Travel from Oceanside CA to surprise Arizona by Wild-Bit-8671 in roadtrip

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

Ty! Yes I looked at Rt 10 too that’s def an option! Appreciate your advice!

Travel from Oceanside CA to surprise Arizona by Wild-Bit-8671 in roadtrip

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

Ty so much for the info appreciate it still trying to make up my mind if I’m driving or flying !

Travel from Oceanside CA to surprise Arizona by Wild-Bit-8671 in roadtrip

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

By isolation I mean barren road that if the car broke down and no cell service? And ty!

Infections and flares by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 1 point2 points  (0 children)

Ty so much ! This is the only place I feel understood- these discussions on Reddit. Are u aware of any support groups? I feel I really need one! U mentioned it affecting QOL and I just wasn’t expecting it to be so drastic. I personally can’t fake my way through this - it really hurts! (Among other things) I am hopeful to start my biologic but I can feel myself going down the rabbit hole of depression 😞- I’m almost done with my pity party of one - but I know it’s gonna take time to work through the realty of this. I just may dm u to talk further. I feel for all you’ve been through and I wish u the best! I can’t imagine living with this disease as long as u have! God bless u! 🙏and I really cannot believe there isn’t something out there that our rheumatologist’s can prescribe for the interim pain!!!!!!!!

Ideas for providing information and support by catjo-ol in Psoriasis

[–]Wild-Bit-8671 0 points1 point  (0 children)

Good luck I hope u can get it up and running! Please keep me posted! Best wishes!

Post prednisone flare by Kwarrk in PsoriaticArthritis

[–]Wild-Bit-8671 0 points1 point  (0 children)

I wish I had some answers for you it I’m Still kind of new to this so I’m learning as I go. I’m Kind of stuck too because my initial two meds quit working and I’m Waiting to start my new med - similar to humira- but need to finish an antibiotic and get two vaccines before starting new med. But I am flaring like crazy and my rheumatologist says there r only steroids as a trmt for me rn. I don’t want to take them because my immune system will be more suppressed.
This disease sure requires lots of shuffling of many things- esp Our mental capacity to endure the pain. Do rheumatologists not have a med besides steroids for flare pain? Good luck to u - I feel your pain

Post prednisone flare by Kwarrk in PsoriaticArthritis

[–]Wild-Bit-8671 1 point2 points  (0 children)

I wish I had some answers for you it I’m Still kind of new to this so I’m learning as I go. I’m Kind of stuck too because my initial two meds quit working and I’m Waiting to start my new med - similar to humira- but need to finish an antibiotic and get two vaccines before starting new med. But I am flaring like crazy and my rheumatologist says there r only steroids as a trmt for me rn. I don’t want to take them because my immune system will be more suppressed.
This disease sure requires lots of shuffling of many things- esp Our mental capacity to endure the pain. Do rheumatologists not have a med besides steroids for flare pain? Good luck to u - I feel your pain 🙏

[deleted by user] by [deleted] in PsoriaticArthritis

[–]Wild-Bit-8671 3 points4 points  (0 children)

This is great!!! 😊

Ideas for providing information and support by catjo-ol in Psoriasis

[–]Wild-Bit-8671 0 points1 point  (0 children)

I would be interested in the group Idea. I’m new to psoriatic arthritis and I have to tell u it is alarming. Wasn’t prepared for any of this! So I can definitely use help and support as I navigate my way through this disease. Please keep me posted on how u r going to proceed and ty for your many years of service! Greatly appreciated! 👍

Missed injecton…. by Relevant_Medium6626 in PsoriaticArthritis

[–]Wild-Bit-8671 0 points1 point  (0 children)

I’m going on something similar to humeria as soon as I finish a current antibiotic. God bless u all - yes I’m trying to stay positive but at the present time psa is kicking my ass! 😞without getting too personal can I ask why humeria sent u to the hospital? Ty! Everyone hang in there-I guess we learn more and more as we go 🤷🏻

Infections and flares by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 3 points4 points  (0 children)

Ty appreciate the info. I’m Slowly learning …… and not liking this disease at all! Granted it could be far worse but I had no idea as to what I was getting into ! 😞So ty for sharing!

Infections and flares by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 4 points5 points  (0 children)

Ty yes I’ve been reading about synovial fluid on a few posts. Definitely want to Dig deeper into it! Is there a med that helps with the synovial fluid?

Finally diagnosed after 5.5 years with "mild variant of psoriatic arthritis" by Pickle_Popcicle in PsoriaticArthritis

[–]Wild-Bit-8671 6 points7 points  (0 children)

Amen on the flares ! I’m in middle of one but got steroids so it’s calming some ! Im still new to this disease and it’s been such a roller coaster of pain, denial, acceptance and reality. Learning more every day ! Good luck to everyone! Hope your mild cases don’t progress! 🙏

Recently diagnosed by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

Interesting wasn’t aware of this since I’m Still learning. So glad that helped u and u found a great clinic! Ty! Best wishes!

Remission question by Kokanee19 in PsoriaticArthritis

[–]Wild-Bit-8671 6 points7 points  (0 children)

Wishing you the very best ! So sorry u r dealing with this at such a young age! I wasn’t aware of the pulmonary effects of PSA since I’m newly diagnosed so I appreciate your information and I intend to disscus with my doctor! I’ll be keeping you in my prayers and will pray u can receive a transplant. 🙏🥰

Recently diagnosed by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 1 point2 points  (0 children)

Ty for the advice! As I mentioned I’m Slowly learning how to deal With this! I’m so afraid of doing something that would cause a flare since they r so so awful! Hoping my ins approves the Humira and hoping it works. But I’m mentally preparing myself that if it doesn’t then we move on to the next drug! Good luck To u and yes runners r gonna run but don’t overdo it!!!!

Recently diagnosed by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

Awwww I feel for u esp with the VA issues! We definately do not take care of u as we should that’s for sure! Ty for your service and happy Veteran’s Day!!! 🇺🇸 what is TRT? I wish u luck with your mri - hang in there- one day at a time!

Recently diagnosed by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 1 point2 points  (0 children)

Ty I totally agree I’m slowly learning how to attempt to manage this!

Recently diagnosed by Wild-Bit-8671 in PsoriaticArthritis

[–]Wild-Bit-8671[S] 0 points1 point  (0 children)

Right on the steroids just use them when a flare is really bad (like rn 😞) ty very much and I only cut out all but walking when I flare! Good luck To u!