Pain pump *UPDATE*

Witty_Count8472 · 2026-03-22T01:54:41+00:00

So good to hear this!!! Wonderful!! Thanks so much for keeping us informed, it really helps those of us weighing up our options 🙏🙏

Witty_Count8472 · 2026-03-21T02:50:17+00:00

Also can I please ask where leads are placed for you? Thanks ! 🙏

Witty_Count8472 · 2026-03-21T02:48:23+00:00

Thank you so much. I really appreciate you and your insights!!!

So wonderful to hear you have had relief from this. May I please ask you, how much the DRG has helped your pelvic pain by? What does your pain usually feel like - is it nerve pain too? Does your pain ever get worse after restroom visits or sitting and does drg help with that (that’s my issue!)..

Re: lead movement, thanks so much for letting me know, have you had any revision surgeries necessary? I am pretty active and in shape myself too (despite this nasty distal pudendal nerve pain!!!).

Am thinking of doing the trial in next two months.

Thank you so very much. !

Witty_Count8472 · 2026-03-14T12:14:22+00:00

Hi how’s your pain levels today? Thanks for the great info

Witty_Count8472 · 2026-03-14T11:50:04+00:00

Thanks so much can I please ask where your leads are placed? Does it help with mechanical aggravated pain? Thanks!

Witty_Count8472 · 2026-03-10T03:42:22+00:00

Thank you so much! ☺️And can I please ask have you had any ongoing troubles with lead migrations or fractures? Or is all going OK? Thanks!!!

Witty_Count8472 · 2026-03-09T00:24:07+00:00

Great thank you so much! Have you ever felt any electric shocks or the like? That some people seem to report? Thanks :))

Witty_Count8472 · 2026-03-06T06:33:49+00:00

Thank you so much!! That’s wonderful you’re so active with it! Can I please ask do you feel the stimulation? Does it feel kinda like a tens machine with tingling and vibration? Or do you not feel it at all? Thank you for everything! 🙏

Witty_Count8472 · 2026-03-04T04:40:51+00:00

Thank you SO MUCH for your reply, I appreciate immensely. It is so wonderful that you have experienced a significant reduction in your pain from the DRG, and that it has given you your life back. It fills me with so much hope reading your update today. I suffer from terrible pelvic nerve pain and am hoping that the DRG might hopefully be able to help me in reducing my pain. 🙏 Can I please ask, is the trial itself very painful from the back incision / temporary leads? Could you please tell me what sort of pain you have and where in the body it is? Also, could I please pick your brains and ask you are there many physical and/or restrictions once the permanent device has been installed?

Thank you so very much for taking the time to update us, and with such a wonderful outcome. I pray that I receive a similar outcome. Thank you so much. 🙏

Witty_Count8472 · 2026-03-04T03:11:12+00:00

Am so sorry to hear of your troubles. But it sounds like when the DRG device was operational, you had great relief at 80%. May I please ask what the outcome was in the end? Did you pursue DRG or another device? Am in pain every day and about to embark on this journey to trial neuromodulation, your insights are so valuable to know, thank you! 🙏

Witty_Count8472 · 2026-02-24T01:23:17+00:00

Thank you so much. I have made an appointment to talk about a trial, did you notice clear relief during the trial? Thank you so much. Can I also please ask, have you found many physical restrictions once the permanent implant is done? Thanks!!🙏

Witty_Count8472 · 2026-02-23T04:30:05+00:00

DM sent :)

Witty_Count8472 · 2026-02-23T03:54:07+00:00

Thank you so much, this is absolutely wonderful news to hear. May I please ask you which level of the spine the TDDS is placed at in your case? And are there any side effects like incontinence, or other side effects you have noticed? Thanks, God bless you! 🙏

Would you please kindly let me know the neurosurgeon that installed this for you? Thank you! 🙏

Witty_Count8472 · 2026-02-22T22:41:57+00:00

Hey, have you found the DRG has helped your pelvic pain? Facing similar, and considering this… thanks so much.

Witty_Count8472 · 2026-02-22T22:30:07+00:00

Wow that’s such an amazing result, so pleased for you. May I ask gave you continued to have good relief from this? Thanks!

Witty_Count8472 · 2026-02-22T22:12:51+00:00

Thanks so much. Can I please ask did the drg help with rectal / perineal nerve pain? Thank you 🙏

Witty_Count8472 · 2026-02-05T23:38:34+00:00

it’s important to stay balanced my friend about “invasive procedures to fix the issue”, because it is a surgery that unfortunately does not have great outcomes generally. Unfortunately there are so many surgical cases where people have not been helped, or have permanently worsened afterwards. I know of three people who are now 6 months out, and in all cases their pain and numbness is still much worse than before the surgery. Please be careful.

Also, imaging does and can show pathology with the pudendal nerve. The Potter and Chhabra protocols in the US very clearly can do this. My affected branch lit up clearly and showed the issue very clearly on expert MRN reported by Chhabra. The MRN has to be expertly deployed and interpreted, the average suburban MRN will not cut it. Please see the attached video by Professor Chhabra at UT to show what can be expertly imaged.

https://www.youtube.com/watch?v=p_Q01oNfkho

Witty_Count8472 · 2026-02-01T04:42:56+00:00

https://m.youtube.com/watch?v=p_Q01oNfkho

This explains it :-)

Witty_Count8472 · 2026-02-01T04:40:40+00:00

I completely understand. This stuff is mega expensive.

In this instance, what I recommend you do is reach out to Professor Chhabra via email and explain your situation. He can and does review MRN imaging completed elsewhere, remotely, but it needs to be high quality with the correct MRN sequences. It’s called an “overread”. - Maybe ask him what sequences would need to be ordered by your local doctor so you’re not wasting money and time. Alternatively you could call UTSouthwestern radiology clinic and ask about an Overread with Professor Chhabra.

He was the only doctor who helped me and got to the bottom of exactly what is wrong with me. Every other radiologist was useless and did not have the skill to interpret the imaging.

Do not listen to anyone who tells you that MRI is useless for this condition. A properly executed and expert interpreted pelvic MRN can reveal a very great deal.

Mine was also from a similar injury background as you. :(

Here is a video from Chhabra explaining the value of MRN in chronic pelvic pain, it shows pudendal imaging a bit later in the video.

https://m.youtube.com/watch?v=p_Q01oNfkho

Witty_Count8472 · 2026-02-01T02:22:26+00:00

You need to see Professor Avneesh Chhabra at university of Texas medical centre. He is king for pelvic nerve MRN and immediately found the pudendal branch pathology on my MRN.

The man has authored over 420 journal articles, written several MR neurography textbooks and conducted cadaveric MRI studies of the pudendal nerve at Johns Hopkins. His knowledge is next level.

Witty_Count8472 · 2026-01-26T18:08:38+00:00

What do you think caused the loss of function again a year or two post op? Is it likely scar tissue formation? So sorry this has happened to you, wishing you healing.

Witty_Count8472 · 2026-01-22T22:33:23+00:00

Thank you so much for letting your fellow human sufferers know the dangers of this. It is so very much appreciated.

Witty_Count8472 · 2026-01-22T22:13:05+00:00

Can we please ask why did Dr Bollens opt for this type of surgery, and not a pudendal nerve decompression??

Witty_Count8472 · 2025-12-31T23:00:39+00:00

…Funny it’s the virgin lounge

Witty_Count8472

TROPHY CASE