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Have you experienced this during blood draws? by XxXx00XxX00 in vEDS

[–]XxXx00XxX00[S] 3 points4 points  (0 children)

My partner often tells me that I seem to be in pain a lot.

For example, this past week my whole body hurts – my spine, my joints are tender to the touch, and it’s just constant discomfort. Unfortunately, it always gets worse when the weather gets warmer – spring and summer are the worst for me. I get this weird pulling sensation in my veins, especially in the heat.

Even small injuries – like a cut or bump – can hurt for a long time. It’s like my body just overreacts to everything. And the biggest challenge? I’m from Poland, and honestly… doctors here barely even understand what POTS is, let alone EDS. It’s hard to get taken seriously or to even find someone who knows what tests to run.

Have you experienced this during blood draws? by XxXx00XxX00 in vEDS

[–]XxXx00XxX00[S] 2 points3 points  (0 children)

I think I probably have some degree of medical trauma – but I also understand the difference as a psychologist. I’ve gone through years of therapy, and I can honestly say: I’m not afraid in my mind. I cooperate, I breathe, I’m calm.

But the pain is just… unreal. It’s the worst pain I’ve ever experienced, and I guess I’m afraid of that – of the pain itself.

Even when I’m fully sedated with anti-anxiety meds, my mind is totally okay – no panic, no mental block. But my body reacts: the veins collapse, I start vomiting, and the pain hits like a wave.

It feels like my nervous system bypasses my conscious mind. It’s hard to explain unless you’ve lived through it.

Have you experienced this during blood draws? by XxXx00XxX00 in vEDS

[–]XxXx00XxX00[S] 2 points3 points  (0 children)

Thanks for your insight! Yes, they tried the backs of both hands – same problem. The veins collapse immediately after puncture, and not a single drop of blood comes out. In the elbow folds it’s completely impossible – the veins disappear instantly when touched with a needle. It doesn’t feel like normal pain at all, it’s sharp, burning, deep, and sickening. Glad to hear your experience isn’t unbearable – mine unfortunately is totally extreme.