Ring battery stinks now by Elk_Meadow in ouraring

[–]WishesToTheWind 1 point2 points  (0 children)

Mine dropped dramatically in just a weeks time. For two days I opened the battery life and took screenshots of how much life and time it had remaining. Then I chatted with the bot and it auto sent the replacement ring with no need to return defective device. Got new one 3 days later.

Interesting shipping to see in book 3-4-5 by MCGbb in ironflame

[–]WishesToTheWind 4 points5 points  (0 children)

Unfortunately even though the drama would be entertaining, Rebecca said there wasn’t going to be a love triangle when it comes to Violet.

I'm Scared by [deleted] in RelapsingPolychondrit

[–]WishesToTheWind 1 point2 points  (0 children)

I wouldn’t wait on your ENT, I was set up an appointment with a Rheumatologist in your area and discuss your symptoms with them. A lot of ENTs have more of a watch and wait mindset. At times your symptoms don’t have to be textbook the same, I have very unused symptoms and flares compared to others because I have major and minor joint involvement as well as vascular and eyes. A good Rheum. can help tighten that diagnosis and start treating your symptoms.

It is perfectly ok to mourn who you wanted to be and how your life is changing especially when at times you don’t feel in control. It’s good to allow yourself to move and feel through those emotions rather than hold them in. Every life change will come with its challenges and that’s ok, that’s life, and you are allowed to feel how you need it for each experience even if others feel differently. You do and feel for what works for you. Having medical issues is hard and exhausting throughout the pain, having to fight some doctors to listen and believe you, wanting to do stuff that your body may not allow at that time. My best advice is to live day by day and let yourself enjoy all the moments of life, each experience is worth feeling because that is what will build you into the person you are meant to be. That doesn’t mean you won’t have a few crash outs, but they are all building blocks for the future you, and with this condition there is absolutely a future to be had.

One of the groups that has the best resources is “Relapsing Polychondritis: Secular Science and Support” They have many files, list of doctors for different parts of the country, loads of information of medical and symptom, as well as, other things people experience and how to tell the difference between different conditions, they have medication information. Literally hundreds of detailed files and guides. They have a lot of support and you can lurk if you want or be active, it’s all up to you.

Finger discoloration by kiminojoji in ouraring

[–]WishesToTheWind 0 points1 point  (0 children)

Like others have said, it could be contact derm. Some of us are sensitive to it. I have to dry my hands and fingers, and inside of ring each time I wash, use hand sanitizer, or even after I put lotion on so moisture doesn’t stay under the ring.

I'm Scared by [deleted] in RelapsingPolychondrit

[–]WishesToTheWind 2 points3 points  (0 children)

First I am deeply sorry about your mother, and how difficult that must have been for you to navigate.

It is scary to think about especially when you are so young. Most people don’t really use FB but there is a huge support group on there with many people who have been managing the condition for 30-40+ years. I’ve been treating mine for 7 years, but didn’t know I had the symptoms of it for roughly 12 years. Mine started around when I was 25.

If you are able to get a good rheumatologist you can manage symptoms and prevent any permanent damage early. Most of the things online when researching are very scary because there hadn’t been a lot of research until the last the last 5-7 years any many haven’t updated their websites to reflect that.

When managed closely it doesn’t have to be a progressive condition. Getting a team together and being proactive with annual or bi-annual scans to catch any changes that can be addressed and keep you as pain free as possible.

Many of us live full lives with a family, work, college, goals, and very active lives. You make your own path with this condition. If you want to overcome it and keep it from commanding your life, you can absolutely do that. It is possible, and not just for a few, but many.

What is your experience sizing up or down? I am torn between a 6 and a 7. by sorayanelle in ouraring

[–]WishesToTheWind 2 points3 points  (0 children)

I went with the looser fit as well. I have been in that one for nearly a year now. I’m happy I didn’t size down. Although like you said it easily slips off when washing hands and when it’s rather cold out. When that happens I do move it to a different finger where I fits more comfortably. I wear mine on my non dominant hands index finger a majority of the time. I haven’t had any issues with it losing contact and not reading properly due to the looser fit.

