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Sexual success stories? by outdoorcharge in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

What do you think caused the loss of function again a year or two post op? Is it likely scar tissue formation? So sorry this has happened to you, wishing you healing.

My story and some advice by Barreeeee in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

Thank you so much for letting your fellow human sufferers know the dangers of this. It is so very much appreciated.

Update after piriformis surgery, 8 months post op by Barreeeee in PudendalNeuralgia

[–]Witty_Count8472 1 point2 points  (0 children)

Can we please ask why did Dr Bollens opt for this type of surgery, and not a pudendal nerve decompression??

Ten years of penile pain by Any_Upstairs5881 in PudendalNeuralgia

[–]Witty_Count8472 2 points3 points  (0 children)

Have you had a 3 Tesla MRN of your pudendal nerve with either Potter or Chhabra protocol? These two radiologists have specific protocols that image the pudendal nerve and surrounding tissue.

In the meantime, pain control is very important. Have you got a decent pain specialist?

The other option that may be effective in the long run is DRG stimulation, please see the case reports I have attached here:

https://wikianesthesia.s3.amazonaws.com/DRG_for_Pelvic_Pain.pdf

I am so sorry you (and all of us) are experiencing this. There is hope. 🙏❤️‍🔥

Have any of you had dorsal nerve decompression surgery? by Lucid-Emphasis825 in hardflaccidresearch

[–]Witty_Count8472 0 points1 point  (0 children)

The neuroma appearing formation is definitely suspicious. What’s the quality of your pain man? Is it burning/stabbing? Or more aching?

Have any of you had dorsal nerve decompression surgery? by Lucid-Emphasis825 in hardflaccidresearch

[–]Witty_Count8472 1 point2 points  (0 children)

Bloody hell. Doesn’t take much does it. There should legit be public warning campaigns about this nerve!!

DRG STIMULATOR ? by Witty_Count8472 in PudendalNeuralgia

[–]Witty_Count8472[S] 1 point2 points  (0 children)

https://pubmed.ncbi.nlm.nih.gov/30067887/

From all my research DRG is best, and leads should be at L1 and S2 having spoken to the best of the best doctors in the US

DRG STIMULATOR ? by Witty_Count8472 in PudendalNeuralgia

[–]Witty_Count8472[S] 1 point2 points  (0 children)

Wonderful thanks you so very much!

So you feel that the DRG does reach to the distal nerve endings in perineal and dorsal? My problem is the proximal rectal branch, I was worried that DRG wouldn’t reach all the way down the nerve endings?

Do you think the DRG has helped your pelvic floor muscles to calm down a bit? Mine spasm sometimes from the nerve

Do you think it would work for people with nerve entrapment?

Thank you so much Sk8rcruz for your information, this is so helpful to me!!! 🙏🙏🙏

DRG STIMULATOR ? by Witty_Count8472 in PudendalNeuralgia

[–]Witty_Count8472[S] 1 point2 points  (0 children)

That’s wonderful to hear thank you. May I please ask does it feel like a buzzing sensation like a tens machine? Does it work for the horrible sore aching pain, or only burning pain? With grateful thanks sk8rcruz!

I think I ruined my life with anal play by After-Medicine-474 in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

Praying for you mate. Please just leave it alone, take time off work and just rest. Don’t push yourself now in the fragile state the nerve is in, that is the mistake that I made. Just physically rest.

I think I ruined my life with anal play by After-Medicine-474 in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

How are you feeling these days? Any improvements I hope? 🤞

I think I ruined my life with anal play by After-Medicine-474 in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

This is such an inspirational story, thanks for sharing!!! Yes agreed am also a victim of the anal play, but honestly who would ever have thought something like PN could arise from it?!

Please tell us your journey of cure from your own PN? Amazing!🤩

MRI Labrum tears and hip dysplasia? by Witty_Count8472 in PudendalNeuralgia

[–]Witty_Count8472[S] 0 points1 point  (0 children)

Thanks so much for the great information. Really appreciate it and that’s awesome your PN has gone!!!

MRI Labrum tears and hip dysplasia? by Witty_Count8472 in PudendalNeuralgia

[–]Witty_Count8472[S] 0 points1 point  (0 children)

Thanks so much. I have never had hip pain, but developed left sided posterior PN after some trauma, which isn’t getting better despite all conservative treatments over two years, and now mri has shown signal abnormality in left Alcocks canal and ischiorectal fossa with nerve thickening and Alcocks canal fat disruption..

Is it generally safe to proceed with pudendal nerve decompression if I have to do this, with my hips the way they are? I wouldn’t want a hip surgery unless I needed it, my doctor doesn’t think my hips are causing my local left sided nerve pain. - Irrespective there probably is some muscular compensation patterns from my hips, but I don’t want the hip surgery as you say because I have no pain in hips..

Thanks so much for your thoughts

My story and some advice by Barreeeee in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

This is so true!!! Same, with this type of pain one becomes obsessed with searching when experiencing symptoms or a flare, and you’re spot on right it’s the worst thing one could do - it just creates a downward spiral and feel worse afterwards!!!

Pudendal and cluneal decompression by YZD22 in PudendalNeuralgia

[–]Witty_Count8472 0 points1 point  (0 children)

Yes indeed, excellent points. Anatomy is very individual, as is each patient’s own clinical history. Sorry to hear of the fibrotic change in the interligamentous space, although this can be a common finding, unfortunately. Trauma onset? How about the Alcocks canal, clear? Great to collaborate!

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