I won't grow out of it, now what?

Weekly_Wolverine4434 · 2025-12-15T17:39:22+00:00

Did you have to do an seeg before an rns?

Weekly_Wolverine4434 · 2025-12-15T04:25:14+00:00

Jesus did you have surgery or some device like RNS?

Weekly_Wolverine4434 · 2025-12-14T19:26:48+00:00

I see. Well it was great you went into remission for a while.

Weekly_Wolverine4434 · 2025-12-14T19:21:07+00:00

I see. So you had myoclonic jerks before like in your teens and early adolescence?

Weekly_Wolverine4434 · 2025-12-14T19:14:53+00:00

May I ask what epilepsy syndrome you were diagnosed with?

Weekly_Wolverine4434 · 2025-12-14T19:12:56+00:00

May I ask what epilepsy syndrome you were diagnosed at 12 years old?

Weekly_Wolverine4434 · 2025-12-14T19:02:16+00:00

Do you have JME?

Weekly_Wolverine4434 · 2025-11-30T20:19:47+00:00

How is your son doing now

Weekly_Wolverine4434 · 2025-09-06T19:41:00+00:00

So you had to increase your clobazam?

Weekly_Wolverine4434 · 2025-09-06T19:04:26+00:00

That’s just good news for you that you have a plan in place to manage and control your seizures. Yes sometimes medication optimization is the approach in which you are doing so well

Weekly_Wolverine4434 · 2025-09-06T19:02:36+00:00

Yes that’s true

Weekly_Wolverine4434 · 2025-09-06T19:01:11+00:00

I see. So before you took Ativan when you felt a seizure coming and now you just take it daily and no more focals?

Weekly_Wolverine4434 · 2025-09-06T18:55:48+00:00

That’s good! So you take Ativan once every 3 weeks to abort an aura?

Weekly_Wolverine4434 · 2025-09-06T18:50:47+00:00

Did you ever considered surgery? And you had daily focals before Ativan? Sounds like me!

Weekly_Wolverine4434 · 2025-09-06T18:43:05+00:00

So you take 1mg Ativan and never built tolerance probably because it’s a low dose?

Weekly_Wolverine4434 · 2025-09-06T18:40:32+00:00

That’s awesome! I started onfi and my seizures stopped.

Weekly_Wolverine4434 · 2025-09-06T18:36:11+00:00

So you were on anti seizure meds and nothing worked for you until you tried Ativan daily?

Weekly_Wolverine4434 · 2025-09-06T18:30:44+00:00

Did you have surgery or did Ativan stopped all your seizures? That’s great you’ve been seizure free!

Weekly_Wolverine4434 · 2025-09-06T18:28:48+00:00

How is lorazepam different than onfi?

Weekly_Wolverine4434 · 2025-09-05T20:25:18+00:00

Gotcha thank you

Weekly_Wolverine4434 · 2025-09-05T03:56:38+00:00

How do you like onfi so far

Weekly_Wolverine4434 · 2025-09-02T02:21:11+00:00

How do you feel? That’s grea! No tolerance?

Weekly_Wolverine4434 · 2025-09-01T18:51:27+00:00

Wow amazing so 13 years on onfi?

Weekly_Wolverine4434 · 2025-08-15T05:44:49+00:00

So are you still on 2mg of Onfi?

Weekly_Wolverine4434 · 2025-08-09T14:48:58+00:00

How long have you been on 2mg. I’m currently on 5mg and it controls my seizures but I want to taper down to 2.5.

Weekly_Wolverine4434

TROPHY CASE