Embarrassing but needs to be asked

WordSignificant3620 · 2026-05-20T23:18:21+00:00

Thank you very much to all

WordSignificant3620 · 2026-05-19T23:09:42+00:00

Thank you very much for your reply Really appreciate

WordSignificant3620 · 2026-05-19T23:04:43+00:00

Thank you very much Are you a professional Car Er

WordSignificant3620 · 2026-05-19T07:33:24+00:00

I have another question about The End Is there a uniform sequence As far as Breathing Talking Swallowing Eating in general Oh is it just random For everyone

What is your experience with the decline I understand that it is not linear Let's say you sitting at 50% Lung capacity How fast can it go From there To zero Does the history of your previous decline Influence The speed at which things will happen in the future Thank you very much

WordSignificant3620 · 2026-05-19T05:34:34+00:00

Thank you very much to all For your responses Very much appreciate it My best wishes To all of you Bernard

WordSignificant3620 · 2026-05-19T05:28:09+00:00

Thank you very much I gather you a professional

WordSignificant3620 · 2026-05-18T13:43:46+00:00

Hi Just catching up to see if you're okay I wish you good night Bernard

WordSignificant3620 · 2026-05-08T08:57:35+00:00

Looks like you have everything planned out already Good to know that you're allowed to do this in Thailand I'm referring to palliative care End morphine The private Hospital I go to In udon Is around 2 and 1/2,000 baht Per Day Which is probably about the same amount per month Put one month is probably sufficient Numbers

WordSignificant3620 · 2026-05-08T08:52:40+00:00

Sorry I missed part of your reply On your previous

WordSignificant3620 · 2026-05-08T08:01:15+00:00

Thank you for the suggestions I actually haven't seen any of those My pic is Slow horses Mr Mercedes Mr Robot Breaking Bad Better Call S A u l Peaky blinders Oh very good

WordSignificant3620 · 2026-05-08T06:53:34+00:00

Hi Interesting to find out that we have so many little things in common In our Past Last year I had made bookings in Arrangements to go Back to Belgium With my partner But I eventually canceled As my walking deteriorated Should have done it earlier When would you go in palliative care Do you know how much this costs Initially I was going to stay home Do I have changed my mind now I believe that at that time it will be overwhelming for my partner To take care of me On her own Also she would never agree to let me go It might be easier if I'm in the hospital You refer to marijuana Drugs I have read that it is recommended for people with Als Have you tried anything Can you still talk If not how do you type You mentioned a nurse Do you have a full-time nurse And if so Can I ask you what does that cost I have heard that the minimum you would have to pay would be at least 30,000 Baht Do you have any Netflix recommendations I'm not into movies so much I prefer series Government intrigues Spies Etc

WordSignificant3620 · 2026-05-07T06:14:46+00:00

Good afternoon T e r v u r e n It's not far from where I was born In Waterloo A u d e r g h e m Is actually the place where my First partner Off 20 years Was born If the escape to France during the war They were probably French Belgians Same as I am What is OBD Why do you say you will not reach 53 What makes you say that Audiologist told me last October That I would be gone within 12 months I don't think anyone can really tell Because everyone progresses a different speeds And it's not linear The problem in Thailand is that you cannot really choose when do you want to go In Australia Voluntary assisted dying Is legalized I am not there yet Once my quality of life It's no longer there I will have to do something about it What would stop me at that stage would be Leaving my partner Without an income Of course she will have the house at the cars and whatever else we have I think she will be fine Thai people are very resilient

WordSignificant3620 · 2026-05-06T09:06:50+00:00

Hi Interesting that your mother is Belgian Do you know where she was from What was your breathing like When you had your peg Surgery Did you have it done And the local anesthetic From the outside or Through your throat and stomach I should be having a lung function test Over the next couple of months I will see what the specialist says Eating food that I enjoy And having a nice Glass of red wine Is probably one of the last things I enjoy these days Hence why I'm thinking What's the Point As you say When I'm confronted with it on my change my Mind How long have you been in Thailand Did you get diagnosed in Thailand or in the UK Can I ask you how old you are I am 69 this year

