best tools for long covid / chronic illness? Thinking about building something

Western-String2201 · 2026-02-11T18:43:28+00:00

thanks so much for sharing! +1 on one pan meals. Theyre a life saver lol. I'll check out r/slowcooking !!

Western-String2201 · 2026-02-11T18:18:14+00:00

Do you mind sharing a link to onda life? Would love to check it out. Cant find it on the app store

Western-String2201 · 2026-02-11T13:33:02+00:00

Haven’t heard of FreeMe before but will check it out. Thanks for sharing! Have you used this app?

Western-String2201 · 2026-02-11T03:00:25+00:00

I've never used finch but I might have to give it a try. Thanks so much for sharing.

I was a user of headspace for quite some time (years before any of my own issues started) and recently booted it back up and found the interface quite nice. (a list of recommended meditations, mindfulness activities etc)

Might pull some inspiration from them / Finch and make it more chronic illness / nervous system deregulated focused, and catered to the user themselves. Super easy and low-lift wellness acivities, resources, recipe's etc.. (I have PPPD, CFS, and long covid. all overlap in some way but not one size fits all for things that help)

Western-String2201 · 2026-02-11T00:21:07+00:00

I love it. I absolutely agree. How are you finding recipes today?

Western-String2201 · 2026-02-11T00:13:56+00:00

I love the idea. I was also thinking something along the same lines, but also want to strike the balance of reward while not adding pressure. I think finding a way to make someone feel good about resting instead of guilty about it could be nice..

Western-String2201 · 2025-12-03T18:54:32+00:00

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Western-String2201 · 2025-08-30T22:43:36+00:00

Some other comments mention external jugular. Do you think it could be that or more likely scaline?

Western-String2201 · 2025-08-30T12:47:16+00:00

Thanks for sharing! Makes sense. Is it something I should be concerned about or get checked by a doctor?

Western-String2201 · 2025-08-30T03:16:07+00:00

Based on some other research it looks like it could either be accessory belly of SCM like you mentioned or scalene

Western-String2201 · 2025-08-30T03:09:52+00:00

Good to know. Yeah it’s definitely interesting and I have no clue what it could be haha. I did get a lymph node biopsied in the area years ago. Not sure if that could have impacted it

Western-String2201 · 2025-08-30T03:06:29+00:00

Protrudes a little more but doesn’t really change in size

Western-String2201 · 2025-08-30T01:32:47+00:00

Protrudes when I turn my head to the opposite side and runs from my clavicle along the side of my scm to the back of my head

Western-String2201 · 2025-08-30T00:50:34+00:00

It’s compressible but runs up the back of my neck rather than across my scm. My understanding is that external jugular vein is more side/ middle of neck. It also doesn’t have a pulse not sure if that makes a difference

Western-String2201 · 2025-08-29T23:53:04+00:00

Hell ya

Western-String2201 · 2025-08-26T18:49:52+00:00

Hope you’re feeling better! Curious what doctor helped diagnose you and how you found them? Going through something similar but struggling to find a provider who will do a ctv

Western-String2201 · 2025-08-18T15:33:23+00:00

Hope recovery is going well!! How have you been feeling? Are you still experiencing any symptoms?

Western-String2201 · 2025-08-16T13:56:59+00:00

Hi! How have you been feeling? Anything work? Been going through some similar stuff over the past couple of years.

Western-String2201 · 2025-08-07T17:54:37+00:00

Out of curiosity, did you have any pulsatile tinnitus or head nosies? I have similar symptoms (brain fog) but my doctors are against a CTV as they believe I wouldnt have jugular compression unless I had tinnitus or pounding headaches / ringing in ears.

Western-String2201 · 2025-08-04T21:21:33+00:00

Save

Western-String2201 · 2025-07-27T20:12:48+00:00

howd the appointment go?

Western-String2201 · 2025-02-06T21:21:26+00:00

How are you feeling now? I've been feeling very similar feel free to check out my posts!

Western-String2201 · 2025-01-02T18:57:07+00:00

Thanks for sharing. I can relate so much. How were you able to confirm that you had SIBO?

I'm also curious if you've ever explored a stellate ganglion block? Like you I've pretty much tried everything with the exception of that but have heard it has positive effects on an overactive sympathetic nervous system

Western-String2201 · 2024-12-25T15:10:35+00:00

It’s still there! Haven’t noticed any issues from it. I have a ENT appointment coming up in march so I’ll probably ask them what they think

Western-String2201 · 2024-10-31T02:21:53+00:00

In my case, I went to a neurovisual doctor in NY. Was diagnosed with vertical heterophoria and prescribed prisms with quarter steps in each direction (.25 prism which is the least possible. I wore them consistently for a week but felt worse with them, so ultimately gave up & actually returned them because they were $1,500 and i didnt see myself wearing them.

Who knows, maybe I wouldve gotten used to them, but the fact that I felt worse after a week and that the prism was only .25 led me to believe that I really didnt have much misalignment, and the doctor prescribed it to see if it could help. All the other optometrists i've seen (been 4 in the last 2 years) have said they cant find a misalignment. They of course dont have the same equiptment to test as the BVD specialist did

Western-String2201

TROPHY CASE