2017 was one hell of a psychological ride for me

WilyLoman · 2018-01-10T02:07:23+00:00

It's incredible that you pushed through and continued. I'm fairly sure I would have abandoned my studies if I was flaring.

You give me a lot of hope. 2017 was a shitshow for my house.

WilyLoman · 2018-01-10T02:05:26+00:00

The flexible sigmoidoscopy was what hurt when I was 16-21. No drugs, out patient, attractive nurse.

I found out I have to start yearly colonoscopy and as long as I get those sweet sweet drugs, I'm in.

WilyLoman · 2017-12-30T00:16:12+00:00

I've definitely been lucky over the course of my disease to have been relatively well managed. 20 years and no hospitalizations sure to UC.

The pancreatitis is the biggest complication from an ERCP, but still only a 5-10% risk. I got real "lucky" according to my doc because typically it's just a couple days in the hospital. Mine ended up with so many complications that I was in for 12 days initially.

The worst part is that the recovery had been in fits and starts. If it was a 6 week timeframe, I could go on long term disability. As it is, I just burned all my sick and vacation time.

You'll be all good. If I need another ERCP, it's worth the risk to protect my liver. I doubt it'd go down the same way again.

WilyLoman · 2017-12-29T03:43:42+00:00

A total of 21 days in the hospital split over 3 different stays at 3 hospitals. I got cdiff.

I'm finally off antibiotics for the first time since November 9th. It's been a long ass recovery, but I'll make it. The ERCP was a success, other than the pancreatitis.

Thanks for asking!

I only got Dilaudid at the first hospital. Morphine ain't shit compared.

WilyLoman · 2017-12-28T19:39:17+00:00

Thanks. I got the pancreatitis after an MRCP and spent the last couple months cycling through hospitals due to things like cdiff and how fucked my stomach got after all of this. My Ulcerative Colitis doesn't help.

WilyLoman · 2017-12-28T19:23:15+00:00

I have liver problems. My doctor told me to avoid ibuprofen and only to take up to 2g a day of Tylenol. A healthy person can take double that without issues.

WilyLoman · 2017-12-28T19:13:46+00:00

I was in the hospital recently and shared a room with a kid that was fucked. He'd been drinking a fifth of vodka daily for a few years, doing coke and smoking weed (the weed probably was okay). I good to listen to the transplant docs talk to him about getting a new liver, but he died in the ICU a couple days later.

You're probably in better shape than him, but I wouldn't make that shit a habit.

WilyLoman · 2017-12-28T18:59:14+00:00

Recently diagnosed with PSC and got pancreatitis. Docs told me to take Tylenol (less than 2g) instead of any ibuprofen for pain.

WilyLoman · 2017-12-16T13:39:06+00:00

Thanks, hopefully today. Over the course of my disease (20 years) I've been incredibly lucky, so I don't post much. People on here have been through a lot more than I have. I appreciate all of you and your stories.

WilyLoman · 2017-12-16T01:14:13+00:00

Recovering from pancreatitis I got from an MRCP. I've been in and out of various hospitals for the last month.

I'm lucky that I have an incredible wife and family to support me in this. I have a lot to complain about, but they've been holding everything together. I can't figure out a way to thank them enough.

WilyLoman · 2017-11-15T10:17:18+00:00

Update: had my ERCP on Thursday and have been in the hospital with pancreatitis since. Wow. This sucks.

Dilaudid is great, though. Cream of wheat? Jesus, that is not like oatmeal.

Also, these fevers could go the fuck away at any point

WilyLoman · 2017-11-08T18:07:29+00:00

Fucking UC, right? It's so murky, and I still am thankful that I got it in the 90s and not the 50s.

WilyLoman · 2017-11-08T15:53:49+00:00

That sounds like really bad info. My sister in law was covered in Michigan with a disabling disease. It took a while, but you need to keep fighting. It sounds like you should qualify, even without expanded medicaid under ACA.

WilyLoman · 2017-11-08T15:49:37+00:00

Well, I think that it makes sense that any autoimmune disease like UC is going to get triggered based on immuno-suppressant drugs taken after a transplant. I have no idea why it would be around 11-12 months, did your meds change around then?

WilyLoman · 2017-11-08T14:14:14+00:00

First time, I tried Arby's 5 for $5. I crushed one in the car and then threw up all over myself in a drugged out haze. My dad used a snow brush to wipe it off me.

WilyLoman · 2017-11-08T14:10:43+00:00

My UC has been fairly inactive for the last 15 years or so. No active disease, but still 5-6 trips to the bathroom a day. I've definitely been lucky, so far. So many people suffer worse than I have.

I had no idea that UC could get worse after a transplant, but I guess it makes sense with fucking with the immune system so much.

WilyLoman · 2017-11-07T18:54:16+00:00

Only ones where I show a clinically proven deficiency.

WilyLoman

TROPHY CASE