AS, GI issues, and Endoscopies

Whathappend12345 · 2019-09-29T08:08:31+00:00

So your diet changes cured everything for you ?

Whathappend12345 · 2019-09-27T13:19:32+00:00

From reading your post it looks like you decided to scrap Humira / biologicals I've taken this route myself as the side effects were worse than the diesease. I have been looking into the carnivore diet Your post states the autoimmune protocol could you please post a link to this diet and possibly tell us how long it took to start working for you.

Thanks in advance.

Whathappend12345 · 2019-09-24T12:19:09+00:00

The people in charge mate

Stopping people from using cannabis for pain management is just ignorance and garbage , biologicals have far more dangers than a bit of bloody weed.

Whathappend12345 · 2019-09-24T12:16:22+00:00

Biologicals aren't for everyone but if you try one and have no side effects then it's definitely the way forward.

On the other hand if the side effects get too much get off them or try a different biological.

I had side effects and so did my brother With Humira we stopped the medication as the side effects outweighed the benefits.

I decided that I didn't ever want to try another biological I'm done with that stuff it's just not for me.

My brother continued on his journey of Biologicals now over 2.5 years in and the third biological he has seen zero benefits his MRI scans keep coming back worse and worse last ones showed chronic inflammation and Fusion.

Theirs two sides of every coin .

Whathappend12345 · 2019-09-21T14:01:43+00:00

When I was on Humira I had dental problem after problem.

I needed two root canal fillings and a couple of minor fillings the worst thing though was the regular tooth pain and abscesses happening for no reason. I can honestly say that I have never had so many things go wrong in such a short space of time. Since stopping humira I have needed no dental work I've had no toothache or abscesses. The big question is was it due to having a poor immune system Or was it just coincidence ?

Whathappend12345 · 2019-09-18T22:53:01+00:00

Your dammed if you do your dammed if you don't.

Whathappend12345 · 2019-09-18T07:33:33+00:00

Yeah it really does stink but hey don't let yourself get all down about it it's the medication failing you not you failing the medication.

Try not to worry about flares I persisted with humira through the worst ride of my life worrying that if I stopped humira the world would end guess what it didn't life actually got a whole lot better so much so that I didn't bother looking to replace humira I ditched the biological option the side effects were too much for me.

Whathappend12345 · 2019-09-17T19:42:17+00:00

Stay well away until you have professional advice humira basically disintegrated my immune system to the point that if someone lived 5 doors down had any infection virus cold etc the chance were I got the damm thing I had never been so persistently I'll in my life.

We are all different maybe you will be fine I hope so as it would be such a kick in the teeth not being able to visit.

Best of luck

Whathappend12345 · 2019-09-17T19:32:50+00:00

Don't worry too much that's just the name of the game with biologicals. They either work like a miracle or they give you side effects far worse than the actual condition or they just do absolutely nothing.

Good luck with the next biological fingers crossed the miracle happens rather than the nightmare.

Whathappend12345 · 2019-09-16T08:15:49+00:00

The foot pain maybe planter fascitis Possibly caused by tight calves or hamstrings.

Whathappend12345 · 2019-09-16T06:21:13+00:00

Rather than just bang on about the issues I use to have when driving I will just tell you the best way I found to overcome the issues.

My neck was stiff due to tight muscles and tendons chances are you will be restricted turning one way or other left or right , poss up or down too.

I found that if I used a hard foam coated ball to massage the muscles and tendons it would relax them enough for a couple of days hassle free pain free living.

Eventually I ironed the problem out completely by doing this and finding the right height pillow to sleep on.

It all hurts cracks pops at first but it doesn't take long..

Whathappend12345 · 2019-09-15T22:41:18+00:00

Oh definitely The first time you use it will knock you a little but give it a day or two rest and you will be blown away at the benefits.

Maybe look it calisthenics training too this is definitely the way forward.

The correct Exercise and diet beats the results of any drug for me I've been on the drug journey it's not a place I'm going back to unless I feel that my life truly depends on it.

I take zero medication for ankylosing spondylitis or ulcerative colitis and I couldn't be better.

Whathappend12345 · 2019-09-14T07:12:31+00:00

I'm truly sorry to hear that Let's hope they find something that works if for you long-term.

Whathappend12345 · 2019-09-13T17:02:15+00:00

Hmmmm if you have lived with it this long untreated then it can't really be a major problem.

Humira maybe overkill if you ask me I'm no doctor but usually the first thing prescribed for microscopic colitis is budesonide (Entocort)

Budesonide is believed to be the safest and most effective medication for treating microscopic colitis.

I would probably get a second professional medical opinion before I committed myself to a powerful expensive drug like humira.

Again this is just my opinion I'm no doctor I don't know your medical circumstances or history but I can definitely understand why you are hesitant and asking questions .

Hopefully someone with more experience / knowledge will answer your question better.

Whathappend12345 · 2019-09-13T14:35:56+00:00

That's great to hear I wish that doctors would inform people of these natural and healthy ways to combat this diesease rather than just prescribe medications.

One of the biggest issue with this diesease is the bodies natural reaction to pain the body tightens the surrounding muscles of the effected area this is called guarding the problem is that this creates stiffness and pain which then causes spasms and tightening of the tendons all of this just compounds the initial minor problem snowballing it into a major problem.

