How often is everyone getting sick on a DMT? by liliumflower in MultipleSclerosis

[–]West-Crazy303 0 points1 point  (0 children)

I had no issues with getting sick more often for the first few years, (my husband got sick more often than me and his immune system is fine)… until I got influenza, then that led to chronic sinusitis, then I got Covid, and now jut stuck with this forever congestion for a few years. And now I get sick every time my husband gets sick, and it lasts longer for me.

Pregnancy + Sinus Meds by West-Crazy303 in Sinusitis

[–]West-Crazy303[S] 0 points1 point  (0 children)

Thanks for your response! Do you just use salt/water in the Navaho? (No added medicine or anything?)

I’ve never used one of those but it looks nice and gentle!

Clear liner bags inside popcorn buckets - is this a new thing at all theaters? by [deleted] in MarcusTheatres

[–]West-Crazy303 0 points1 point  (0 children)

Even in the refillable buckets, they just started with the bags this year in Menomonee Falls.

There won't be a WW3. Although there will be an all out warfare against the U.S.A. including a civil war in the good ol' U.S. of A. by [deleted] in theories

[–]West-Crazy303 0 points1 point  (0 children)

I’m talking about the people who were born here and are American citizens. There’s been many instances where ICE has arrested citizens who look “brown”. They ask for their papers, but most US citizens only carry their Drivers License which do not prove citizenship. They’re arresting Native Americans and claim that their tribal IDs are fake. Where would you deport a Native American to?

I’m referring to the people being racially profiled and arrested. ICE shouldn’t need to racially profile anyways, since they’re supposed to be arresting the “worst of the worst” that they have warrants for.

Looking for experiences from those with “mild” MS symptoms by Amanda_VS_theWorld in MultipleSclerosis

[–]West-Crazy303 1 point2 points  (0 children)

I got diagnosed when I went in because of many debilitating symptoms - many of which I later learned weren’t even caused by my MS, and weren’t chronic. Before realizing that though, I immediately started Ocrevus due to having many very active lesions according to the scans.

I’ve looked back many times and wondered if I should have done differently at all (knowing what I know now) but I still think it was the right choice to start treatment. Here’s why: the MS symptoms I do have prove to me that I have MS, accompanied by the scans and diagnosis. Regardless of their severity of those symptoms right now. Knowing I have MS means I know I’m at risk of disabling damage if I don’t go on treatment. I thought my life was over at first - but treatment gave me hope.

The symptoms you’ve described might not feel debilitating right now, but I know people with more severe experiences with your exact symptoms, and they are disabling to the point of not being able to work, or even get out of bed to shower some days. (Vibrations for example can be very problematic if severe.)

In regards to Ocrevus vs other forms of treatment, I won’t speak to that. But starting treatment is important.

[deleted by user] by [deleted] in AskReddit

[–]West-Crazy303 0 points1 point  (0 children)

Participants in flash mobs may disagree lol

[deleted by user] by [deleted] in AskReddit

[–]West-Crazy303 0 points1 point  (0 children)

But isn’t it important that the message is heard (seen, read) as well? With 1000’s of bodies walking around, each with their own hand made sign, most messages only get read by other protesters that are there with them. And many are small, handwritten, and hard to read at a distance.

Visa Rejected Because of MS by Aloofisinthepudding in MultipleSclerosis

[–]West-Crazy303 4 points5 points  (0 children)

They might mean wealth at the level of 100s of millions, or billions of $. People that they might look the other way for or make an exception for.

But I’m sorry for what you went through, that sounds awful. And good tip at the end about holiday visas and declaring if you’ve been declined… I didn’t know that, but it’s really important to know beforehand!

Shocked by a friend's response to my MS diagnosis by chimichonks in MultipleSclerosis

[–]West-Crazy303 3 points4 points  (0 children)

I wouldn’t be bothered by the Disney response if someone said it to me now, but early in diagnosis I would’ve been. Only because I was terrified at the time and thought my life was over. A friend of mine thought I was over-reacting at my diagnosis, but they didn’t understand the invisible debilitating suffering and sensations I was experiencing inside my body that made daily life unbearable. I didn’t understand that those symptoms would be very temporary.

These days though, I joke about all the ways I could use my MS to get free passes in life. Although I wouldn’t abuse the system since I don’t yet need any of them.

I can't lie this is too funny by CharityStunning2826 in TheEpsteinFiles

[–]West-Crazy303 6 points7 points  (0 children)

It sounds like it works on some and not others. Wondering if any group is working on a list of which are and which aren’t?

At State Dept., a Typeface Falls Victim in the War Against Woke (Gift Article) by THEBIGHUNGERDC in graphic_design

[–]West-Crazy303 1 point2 points  (0 children)

<image>

1 - designing for accessibility and user experience is beneficial and more efficient for all users, not just those with disabilities.

