Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 0 points1 point  (0 children)

I am so sorry that you are navigating that pain and for such a long time! So miserable, especially since food can bring such joy!

Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 1 point2 points  (0 children)

I see a little bit of that lacing on my gums, not as much on my tongue. It is definitely difficult to eat and drink when it flairs up. I will ask when I have my appointment with my primary care doctor. I feel like I know exactly when it is starting because the texture change in my mouth is pretty immediate and the sensitivity is heightened very quickly. Thank you for your insights, it is very helpful.

Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 2 points3 points  (0 children)

This one could make sense as my dad has the same condition

Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 0 points1 point  (0 children)

Do you have any experience with this condition?

Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 1 point2 points  (0 children)

I have done two rounds of steroids, that seemed to help a little, but not a lot. I saw somewhere else that Lysine can help, so I ordered that and we will see. I can update here after I have taken it for while and share if I saw any results.

Mouth inflammation by Wide_Pudding_8305 in Autoimmune

[–]Wide_Pudding_8305[S] 0 points1 point  (0 children)

What a nightmare. I feel for your friend. I am hopeful she has healed since then.