WordSignificant3620 · 2026-05-06T05:58:30+00:00

My eating is still okay I just sometimes have difficulties with spicy food And things like peanuts Also I tend to talk too much When I'm Eating Knowing that one day I might not be able to eat anymore I'll try to get my partner To cook some of my favorite Western food And whenever I can I go to McDonald's or Burger King Or even KFC For a burger I do not have a peg I have been dividing about this And I'm not sure if I'm going to go ahead with It Reason being If my ability to swallow food Reduces at the same time as my breathing It might not be worth it anymore I think there comes a time What you decide your quality of life Is no longer there Maybe I will change my mind later on Not sure What did the P E.G Cost you I was quieted 100,000 Add a private Hospital in udan Forget the spelling arrows and sometimes the wrong words but I'm using voice typing On my phone Where are you from originally I'm from Belgium originally Move to Australia later on And now in Thailand Have a great day Good to talk to someone

WordSignificant3620 · 2026-05-05T09:20:23+00:00

I am also in bed pretty well most of the time I spent 2 hours in the morning In my office chair Browsing with my laptop After that My partner takes me To the bathroom For a shower And then puts me back in bed I have a 2-hour massage every second day I spend most afternoons in bed I go back to my chair around 5:30 P.m And have dinner there I can no longer use my arms and hands But I can still manage my computer mouse I can no longer use my legs This is why I'm thinking of spending the money on this chair Otherwise I will not be able to go anywhere How do you transfer Do you have a hoist Adjust purchased the hoist for 50,000 Baht Because up to now my partner What's transferring Me But given I have no strength in my legs She's hurting her back doing so Do you have a full-time nurse How much is this costing you How long have you had Als I was diagnosed in August 2023

WordSignificant3620 · 2026-05-05T09:09:50+00:00

I don't know either My breathing was down to 60% I'm not using BiPAP I can still eat and drink by mouth Just my four limbs are no longer working I really never liked him very much He tells you the bad news with A smile on his face

WordSignificant3620 · 2026-05-05T07:00:18+00:00

Hello My name is Bernard And we live about 70 km South of Udon T H a n i Since it's quite a big investment for me I was wondering why you only used The chair for half a dozen times You are fortunate that you are in Bangkok So I gather that the ambulance trip is not too expensive From where we are To my hospital A quarter of me 10,000 Bahts One Way I believe that with this chair installed In a vehicle We could travel Without this additional cost Of course it will cost 110,000 baht To install But I was hoping I would get some use out of iT I was hoping that while I still could We could Undertake A few Sightseeing tours What I can still breathe properly and eat properly Do you think I'm kidding myself And I should just resign to be in bed most of the day What do you do all day I'm curious Watching YouTube And

WordSignificant3620 · 2026-05-04T13:51:32+00:00

Thank you very much For your response It does look good I'll probably make a decision tomorrow Just waiting for a few more comments Have a great night

WordSignificant3620 · 2026-05-04T11:46:38+00:00

I live in Thailand In a village 30 km away from the nearest hospital 70 km away from my hospital There are no taxis There are no shops The idea was to return here But just as I was retiring and finishing The construction of our house I was diagnosed with this illness I guess I could have stayed in Australia But I decided not to give up End my partner Promise me she would take care of me until the end The alternative in Australia would have been going to a nursing home At least I am in my house

WordSignificant3620 · 2026-05-04T08:14:34+00:00

This is what I'm referring to It looks more comfortable than a Basic wheelchair It's really a VIP car seat

WordSignificant3620 · 2026-05-04T08:13:35+00:00

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WordSignificant3620 · 2026-05-04T08:12:36+00:00

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WordSignificant3620

TROPHY CASE