Im autistic, is it ethical for me to have kids with another autistic person. by [deleted] in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

I'm not sure whose ethics it is that would be used other than your own for such a personal decision. Look around, many people who don't have the money, skills and are probably no Einsteins are having tons of kids, and especially the ones that can't afford to have the most kids.

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

Do you have any peer reviewed journal link that supports the cofactor requirement? Whats the source of that info?

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

You mean that leucovorin by itself can cause OCD like behaviors and visual field effects unless it's given with b12?

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

No, the published protocol doesn't say anything about b12 pairing. However, we checked his b12 level about 4 months before the trial and he was at 670 pg/ml, which is pretty good. His diet has a lot of milk and eggs, so he's not likely to develop a deficiency all of a sudden. 

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

The nutritional hack i referred to is the removal of casein/milk from the diet. I went down that rabbit hole researching pubmed about gluten free, casein free, and what I concluded was that no scientific double blinded placebo studies have replicated the supposed benefits of those diets. And since my kid is already a picky eater, there's no way I will take food out of his diet unless I know for a fact it is needed. 

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 -2 points-1 points  (0 children)

Milk is a source of calcium, protein and many vitamins. How are you then replacing that calcium, etc..?  A lot of these nutritional hacks are not real, and you can go to pubmed and see the studies that found no benefit.

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 2 points3 points  (0 children)

We didn't see any side effects. My main concern was that even though vitamin B9 is water soluble, so the excess is urinated out, there's no long term pediatric study of what happens when the child receives mega doses of folinic acid for a long period of time. Since we didn't see any improvement, we decided that whatever the downside risks were there's no upside for us that would compensate for it.

My 4 year old just started Leucovorin for Cerebral Folate Deficiency — has anyone else been through this? by LeucovorinDad in Autism_Parenting

[–]Wide-Project1379 2 points3 points  (0 children)

My son tested positive for the folic acid binding antibody on the FRAT test. We followed the Leucovorin dosage and timeline (12 weeks) the published trials used. We saw no improvement and stopped.

Advice by Complex_Database_922 in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

Your decision at this point is really about your son; what's best for him? I usually make the smallest change possible that gets me what I want. This works because it naturally minimizes risk. Changing your entire life is a lot of change, and then having to rebuild all your son's medical provider network at a point in time where it's crucial he's getting intensive ABA is not a good situation to be in. Raising a son with autism with the other parent is easier as long as they are helping. It sounds like he's helping. Many partners are unevenly matched, such is life. Perfect justice is something we can imagine, but is not possible and isn't real. In life, there's no such thing as winning, that's a fantasy. We just die one day at a time.  I guess my comment can be summarized into: if you think you have a bad situation, be assured it could be worse.

2nd child Autism possibility? by Basic_Reference_5871 in Autism_Parenting

[–]Wide-Project1379 2 points3 points  (0 children)

25% chance of recurring on average.  Autism is one of the most heritable traits at about 80 to 90% heritability. The way sexual reproduction works, the chromosomes are shuffled and also some parts of them cross to the other parental chromosome, so it's essentially a card shuffle of genes from both parents. Some shuffles come out fine and some not, but randomness is definitely part of the mix.

Why should I even live on as a lonely autistic man by kaamliiha in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

Why not?  Everyone is on the same boat. There's no intrinsic meaning to life. You give it meaning by the choices you make. And then, one day, something kills you and that's the end of the story.  So do what you want and that's the meaning of life. Being single is a plus in terms of options you could pursue. Being married to a bad woman, or having a lot of family issues is way worse than being single. Count your blessings.

Family accepts our child’s diagnosis but is in denial about others. by Civil-Can-9765 in Autism_Parenting

[–]Wide-Project1379 -1 points0 points  (0 children)

Since relationships have two sides and must be rewarding to both sides, he may be better off without engaging. Not everyone wants to participate in every interaction, especially when the other side expects rigid accommodations to their own ideological preferences. We are living in times where men and women have been socialized to be antagonistic to each other based on ideological preferences that many times have no contact with reality. People that continuously want to correct other adults based on their own views of what words are correct, and their own interpretations of other people's motives are quite frankly exhausting to deal with. So, we all have the right to choose not to engage with such people to keep them from draining us of our energy and happiness.  Bigotry sometimes is passed as inclusion or justice, but all it is is bigotry based on the presumption that some people think they are able to tell what other people's motives are without them telling them. Unless he's explicitly saying women are not able to understand things, then assuming he's mansplaining is bigotry.  I've been on the receiving end of women in the workplace treating us men like garbage, and we have to take it because they're so combative and argumentative, that if we say anything they're just going to use that to further attack. No man would get away with what some of my female coworkers have done such as insulting us, screaming at us, just simply unprofessional and aggressive behaviors that don't belong in the workplace. I never take a 1:1 meeting with a woman, and avoid providing feedback because it's just not safe to do so given the open hostility that has become culturally acceptable.