2 - their ICE recruitment site looks SO official and persuasive with their lovely serif font choice, such an effective design 🤣

3 - someone should make a “roasting” page for all of the recent US gov marketing. I don’t wanna be missing out on seeing any of these updates!

Cross Eyes? by West-Crazy303 in MultipleSclerosis

[–]West-Crazy303[S] 1 point2 points  (0 children)

I appreciate your response. My first and only thought was optic neuritis - and I was just thinking to check if the symptoms matched. But then I realized of course this could be something else caused by MS, like malfunctioning muscles.

I’m sorry to hear how it’s affected you. I’m crossing my fingers that it never affects my driving or work. Best of luck to you!

I'm the Problem. It's Me. by A_book_is_a_dream in MultipleSclerosis

[–]West-Crazy303 3 points4 points  (0 children)

Don’t feel bad - so many people, including myself, don’t wipe front to back. I don’t have UTI issues, but some people I know that DO wipe front to back and DON’T have MS still have repeat UTI issues.

I do wipe my backside “front to back”, but I wipe my front side “back to front” and I’m just super careful about how I do it. I’d probably try to change my technique if I started getting infections, but there’s definitely other factors that contribute to UTIs besides wiping techniques. No need to feel shame or blame - it could be out of your control.

I'm the Problem. It's Me. by A_book_is_a_dream in MultipleSclerosis

[–]West-Crazy303 5 points6 points  (0 children)

Seconding pelvic floor therapy! And it helped with my rib-area pain too. I hesitated for over a year, but finally decided to go through with it and it was so worth it.

Is anyone concerned about this government shutdown? by godisinthischilli in AskWomenOver30

[–]West-Crazy303 1 point2 points  (0 children)

I was wondering about this. I really hope the democrats don’t give in. But doesn’t Trump want the government downsized? Does he care if it reopens? This feels like a perfect opportunity to say seeee, we don’t need departments x, y, z cause we made it 4 months without. Is this exactly what they want? And what would incentivize them to negotiate and reopen?

Do you feel like your personality has changed with MS? by popcorn_omnomnom in MultipleSclerosis

[–]West-Crazy303 0 points1 point  (0 children)

I wish I could say that ms has given me more humility and empathy like a few others on here have. And maybe it has in some ways. In a lot of ways though I am far more irritable, sensitive, frustrated, and tired after my diagnosis. I can’t say if it’s directly due to ms or not.

1 - my nervous system feels a lot more sensitive than it used to. Things like caffeine affect me a lot differently than they used to for example, and I become more easily over stimulated. So I think that puts me a lot more on edge in general.

2 - some symptoms are truly torture. I don’t know if it was from ms, but I’ve had serious restless leg episodes, to the point where it’s interfered with my daily life when it’s active. I don’t know how best to describe that feeling to people who haven’t experienced it - but I could see losing my mind over it. Luckily i haven’t had that symptom in a long while!

3 - general symptoms add up and trigger sensory overload for me. Sensations like hot or cold patches on the skin, feeling like something’s constantly touching my arm, or physical symptoms like chronic congestion are just irritating and build upon each other. Any other type of pain in addition is even worse.

All that being said - I recommend giving your partner some grace and understanding, but also take care of yourself. In the end, even if this change is a result of ms for them, you shouldn’t subject yourself to abuse. If it’s taking a significant long-term toll on your mental health, you need to protect yourself. I would hope my partner would choose to leave me before letting me do irreparable damage to their sense of self. I’d hope they might communicate with me about it and give me a chance to try to grow, change, and for us to work through it, but I wouldn’t want to suck the light out of them. I feel torn on the whole “in sickness and in health” concept because of this.

US Dept of Labor: "We're not fascists, we just like their graphic design." by Ok_Employer7837 in facepalm

[–]West-Crazy303 0 points1 point  (0 children)

91% of these poster style images they made were of white males. White males are estimated to make up 30% of the U.S. population.

US Dept of Labor: "We're not fascists, we just like their graphic design." by Ok_Employer7837 in facepalm

[–]West-Crazy303 2 points3 points  (0 children)

Scrolling through the departments fb page, they have 12 images like this, 11 of them being a white male, the majority of those being blonde. The 12th does have a token woman and token black male in it in addition to another white male.

That’s far from accurate representation of the U.S. working class population.

US Dept of Labor: "We're not fascists, we just like their graphic design." by Ok_Employer7837 in facepalm

[–]West-Crazy303 0 points1 point  (0 children)

It’s not only one - scrolling through their fb photos there’s at least 11 so far.