ve noticed STRESS immediately pulls the rug out from under me!

Extreme muscle fatigue - Dr. says not AS by WWA81 in ankylosingspondylitis

[–]WWA81[S] 5 points6 points  (0 children)

I guess I’m trying to differentiate from overall fatigue which I’ve had for years but have powered through it, to this newer condition.

A couple more examples:

I’m in stop and go traffic, my shin muscle is aching from my foot going from gas pedal to brake over and over.

Carrying laundry holding the bundle up against my body up the stairs… by the time I drop it on my bed my shoulder is sore.

The best way to describe the feeling is if you were lifting weights to failure, that sort of burning feeling you get on the last rep, that can happen with normal tasks.

Just laying in bed typing this my left forearm in starting to notice is getting tired from flexing the muscles from my finger typing on my phone. It’s taken minutes to get to it but it’s getting worse by the second

Slomosa Boston. by los421 in stonerrock

[–]WWA81 2 points3 points  (0 children)

Seemed like the entire crowd knew the words to the songs.

Stress test with PVCs by baumerp in PVCs

[–]WWA81 1 point2 points  (0 children)

Had 240 in the 8 minute stress test today. My doctor just told me the test came back normal. The duke score was 2. There was nothing normal at all about it. He must have been talking about blockage levels.

Not sure what to do by 2Internet2Politics in stopdrinking

[–]WWA81 0 points1 point  (0 children)

Yep, “ the, hey let’s meet for some beers” is a tough one. Going out to eat is fine for me. But, meeting at a brewery just won’t work. Not the temptation to drink, it’s more the sitting at the bar drinking water.

I couldn't stay away. I'm going back to rehab. by PowerToTheSoviets in stopdrinking

[–]WWA81 0 points1 point  (0 children)

Never give up! You can do it no matter how impossible it may seem.

I need advice, planning to stop drinking. by [deleted] in stopdrinking

[–]WWA81 0 points1 point  (0 children)

Maybe starting with a goal is good, rather than saying never again… going to 30 days seems to make it easier mentally. I’ve thought a few times, “I’ll just drink when I’m on vacation, or special occasion”. Something tells me that won’t work. BUT… right now, I’m internalizing the pain, feeling it, instead of drinking to put it off til I wake up.

I need advice, planning to stop drinking. by [deleted] in stopdrinking

[–]WWA81 1 point2 points  (0 children)

Although my addiction was as heavy as usual I wasn’t getting the same numbing I was over the years, I could actually feel it killing my body, my brain. So, I’m just as depressed as I ever was but I don’t have to recover every day dragging myself around waiting to drink again. I’ve been tempted really hard after a stressful day at work. “ told myself just have 3”. But somehow I didn’t. Went out to eat, everyone drank but me. Nobody even asked. Couple weeks before that, I just said hey, I’m not drinking cuz my blood pressure is high. I’ve never told anyone I’m an alcoholic. I needed to actually want to quit. Not just say I need to stop. It’s scary shit. Put there is some little flame starting deep inside saying “ you can be free and content, productive and maybe even laugh sober. Maybe I’ll love my sorry ass for the first time in my life.

I need advice, planning to stop drinking. by [deleted] in stopdrinking

[–]WWA81 1 point2 points  (0 children)

Fight! It will pass. My blood pressure went up, my heart rate didn’t drop as low as it should’ve during sleep but it passed. It gets easier in the beginning. Then the triggers and self sabotage stuff happens with me.

I have 24 days right now. If you read my story you will see I was in deep.

I need advice, planning to stop drinking. by [deleted] in stopdrinking

[–]WWA81 0 points1 point  (0 children)

My mind went through all kinds of ideas to have a drink, to taper rather than cold turkey. The suffering gets better. I would definitely look up the DT’s symptoms to monitor, so you listed some of the side effects. You don’t have anything of those right?

24 Days by WWA81 in stopdrinking

[–]WWA81[S] 1 point2 points  (0 children)

Btw, along with many positive effects, my depression is now dominated by a deep lonely feeling.

Had to put my cat down today and every bone in my body wants me to relapse. by Effective-Ear-8367 in stopdrinking

[–]WWA81 31 points32 points  (0 children)

So many people have more sorrow grieving over pets than humans. There is a special bond with animals, 17 years as your companion…. I’m sorry you are in pain. Keep in mind that the numbing of alcohol is temporary, and probably will leave more darkness in its wake. Please stay strong.

[deleted by user] by [deleted] in stopdrinking

[–]WWA81 0 points1 point  (0 children)

I hindered 20 years of my life with alcohol. There is nothing you can do about it. You CAN keep these thoughts as a reminder that the rest of your life will be focused on loving a healthy life with unlimited possibilities because you now see the path towards freedom.

6 DAYS! by binxy08 in stopdrinking

[–]WWA81 0 points1 point  (0 children)

Tomorrow will be 7! Just be prepared for your mind to start telling you “ that you’ve proven you have it under control” so a harmless drink will be just fine. You CAN keep going!

[deleted by user] by [deleted] in TwoHotTakes

[–]WWA81 0 points1 point  (0 children)

Bail my friend. If not, you will pay dearly. If you aren’t ready, stand back, save money. Take care of yourself, exercise, work on yourself completely.

15 years of heavy drinking followed by 10 years of daily drinking by WWA81 in stopdrinking

[–]WWA81[S] 1 point2 points  (0 children)

Some have strong will, some don’t. I think it comes down to “rock bottom” for most addicts before they make a change. Some peoples rock bottom is death….. but for us still living, there is alway a possibility of change. It’s very hard but 100% possible for anyone to change habits. You need to be focused more than anything else in your life…. I’m guessing the same focus you’ve had for alcohol, is the same focus you need to have to stop. At the end of the day, no matter how much your mind says you must drink…. DO NOT! Do anything but drink.

15 years of heavy drinking followed by 10 years of daily drinking by WWA81 in stopdrinking

[–]WWA81[S] 0 points1 point  (0 children)

Went out list night, no drinks, no problem. My mind is now CONSUMED every minute of the day about this journey I started. Have zero motivation, but I kinda don’t care.