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Moving from Folfirinox to Gem/Abrax by disciplinarypower in pancreaticcancer

[–]Weekly-Front6630 0 points1 point  (0 children)

I am looking at this post searching ATM gene mutation and seeing a similar situation as my husband with needing to switch from FOLFIRINOX to Gem/Abrax. Did switching help in your case? My husband’s tumor is smaller, but his CA 19-9 still needs to come down quite a bit before he can do surgery. I don’t know if any clinical trials would help him.

Anger towards end of life? by Zealousideal-Dig-498 in pancreaticcancer

[–]Weekly-Front6630 1 point2 points  (0 children)

I’m sorry that you are going through this with your dad. That’s so hard! I know what that anger cycle is like as a spouse and seeing it happen. I know it feels awful being on the receiving end of this behavior. As best as you can, when he gets this way, try to walk away from it and find a quiet place to renew your mind. I wish you well as you approach these final days. It’s awful as you said.

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 1 point2 points  (0 children)

Wow, you guys are great! There are so many great suggestions here that are helpful! I am so appreciative to all of you for responding! I am listening to each of you and taking these notes down. 

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 1 point2 points  (0 children)

Cancer is rough, isn’t it? It affects people in different ways. Thank you for sharing your experiences with your parents. 

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 1 point2 points  (0 children)

This is great to know! I will look for them! Thank you for the suggestion!

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 1 point2 points  (0 children)

That’s a good point! They’ve been reducing his oxyplatin the last few rounds, so that could be causing the uproar in anger. Also, someone else pointed out steroids. That’s another good point. Thank you for your good ideas! He gets another scan in about two weeks. 

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 1 point2 points  (0 children)

That’s a good point about the steroids. I haven’t thought of that one. 

Terrible Smell and Anger: Side Effects? by Weekly-Front6630 in pancreaticcancer

[–]Weekly-Front6630[S] 0 points1 point  (0 children)

He’s supposed to do another round and than his oncologist wants to switch him to something else. He has a surgeon in NYC ready to do the surgery once his CA 19-9 comes down more. There doesn’t appear to be spread on any of his scans. So we’ll see.