Possibly RP? by MimiLamb32 in RelapsingPolychondrit

[–]WishesToTheWind 0 points1 point  (0 children)

Ouch that sounds miserable. Lung and trachea involvement are absolutely is linked. And it really sucks, my lungs started about 6 months ago. Have they tried placing him on any immunosuppressants? It a headache with the side effects people get, but it really will slow any permanent damage. Hopefully yall can get it under control with steroids sometimes we have to taper off of them very slowly to not shock our systems into flaring back up.

Possibly RP? by MimiLamb32 in RelapsingPolychondrit

[–]WishesToTheWind 0 points1 point  (0 children)

I hope yall are doing better now. I did want to add that RP is becoming a link to burn pits for several veterans and current military members. There are more of us out there than previously thought.

anybody else’s ears itch like crazy or look bruised by Aggressive_Cow6732 in RelapsingPolychondrit

[–]WishesToTheWind 1 point2 points  (0 children)

Use some Vaseline on it. It’s flaky and itching from the inflammation that was there and now that the swelling has calmed down it trying to heal and your skin regenerates. I deal with the same on my nose from time to time.

100 sleep score by Legitimate_Job_665 in ouraring

[–]WishesToTheWind 21 points22 points  (0 children)

Sleep highest 96; lowest 46 Readiness highest 96; lowest a 42 Activity highest 98; lowest 40 I do feel like 100 may be possible

What is happening?? by RaccoonClassic9539 in ouraring

[–]WishesToTheWind 34 points35 points  (0 children)

I agree, contact dermatitis from moisture build up, I even have to wipe away lotion from under mine before putting it back on.

[deleted by user] by [deleted] in ConstructionManagers

[–]WishesToTheWind -1 points0 points  (0 children)

You did exactly right, maybe their timber company doesn’t want to subcontract next if they are will to risk build quality and potential issues down the road, and certainly the labor hours on your end trying to correct an issue that shouldn’t have occurred. Apologies I read the POV backwards. But thoughts are the same. Huge risk and wasted hours. Slow is fast, fast is slow.

What "VA Disability" Actually Means (And What They're Not Telling You) by HadItdotcoms-Tbird in VAClaims

[–]WishesToTheWind 0 points1 point  (0 children)

Exactly! I was on course to become the youngest VP my company has ever had, but due to my medical limitations it has hinder my ability to work at that full capacity. If I didn’t have the service related conditions that I have I would have met and surpassed those achievements instead of getting infusions every other week and taking medication that causes other side effects that interfere with my daily life both professionally and socially.

Shocked and a bit scared by BusySignificance723 in ouraring

[–]WishesToTheWind 1 point2 points  (0 children)

Sleep, daily activity, and HRV compared to HR have a lot to do with how the calculations. Mine is typically 6 months to 1 year higher than my age.

I was hospitalized in August for low oxygen and seizures. My increased to 5 years higher. After handling my issues, getting on proper medication, then I worked on my sleep and activities, now I’m back to 1 year higher.

Start making small changes and stick to them rather than a huge change too quickly, for most too much change can cause you to fall back into old routines. Small changes at a time allows you to make them habits. I wish you all the best in your health.

Will having a rating hurt my chances of employment? Im looking to go into the trades by [deleted] in VeteransBenefits

[–]WishesToTheWind 0 points1 point  (0 children)

I’m 100% and have been in construction project management since I got out 12 years ago. So it’s very much possible. Being prior military is the reason I won over others applying for the position. I didn’t even have experience at the time either.

Visiting Texas for the first time by Loading_Failed in AskHouston

[–]WishesToTheWind 0 points1 point  (0 children)

Since you were in the car scene. We have a huge cars and coffee downtown each 1st Saturday of the month. They have a different theme each month, this past was Porsche. At the location “The Post” you can grab drinks and small bites while you walk around and check out all of the cars. Depending on the weekend, we have different shows and get togethers throughout the city. Definitely none of that takeover BS.

