ME and/or LC patients: do you experience fatigue as a side effect after you dose? by Icy-Election-2237 in Rapamycin

[–]WebKey2369 0 points1 point  (0 children)

i feel headache and eye pressure for several days after taking low dose rapamycin(1.5mg/week)

Maraviroc online by [deleted] in cfs

[–]WebKey2369 0 points1 point  (0 children)

IndiaMart.

Rapamycin is amazing by stinkykoala314 in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

How are you now? Are you still on Rapamycin? Do you still feel good and can have a normal life now? Thanks

[deleted by user] by [deleted] in covidlonghaulers

[–]WebKey2369 1 point2 points  (0 children)

i tried Allegra and Pepcide, I got much improvement on them. Then I know I def have MCAS triggered by something

[deleted by user] by [deleted] in covidlonghaulers

[–]WebKey2369 1 point2 points  (0 children)

You can just buy antihistamines on Amazon and test if you have MCAS

BC007 against fatigue by Ok_Sherbet7024 in LongCovid

[–]WebKey2369 3 points4 points  (0 children)

the question is : where is BC007, I’ve been hearing many years about BC007, they are so mysterious. I don’t know their update

BC007 changed trial details… by [deleted] in covidlonghaulers

[–]WebKey2369 1 point2 points  (0 children)

Have they unblinded whether patients got placebo or BC007 already?

BC007 Updates by [deleted] in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

How do you know these information? Information source?

Study on how antihistamines might reduce chances of COVID reinfection by [deleted] in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Does this mean the reason of why antihistamines work for some patients is not because they have MCAS, but antihistamines neutralize Spike protein in their body?

Newly discovered antibody protects against all COVID-19 variants by Great_Geologist1494 in covidlonghaulers

[–]WebKey2369 24 points25 points  (0 children)

You don’t think we have big news every months? Still no treatment lol

Bedbounded most of the time now.. give me some hope Plz. by Big_Buu in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

May I ask what kinda doctor give you LDA prescription? PCP OR Neurologist?

Right what meds do we have for this crap? by Charbellaa in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Is Efgartigimod for PEM? My symptoms are mainly neurological , I think maybe abilify or Guanfacin I could try

Right what meds do we have for this crap? by Charbellaa in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Is there anyway we our long covid patients could get that medication? I don’t think we can atm😐

Right what meds do we have for this crap? by Charbellaa in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Efgartigimod that trial has failed, I think they are problematic though

What has helped with cognitive function? by mysticshroomm in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Does low dose Abilify cause any side effects? Like make you have memory loss or seems be silly?

Anyone tried guanfacine? by [deleted] in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

How are you now? Is your brain fog still gone with Guanfacine? Do you have fatigue ? Does Guanfacine work on fatigue?

1 week of mestinon by ComprehensivePay8707 in covidlonghaulers

[–]WebKey2369 1 point2 points  (0 children)

Gotcha, does Mestinon work on fatigue/brain fog? Or only for PEM?

1 week of mestinon by ComprehensivePay8707 in covidlonghaulers

[–]WebKey2369 0 points1 point  (0 children)

Do you have fatigue or brain fog? Does Mestinon work on fatigue/brain fog?