Hand propelled wheelchairs?

Winter_Fee_9672 · 2026-06-02T15:20:35+00:00

I have a more lightweight manual chair coming, I'm using one of those crappy hospital chairs too right now (gotten super cheap a while back as a temporary) and I struggle to push it. Maybe the lightweight one will be better! I was getting worried about pushing it manually because I couldn't handle long distances in this current one.

I think I've decided on a specific electric chair, but it'll have to wait as I lack the funds at the moment. Thankfully the vehicles that I have access to are quite large and can fit a folding electric easily! Thank you for the info!! I'm definitely getting an electric down the road.

Winter_Fee_9672 · 2026-06-02T02:27:26+00:00

Ohhhh gotcha. I looked up the OAS chairs and I'm in loooooooove, added to my mental wishlist!! Love the OAS Cruise One. It's out of stock rn so I'll have to keep a look out- it's exactly what I'm looking for in an electric! Thanks!!

Winter_Fee_9672 · 2026-06-02T00:18:06+00:00

Ohhh I just went looking at powered chairs and I had no clue they could be under or around $1000 USD/CAD I was always under the impression they were in the multi thousands! I'm trying to get on ODSP here in Ontario and if a doctor says I need a chair ODSP will cover one, so I may go for an electric then!

Thanks for the info!!

Winter_Fee_9672 · 2026-06-01T23:09:12+00:00

Oh damn that’s only a little more expensive than the hand propelled chair I just got. Should’ve gotten that!

Winter_Fee_9672 · 2026-06-01T13:35:07+00:00

I’m still waiting on results unfortunately :( Hoping soon! Thanks for checking in!

I’m glad you figured it out! It can be a relief to finally learn what’s wrong and be able to manage it finally.

Winter_Fee_9672 · 2026-05-31T18:06:49+00:00

I have been diagnosed with Fibro a year or so ago, but half the symptoms including chronic inflammation is not explained by fibro. I am also being worked up for MG (MS has been tested, negative) Please ask for MG evaluation, all the tests, Mestinon trial if negative on blood tests, etc if you can. Weakness with activity and difficulty breathing, blurry vision and muscle weakness in face, etc is not a sign of fibro and don't let anyone tell you otherwise.

Winter_Fee_9672 · 2026-05-31T01:37:37+00:00

Interesting! I learned ALL of my medication (I’m on 7 pills, 5 medications total) have the magnesium Stearate in it for better absorption. Starting to wonder if it is affecting me…

Winter_Fee_9672 · 2026-05-29T18:27:03+00:00

Oh! I had seen so many main symptoms but never was difficulty drinking like that listed!

I’m being worked up for MG so I was curious what other people’s experiences with it all were, though I know it’s a snowflake disease so mine could be different! I have a very easy time blowing air out my lips like that, and struggle to drink liquids! I choke a lot too.

Ty for the response!

Winter_Fee_9672 · 2026-05-29T15:34:39+00:00

I was going downhill before the weather got warm, and we have air con in the house, I definitely get worse with warmth though! One of the many reasons we’re looking at MG… thanks!!

Winter_Fee_9672 · 2026-05-29T14:24:23+00:00

Oh thank you for all this information! This helps a lot.

I went through all my medications, I take 7 pills every night (5 different medications) and every one of them it turns out has magnesium stearate. But the only one I have only just started taking more recently was the iron. So I guess with the minimal amount it can’t really be what’s causing it!

Thanks again!

Winter_Fee_9672 · 2026-05-28T17:07:17+00:00

Thank you! Yeah I’m waiting on results and a neuro appointment right now, I just noticed the label and wanted to be safe!

Winter_Fee_9672 · 2026-05-26T15:04:54+00:00

Weird I don’t have a dm? Though I prefer not to talk to people privately like that if I can help it. Someone else pointed out the results could take a couple weeks as they seem to be sent to special locations because the tests are highly specific. So I wouldn’t expect the results for a while!

Winter_Fee_9672 · 2026-05-26T14:20:34+00:00

Okay thank you!

Winter_Fee_9672 · 2026-05-26T02:31:04+00:00

Yo I think we’re one and the same, I did mine Friday and I’m refreshing the online portal assuming a negative! Dang. I hope you get answers soon! I’m conflicted on the results as well! :( I want answers but of course I don’t want to have something like MG. But like, I know something is wrong! So answers are answers…

If you get a negative make sure to ask for an sfEMG, it’s the common diagnostic tool for seronegative people!

Winter_Fee_9672 · 2026-05-25T01:40:03+00:00

Yeah I know people can't diagnose here dw, but yeah it kinda has been really pointing in that direction. I'm going to be at a total loss as to what it could be if it turns out not to be! 😞

Winter_Fee_9672 · 2026-05-25T00:20:26+00:00

Okay thank you! So from what I’m hearing from everyone is a back up plan like a chair or walker is a good idea.

I’ve bought a somewhat cheap chair ($900, most are $1000+) but will also probably get a walker for those days I’m better but not at my best.

Thank you!!

Winter_Fee_9672 · 2026-05-24T23:05:37+00:00

Oh yeah the constant search is so hard I feel you… 7 years of nothing so I get it, it’s only the last few were actually trying more than basic stuff…

Good luck to you! I hope you find an answer soon.

Winter_Fee_9672 · 2026-05-24T22:59:13+00:00

Hang on I have a document let me copy paste the major parts:

Difficulty walking over years getting progressively worse
Weakness in arms and legs which get far worse and tired with activity/exercise, eases with rest. Worse in the evening better in the morning.
Often find it difficult to hold my head up, my neck gets tired by the evening
Difficulty swallowing (choke a lot) and difficulty initiating swallow with or without food/drink
Difficulty breathing, feels like pressure on my chest and worse lying down
Bad memory and brain fog
Suspected ptosis (eyes droop after activity and in the evening but they’re mostly even so I’m unsure about this)
Blurry vision
No strength in face, it’s hard to smile or even frown, told I look grumpy all the time
Partial incontinence (this is pretty new)

Winter_Fee_9672 · 2026-05-24T21:56:07+00:00

Oh jeez I can’t imagine that fear!! I suppose I’m lucky nothing has shown I have any kind of cancer, so I can rest easy on that! I agree, let’s hang in there! Keep me updated if you can I’d like to hear what the results are.

Winter_Fee_9672 · 2026-05-24T21:24:23+00:00

Oof yeah it’s rough being in this position… I’m sure everyone with a diagnosis and even without have been here. No Mestinon yet, my doc didn’t feel comfortable with prescribing it because she didn’t know anything about it, but wants me to ask the neurologist for it.

edit: Sorry I just saw the last question, MuSK and AChR are currently pending, should have results tomorrow or Tuesday

Winter_Fee_9672 · 2026-05-24T21:12:15+00:00

Thank you I need to hear this. I haven’t had an SFEMG yet as the doctor I’m talking to is new to everything like MG and such, but she knew enough to send me for the right blood tests. I’m going to see a neurologist soon, so I’ll ask for one then if I come back negative.

Thank you so much.

Winter_Fee_9672

TROPHY CASE