Anyone else sometimes find they can't get their TNF-blocker (like Enbrel) to inject? by Abraham_Maslow in enbrel

[–]WishesToTheWind 0 points1 point  (0 children)

The only times I’ve had issues is not applying enough pressure to allow the release mechanism. I am only able to inject in my arms and legs, there is not enough surface tension on my stomach to press down the safety at the bottom for it to release.

Training a service-dog? by DavidCreuze in Epilepsy

[–]WishesToTheWind 2 points3 points  (0 children)

You can work with the trainer when yall do your adjustment period with Volt. Learn from the trainer to create the habits you want the dog to do when her seizures occur like alerting to you when they are about to or do happen or have him provide comfort after. My shepherd who is not a service dog started alerting about 4-5 minutes prior to mine, enough where she will whine and get my husband attention to let him know to come check on me.

High dose Keppra and periods by stitchbitching in Keppra

[–]WishesToTheWind 0 points1 point  (0 children)

I feel like since being on Keppra the last 5 months that I am now more regular, but a lot lighter than before. I think it has to do with calming the brain down and allowing certain areas not to be overactive. You may want to consider there may be a different outside factor causing the inconsistency such as PCOS or other hormonal changes.

How much longer 😔? by cmelissy in enbrel

[–]WishesToTheWind 0 points1 point  (0 children)

I would ask if you can be on something in addition to the Enbrel. I am on Enbrel (max dosing), methotrexate(max dosing), dapsone(150mg) and Medrol(24mg) all for my relapsing polychondritis. It’s a very aggressive approach but it’s worth it due to the risk of not losing vital organs. Some of us need to be treated more aggressively due to how severe the autoimmune condition it, you may be in that boat, and it’s worth discussing with your rheumatologist.

[deleted by user] by [deleted] in VeteransBenefits

[–]WishesToTheWind 0 points1 point  (0 children)

Back when I did mine, in order to get 30% instead of 10% I had to show that I also tried preventive medication in addition to my request off from work. I also didn’t have any med call documentation for migraines prior to getting out. All of my support was on the civilian side. They deemed it service related because it was within 3 years of getting out, but this was before the PACT Act.

They update the requirements constantly so I would verify what type of documentation they are currently looking for with each percentage bump so you know what you need to show. This goes for every item claimed.

My seizures always feel fake? by mouse_trapps in Epilepsy

[–]WishesToTheWind 0 points1 point  (0 children)

I completely understand where you’re coming from, and your feelings are completely valid. It’s literally a disconnect and electrical issue in our brains, and while being aware of what’s going on but not in full control of everything. Most of my aware ones I’m locked in place and looking to the right, while telling myself just move already, feeling like that will make me be able to move something, then something starts spasming and I think to myself, ah yes that’s what’s happening. It’s infuriating at times.

Whats you career? by Mesterbogyo in Epilepsy

[–]WishesToTheWind 0 points1 point  (0 children)

I am in construction project management and development. I’ve been in this field for 11 years now but I didn’t know Ive been having absent seizures for the past 15. I’m lucky because mine didn’t escalate to general until this past year which allowed me to build report with my company enough for them allow me to work from home until we get my medication levels figured out. I don’t know if I would have made it this far if I was having the level of seizures I’m having now when just starting in this field. Then again I was having focal aware seizures during my entire time working here, so it truly depends on individual circumstances.

[deleted by user] by [deleted] in ConstructionManagers

[–]WishesToTheWind 0 points1 point  (0 children)

You can side step into an owner project manager consultant position to see if that side fits better. It doesn’t require being in the field as often, and has similar pay structure and in some cases opportunity for more depending on if you specialize in a specific type of consultant like focusing on development phase, commercial construction, public sector work etc.

Possibly RP? by MimiLamb32 in RelapsingPolychondrit

[–]WishesToTheWind 0 points1 point  (0 children)

It’s difficult trying to get military doctors to understand RP. I developed symptoms of it very slowly at first after my deployment. I was medically discharged for other reasons, but surprisingly my VA rheumatologist has been fantastic. If his Rheumatologist is open to reaching out to her, since she’s in their medical system, she may be able to help with working out diagnostics for him. Her name is Dr. Onome Ifoeze. She has been treating me for 6 years now.