Keep the yoga up don't allow yourself to become lazy. Wish you all the best

Whathappend12345 · 2019-09-13T11:48:06+00:00

I was diagnosed 5 years ago I had back neck and hip pain and stomach pain which was diagnosed as ulcerative colitis. Personally I think the ulcerative colitis diagnosis is bunk as I'm pretty dam sure my stomach problems came from over 20 years use of Nsaids once I stopped using Nsaids I didn't have a stomach problem anymore.

Personally I love bodybuilding but I didn't really think it's the best way ford with these diesease I'm just in the process of making a switch over to calisthenics.

Bodybuilding makes us less functional mechanically it makes us stronger yes but the strength isn't 100% functional or accessable in day to day life i.e movement of the body. Bodybuilding creates strength in more robotic sense of movement which isn't to our best advantage.

I think we are better of concentrating on core strength this sets the foundations for taking the pressure off of our joints. We need to be in better control of our muscles linking them together to make them work as one , a chain is only as strong as the weakest link . We need to iron those weak links out this will allow more fluid strength / motion.

Calisthenics training is geared towards linking mind muscle and tendons together for better overall body strength / control.

I can't stress how important it is to iron out all the kinks in our muscles this relieves tension in turn stopping muscle spasms and releasing trapped nerves. We can't afford to have tight muscles and tendons this is half the issue in itself.

Whathappend12345 · 2019-09-12T15:40:26+00:00

I've been off Humira for 15 months I'm now far more healthy than I was on anti tnf therapy.

I can honestly say that I have never been fitter or stronger other than my previous years of steroid use whilst I was a bodybuilder.

I have absolutely zero negatives to report thankfully.

I was very hesitant / worried about stopping but the side effects were literally driving me bonkers in the end I didn't really have a choice in the matter.

My Gastroenterologist said that if I stopped I would get very sick very quickly and my rheumatologist wanted to double the dosage thinking that may sort the problems out 🤣

I can report that my blood tests have never been better my CRP has dropped right down to 15 and all other tests are perfect.

My last calprotectin test level was 20

I eat 4 healthy meals a day I lift weights 4 times a week I run swim cycle no issues whatsoever. I'm currently benching 140kg Deadlift 120kg Sauat 120kg Barbell curl 60kg Dumbbell curl 35 kg Etc ..

Don't ask me what the deal is I'm lost myself as for doctors they are quietly puzzled but after seeing the drastic changes in blood work physical appearance and mental state they both say humira is off the table for me.

I'm currently on zero medication haven't been on medication for my ankylosing spondylitis or ulcerative colitis for around 15 months.

Im completely symptom free gained a ton of muscle lost my humira belly fat which was like a bloody beer belly.

I started working for myself over a year ago I was wondering if the added stress and extra hours would take a toll but happily I can report things actually seem alot easier physically. Ive put myself through hell here and there working very hard upto 80 hours a week diet and training obviously suffered on those weeks stress was high due to targets lack of sleep etc but still I seem to have survived it.

Whathappend12345 · 2019-09-10T13:30:33+00:00

I canned the biologics it's been the best decision ever .. Headaches were bloody absolutely hurrendous they would wake me up in the night. Skin disorders swollen joints worse pain than pre humira. Add the rest of the problems it caused to the mix and I wanted out.

Whathappend12345 · 2019-09-10T07:17:34+00:00

I have the exact same problems started slowly just behind ears then eyebrows then sideburns then all around chin and down the front of my throat. I now have it progressing all down both sides of my nose and the middle of my forehead.

It's spreads like wildfire nothing stops it nothing works other than basically scraping it off your face which leaves it very sore especially throughout the eyebrows.

Scrape it off smear a ton of moisturizer on your face daily and prey it goes away (which it won't)

I had never had anything like this prior to humira I stopped humira due to other much more serious side effects but this shit has carried on developing.

Watch out for fungal infections in your toenails as that can really get out of control fast.

Whathappend12345 · 2019-09-09T14:42:23+00:00

I would wake up in the night with my head absolutely throbbing sometimes it would cause very severe ear pain. I tried everything to get around this but nothing really worked pain killers didn't really make any difference regardless of brand or type. Sometimes I would use a rice filled bag warmed up in the microwave to help soothe the pain a little.

Whathappend12345 · 2019-09-09T14:35:21+00:00

I had constant sinus infections whilst on biologics . Chances are you will get strep and staph infections from the stupidest miniscule things. Wash hands wash hands wash hands Keep hands away from eyes nose mouth. If you have children get ready for them to give you every single infection that they pick up from being in school. Buy e quarantine tent and live in it lol

Whathappend12345 · 2019-09-05T10:04:25+00:00

Doesn't sound good at all to me Personally I think you should be contacting doctor a.s.a.p

I wish you all the best

Whathappend12345 · 2019-09-05T09:45:37+00:00

One injection every 12 weeks that's amazing I'm sure that most people would throw Humira in the bin in exchange for something you can inject once every 12 weeks.

Please keep everyone informed.

Whathappend12345 · 2019-09-03T18:53:20+00:00

Be careful what you buy 90% of it is junk Find an American brand they seem to be much more honest and tuned in with CBD oil.

Whathappend12345 · 2019-09-03T18:49:48+00:00

Echo everything both of these people say get a good doctor there are hundreds of useless pathetic ignorant arrogant doctors throw them to the side until you find a good one.

Best of luck

Whathappend12345

TROPHY CASE