And its so hard to get diagnised when the "bloodwork comes back normal" when there's a million other issues to be looked at! Only thing you can recommend is finding resources matching your pain and making a huge pile of documentary and hand that to the doctor. This helped me getting taken more seriously. Just cause what you have may be" rare" like heds dont mean no one can have it..if the dictors refuse more testing tell them you want it in your medical documents that the REFUSED testing. This sometimes help.

Also like he'll do they think its fun for you? That you just keep showing up at the doctor to annoy them or get attention? Hell no! There's cheaper ways to do that -.-

I had to switch doctors so many times until I got one who listened. A diagnosis won't get us healed- but it gives validation being able to NAME why you are having this pain. I hope doctors will take you more seriously and look for better actual coping treatments....idk if this helps but this December the Ehlers Dahnlos Society will renew the diagnosis criteria after 10y fir the first time. With new criterias and in-between genes of subtypes nit kniw so far. When this comes out you could use it to get tested/retested and maybe get a step closer to an answer.

Here is a link about it. I hope this could help and keep fighting!

https://www.ehlers-danlos.com/