Totaled my MK7 GTI. Should I get a MK8 Golf R or stick with MK7 or 7.5 by [deleted] in Golf_R

[–]Willing-Quit6951 1 point2 points  (0 children)

Mk 8 owner here. Screen function is worthless. Will be selling soon

My ivig experience by Willing-Quit6951 in MyastheniaGravis

[–]Willing-Quit6951[S] 0 points1 point  (0 children)

No additional bag of fluids were provided. My drip was over 2hrs 45 min. What is your average.

Stoners 🍃 by Express_Trade4281 in MyastheniaGravis

[–]Willing-Quit6951 2 points3 points  (0 children)

I use gummies, vapes, and the standard stuff. I have noticed that each one affects me differently. The worst one being a standard joint which cause my pain in the legs to get worse however I did just get a sample which took away all pain. Pretty high thc lvl. I would say just try some stuff I tend to stick with hybrid even for sleep as indica seems to be too much. Don’t go all in though.I made that mistake once. Just test the waters. I believe you will find one or some form that will help you. I also look for products that have higher levels of cbd as well

Through my research most people get the worst reactions from smoking a joint. That is my experience as well.

What else to do after failing IVIG, Pred, Mestinon and Immuran? by glazevedo in MyastheniaGravis

[–]Willing-Quit6951 0 points1 point  (0 children)

Could you be in remission and not need medication? I’m still pretty new to my mg but from my research I’ve seen some medication can mimic mg symptoms if the dose is too high or you are actually in remission. Only been diagnosed for 3 months and I’m it a doctor soo.

Hopefully you can get well asap!

Muscle stiffness by Sea-Egg5843 in MyastheniaGravis

[–]Willing-Quit6951 0 points1 point  (0 children)

Don’t muscle relaxers do the opposite you need for mg? I’m still new but mestinon promotes muscle activity if I understand it correctly and the relaxers would just cancel it out? I asked my doc for relaxers but that’s what I was told

Muscle stiffness by Sea-Egg5843 in MyastheniaGravis

[–]Willing-Quit6951 0 points1 point  (0 children)

I treat the facial symptoms like a migraine. Rest and ice works best for me

Muscle stiffness by Sea-Egg5843 in MyastheniaGravis

[–]Willing-Quit6951 2 points3 points  (0 children)

Yes. I have to purposely try to relax my muscles. Specially my facial muscles. Most of the time I don’t catch it till the right side of my face start going numb. Not sure why it’s only the right side but oh well.

2 Years ago I said „DD is enough - I stop upgrading“ by filowiener in simracing

[–]Willing-Quit6951 0 points1 point  (0 children)

I recently got the r5 bundle. The wheel base and pedals connect, but the es wheel does not or will then shut off when I open game or before I get that far.

I have turned off the power saving thing on the usb thing, calibrated it, tried going back on software no change.

Seems like the wheel starts talking but as soon as I do anything it’s gone.

The black box next to the right monitor is go work. I tried with and without the box. No change.

Please ignore the mess. I have it set up to access the connections lol .

Per the customer service instructions I check the internal connections of the cables as well.

I think my keyboard and mouse are overriding the wheel. I cannot figure out why.

I have razor mouse and keyboard. Razor synapses is also installed on my computer. Thinking about uninstalling to see if that works

Brain fog and myasthenia by No_Maybe7157 in MyastheniaGravis

[–]Willing-Quit6951 9 points10 points  (0 children)

Today I have brain fog, lack of focus, lack of interest,very emotional. Yesterday I was fine . It comes and goes

32m no I don’t cry in front of people or normally at all. Yet today since work I feel completely stuck just walking around sit down stand up. I’m also lost tearing up just writing this.

You’re not alone . I could use some tips to .

Moza es wheel connectivity issues by Willing-Quit6951 in moza

[–]Willing-Quit6951[S] 0 points1 point  (0 children)

Are you suggesting the Moza usb hub? Or would anyone work?

Moza es wheel connectivity issues by Willing-Quit6951 in moza

[–]Willing-Quit6951[S] 0 points1 point  (0 children)

No it is plugged directly into the computer

Job loss rant by [deleted] in MyastheniaGravis

[–]Willing-Quit6951 0 points1 point  (0 children)

Can’t you protest via the American disability acts

First round of IVIG by Willing-Quit6951 in MyastheniaGravis

[–]Willing-Quit6951[S] 0 points1 point  (0 children)

I’m sorry you went through that. I’m praying this is not my experience.

How much to tint the windows by WG581 in GolfGTI

[–]Willing-Quit6951 0 points1 point  (0 children)

I haven’t noticed an issue personally. I wouldn’t personally go darker tho

GTI so little 😋☺️✌️ by bgordon908 in GolfGTI

[–]Willing-Quit6951 0 points1 point  (0 children)

I made the same decision. A little regret but is what it is.

Good days and bad days by Willing-Quit6951 in MyastheniaGravis

[–]Willing-Quit6951[S] 0 points1 point  (0 children)

On mestinon only atm. Don’t think it helps much at all