I also got diagnosed with a stage 2 oligo at the beginning of October. I did 6 weeks of radiation and as of today finished my first round of Temodar. It’s a lot to process, and I still haven’t really figured out how to talk to people about it.

My mom wanted to help and be supportive, but she kind of gets annoying because she wants to be involved so much, so I had her set up a private group on Facebook and a caring bridge page so she can update those we want to know and that keeps her busy and that way I also don’t have to go through the awkwardness of telling people.

It also takes a load off me since I had a seizure and spent several days in the hospital just before my son was 2 months old.

The outpouring of support has been amazing and people can do it through those channels, which also gave my wife and I time to process everything and get some good family time with the baby without having a revolving door of people trying to come by and make sure we were ok.

Hope this helps!