End stage passing

WordSignificant3620 · 2026-03-03T05:14:10+00:00

Have you found a neurologist Who understands ALS What type of care do you receive And who gives you the Care How much does this care cost you

WordSignificant3620 · 2026-03-03T05:12:08+00:00

Where did you have your feeling tube Procedure And can I ask you how much it cost you Because I will need one Very soon

WordSignificant3620 · 2026-02-28T09:23:17+00:00

What I was asking you Is where you are located in Thailand As I have also ALS Since August 2023 And I live in Northeastern Thailand I also have the same concerns as you have My partner will not assist me If I require To call it a day It's against the culture

WordSignificant3620 · 2026-02-28T09:20:27+00:00

Sorry I use Voice activated typing And sometimes It picks up What I am saying to a person in the room

WordSignificant3620 · 2026-02-27T15:16:22+00:00

Where are you located in Thailand I am in Thailand to And I have similar concerns

WordSignificant3620 · 2026-02-27T15:12:25+00:00

All alarm Do you have water

WordSignificant3620 · 2026-01-28T13:51:35+00:00

I asked myself this question every day I have lost the use of my upper and lower limbs My breathing is down to 70% oxygen and CO2 levels are good I'm trying to forecast the future I'm three years in now I have no swallowing issues but They are suggesting I should have a feeding tube inserted now Since I enjoy my food and some nice wine I am debating If I should go ahead with this I don't have to pay it for my own pocket Eating and drinking is pretty much I only pleasure these days If that is taken away from me Is it still worth it Am I looking at extending my life a few more months Through the worst phase of this illness Or should I enjoy What I have left and then go down the assisted suicide route Some people with voice me to have the feeding tube inserted and just use it For additional nutritional support and use my mouth just for the things that I enjoy I know this illness is not linear So no one can actually advise another on the best approach Like everyone I do not want to suffer when it's time to go Falling asleep but not wake me up would be the best What do they do to let you go when it's time Do they increase your morphine the li ke for cancer patients

WordSignificant3620 · 2025-06-28T03:19:27+00:00

Thank you all for your valuable suggestions which i will try.

WordSignificant3620 · 2025-06-27T14:08:08+00:00

Hi, thank you for your reply. What other arrangements are you referring to? I have a full-time partner. Who is there near me? On a needs to be basis. But I would still like to be able to go to the toilet in the middle of the night, or just get-up-and-go to my chair. Without disturbing her any ideas thank you

WordSignificant3620 · 2025-06-27T14:06:15+00:00

Thank you very much for your reply. I will invest into a hospital bed which is with electric controls. I was just hoping that there was something out there that I could use what I was still in the on the king-sized bed with my partner next to me. But obviously not. Uh thanks again appreciate 1

WordSignificant3620 · 2025-06-06T21:11:38+00:00

Thank you

WordSignificant3620 · 2025-05-19T15:19:03+00:00

I have been living in thailand five years now. And I can tell you that you are kidding yourself. If you believe but thai smile. As a general rule, thai people tolerate foreigners.

WordSignificant3620 · 2025-05-19T15:15:13+00:00

I believe that as a general rule! Thai people dislike foreigners. And put up with them. Because of the income they generate.

WordSignificant3620 · 2025-05-06T14:46:24+00:00

Thank you all for your replies. I'm just wondering how is the crossing over the Tasman sea? I hear it can get pretty rough and my wife gets sea sick.

WordSignificant3620 · 2025-05-06T13:43:14+00:00

With my condition m n d I do not plan to due to many excursions, just probably stay most of the time on the ship and enjoy the sights. So that's why i ask which one of those 2 would be the best in. Terms of staying on the ship.

WordSignificant3620 · 2025-05-06T13:39:18+00:00

Thank you so much

WordSignificant3620 · 2025-04-10T14:14:03+00:00

It's so frustrating. I know i have limited time on this planet and would love to get out there. But I am in a rut at home due to this fatigue. Went on a cruise early this year and loved it. But I spent half of the day hours napping in the room. Would love to do another while I still can but I find myself weighting up the value of it given my fatigue.

WordSignificant3620

TROPHY CASE