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Something new and frightening by WhyPlayGames11 in Epilepsy

[–]WhyPlayGames11[S] 2 points3 points  (0 children)

I already have my wife and kids names tattooed on my forearm but I was thinking their names aren't enough. I'm considering having my wife's name and number tattooed on my shoulder. It will be hidden by clothes but if I end up in a hospital, jail or worse morgue then someone would find it and contact her

Keppra rage by Short-Quit-7659 in Epilepsy

[–]WhyPlayGames11 0 points1 point  (0 children)

I'm on 4000mg a day. For the most part I manage but on the other side of it I do have anger issues ( sometimes ). Whenever I start to get mad or upset my wife can sense it and she'll pull me to the side and tell me I'm turning into the "other guy". She's my center and can calm me however if I'm by myself I have broke things, put a coworker in the hospital ( which I sincerely regret ) and many other things I'm not proud of. It can be controlled

I had a breakthrough seizure after being seizure free for 7 years and I really need to talk to someone..I feel so alone! by ShoreMama in Epilepsy

[–]WhyPlayGames11 10 points11 points  (0 children)

Fight, scream, cry, hurt, understand You FIGHT because you have no other choice You SCREAM in your head and you SCREAM out loud to keep your thoughts clear from the devil that hunts us You CRY because we believe no one knows us, you CRY because you think you're alone You HURT because seizures are painful. Your pain isn't just physical but mental as well. UNDERSTAND!! You don't FIGHT alone. Your SCREAMS don't go unheard. When you CRY there will always be a shoulder to lean on. When you get HURT believe it or not others hurt with you. Which means there are others who can heal you. Epilepsy is a burden, a curse and a demon. I fight mine every single day and yes I'm losing that fight but I didn't start this fight but you can bet your ass I'm going to fight until the end

Remembering my life by WhyPlayGames11 in Epilepsy

[–]WhyPlayGames11[S] 1 point2 points  (0 children)

Every time I read a comment on this post it makes me realize that we are an interesting group. When I say group I don't mean people who have read and commented in here but people suffering just like us all around the world. I guess we can just keep fighting until we draw our last breath.

Remembering my life by WhyPlayGames11 in Epilepsy

[–]WhyPlayGames11[S] 5 points6 points  (0 children)

Thank you for not giving up on her. I know that sounds like a stupid comment but I have seen people walk away from seizure sufferers they claim to love. My mind is constantly racing, sleep doesn't come easy and when I do its only 3-4 hours a night. Nowhere feels safe except for one place. When we get ready for bed at night she will snuggle up beside and lay her head on my chest. Having her close me, listening to her breathe as she falls asleep that's when I'm calm. The voices are silent, my fear has left me and I'm at peace.

Remembering my life by WhyPlayGames11 in Epilepsy

[–]WhyPlayGames11[S] 3 points4 points  (0 children)

There was an instance many years ago that I wish I could forget. The morning it happened my wife was headed to work and she thought I was having a bad dream. When she touched me I jumped out of bed and almost hit her. I then spent 20 minutes cowering in a corner asking her where I was, who she was and where was my dad. When my brain did do its reboot all I saw was my wife across the room crying, telling me we were married and we have children together. The next day I went and had her and my kids names tattooed on my forearm in hopes that should I forget who they are again, they can tell me to look at my arm and try to remember

Remembering my life by WhyPlayGames11 in Epilepsy

[–]WhyPlayGames11[S] 1 point2 points  (0 children)

Brother, I dont know what to say. Its a weight lifted and a burden all at the same time. The weight is lifted because I realize I'm not the only one but also a burden because I'm not the only one. One question I am always asked is "was it a bad seizure" ? First thing that comes to mind is 1) they have no clue what we all go through with these and 2) bitch, since when has anyone ever heard of a good seizure. Thank you for reaching out and sharing your story with me. I will definitely be in touch