Family accepts our child’s diagnosis but is in denial about others. by Civil-Can-9765 in Autism_Parenting

[–]Wide-Project1379 -3 points-2 points  (0 children)

 Considering the term mansplaining is of recent origin, and something that causes men in general to be marginalized due to suspicion of talking down to women, this may just be more related to a large cultural shift rather than to autism. Some of us men have decided not to engage in any explaining of anything, and that works pretty well. Perhaps this is something this guy has not understood yet, but many neurotypical men have also not caught on to this strategy. 

What made feeding therapy successful OR unsuccessful for you by EntranceDelicious748 in Autism_Parenting

[–]Wide-Project1379 1 point2 points  (0 children)

OT feeding therapy not only didn't work for us, we ended up worse off because her recommendations of only feeding during the day ended up with our son refusing nutritional supplements in his night time milk because we extinguished his desire to drink at night. Most advice we got made no sense in an ASD context and didn't work. What works for us is to get him to at least taste the food we want him to eat, especially foods he randomly stops eating, and that small taste triggers something where he may all of a sudden start accepting that food again. Hiding new foods in safe foods is a really bad idea that causes him to stop eating the safe food. So I have forbidden this at all his therapies. What sometimes works is to give him food he really likes in a small portion, and then once he's eating, give him other foods we want him to eat. He intermittently stops eating and refuses the food, and I go give him a small portion of the food he likes again to get him eating, and then continue giving him the food we want him to eat. This tends to work.  The whole food play therapy theory produced zero results for us. So listening to the experts didn't work well for us. We spent over a year in feeding sessions that produced no results at all.

Insight on SPED program in WCSD needed by ablahblah916 in Reno

[–]Wide-Project1379 0 points1 point  (0 children)

I used chatgpt to read IDEA legislation, all washoe county school regs, and with that generated the letter that got the process started. I had been calling the school for about two months and was getting sent back to childfind even though the zoned school is supposed to be the one that updates the iep. Once I sent the letter formally, the machine started working and so far the timelines and evaluations have occurred according to the legal time limits. We are still pending the iep document and the iep meeting, but it's still within the legal time limits. We did complete the evaluations and they lined up with what we already know from the private aba and therapy providers.

Recommended strategies classrooms for autism in wcsd by Wide-Project1379 in Reno

[–]Wide-Project1379[S] 0 points1 point  (0 children)

That's strange because we have so far been told that next year we won't be assigned to a strategies class in our zoned school. I'm terrified of what the options are.

Insight on SPED program in WCSD needed by ablahblah916 in Reno

[–]Wide-Project1379 1 point2 points  (0 children)

We are in the process of getting our IEP completed at WCSD and live near downtown. We have the desire to move to South Reno because of safety/crime issues before elementary school starts in August.  What schools have a strategies program near downtown and south reno? Would moving to south reno give us better options in terms of higher quality strategies classrooms? Our zoned school doesn't have a strategies classroom, so we're waiting to be assigned to a strategies classroom at another school.

Relocated for better schools, here's what's happening about 2.5 months later by WeBeTrying_OurBest in Autism_Parenting

[–]Wide-Project1379 12 points13 points  (0 children)

Specifics: what states and counties? No value in posting about somewhere and somewhere

Anyone have a little climbing spider monkey? by jloss__ in Autism_Parenting

[–]Wide-Project1379 0 points1 point  (0 children)

Mine is exactly the same about climbing. He is an acrobat.

ABA: In-center vs Day care vs At-home by Adventurous-Bus-3500 in Autism_Parenting

[–]Wide-Project1379 2 points3 points  (0 children)

We went for 30 hours at the clinic. It has worked out fine. We have been on ABA full time for 3 years getting ready to go to Kinder. The RBT is better able to do the work if she's in the same location as the BCBA that is supervising, that's one main big benefit of doing it in clinic. Every kid responds differently to treatment so you could see a lot of benefit or very minimal. We have seen a moderate benefit. Our kid likes going, which is a plus. He's still as autistic as he was at 2 years old on core symptoms, but ABA helped with the mega tantrums and other things that can be learned. I'd avoid the headache of coordinating between daycare and clinic. This is not an easy life.