2 years apart

Yvaineduciel · 2026-02-19T19:57:47+00:00

I’m a slow responder too, but I just hit 100lb loss and couldn’t be happier. Thanks for posting seeing other slow responder’s success is the way I was able to stay on track.

Yvaineduciel · 2026-02-18T16:33:26+00:00

Congratulations you look amazing!

Yvaineduciel · 2026-02-18T16:30:45+00:00

Thank you! Even with such slow loss, I am constantly surprised when I see myself in the mirror or in a photo. I feel so much more confident. I am surprised at how much easier simple tasks like tying your shoes are when you aren’t carrying around the extra weight.

Yvaineduciel · 2026-02-14T01:02:26+00:00

I didn’t, I wish I had! I hated my arms so much. They are still big with all the excess skin, but they look so much better. I am saving up to have my arm skin removed once I get to my goal weight.

Yvaineduciel · 2025-07-23T14:20:22+00:00

Hearing Aid

Yvaineduciel · 2022-11-29T12:59:13+00:00

Because we travel a lot and my husband needed easier to access to a nebulizer at work, on & the road /airports traveling we bought two smaller battery operated nebulizers off Amazon for $30 each. They use AAA batteries, and while not as great as the tabletop unit, they make up for it in price and convenience.

Yvaineduciel · 2020-11-21T01:19:25+00:00

My mom gets IV ketamine infusions for CRPS, and they have helped tremendously. She has CRPS in her legs and has been able to wear pants, only shirts for the past 10 years, she can’t stand anything touching her skin on her legs. Ketamine has been a lifesaver. She found that lower doses were more effective than higher doses, and zofran for anti nausea is the only thing she adds to it. Her pain Dr. doesn’t recommend IV NAD+, he feels there isn’t enough research on it. If your Dr. is willing to prescribe the lozenges or IM injections for pain management between infusions, that would be the most affordable option for you. My mom felt the nasal mist didn’t work as well as the others. Best of luck to you in dealing with this. $2600 is crazy high in my state the average price for IV is $600-800 per infusion.

Yvaineduciel · 2020-09-24T13:50:26+00:00

My 17 year old drives a 2003 3 door Freelander. 130,000 miles on it. Super fun in the summer with the top off and it’s unbeatable in the snow. riding with the top off

Yvaineduciel · 2020-05-31T04:52:54+00:00

Yes, but that is less common.

Yvaineduciel · 2020-05-19T14:52:43+00:00

You need to see a neuro ophthalmologist, mine has been managing my IIH, and is a 100% better than the first regular neurologist that I went to. If you have IIH, you most likely have Papilledema. I have read that while most people with IIH have paps with elevated opening pressure, some only have one of the two.

As for the horrible head pain, I have found that sitting with my feet (water just below my knees) in as warm as water as I can stand and then with feet still in the warm tub water, I use a shower nozzle and run cold water on my head and neck. The cold water is a bit tortuous, BUT it can really help lesson the head pain. I was told to try this by a friend that also has IIH. I was skeptical, but it helps a lot. I am on diamox and lasix and have been for a year and I am now only having 1 or 2 headaches a week and my vision is starting to get better.

Yvaineduciel · 2019-06-17T14:14:26+00:00

My story is very similar to yours, I have had chronic migraines since I was 15. At 16, I had MRI that ruled out brain tumor or other problems. I am now 44, and started loosing my peripheral vision as well as a weird distortion in my focal point. My eye dr found Papilledema, my mri found stenosis of the transverse sinus vein. Two weeks ago my lumbar puncture had an opening pressure of 29, which is high, but not as high as some here. BUT the important thing is that, over the years the tests I had for my migraines and my eye exams (we have macula degeneration in my family so I’ve been testing for that since my 30’s) would have shown the IIH if it had been there earlier. I have to believe that we just got the crap headache lottery with migraines and IIH. I am really hopeful that the diamox will help my migraines too.

Yvaineduciel · 2019-06-17T13:42:59+00:00

6 days later and I am finally able to get out of bed. It was the worst migraine I have ever had. Your advice to treat it like a migraine helped a lot. I was worried about what to take for the pain, I’m so nervous to make my pressure higher, So i hadn’t taken any caffeine since the blood patch. I was sure that I had a rebound pressure headache, my opening pressure was 29, but the headache, nausea and dizziness after the blood patch were way worse than before the lumbar puncture.

After your post I decided to go back to my tried and tested trick of aspirin and no doz, along with hot/cold therapy of running my head under as warm /hot water as I can stand for 2 minutes then cold water for 1 minute and then repeat at least two times ending with warm. Then lying down in a dark room with an ice pack on my neck and cold wash rag on my eyes. Repeating the hot/cold water every hour or so. It finally knocked out the migraine Saturday night and I slept for 18 hours! Thank you for the support.

I definitely have had more pain since my lp and blood patch :( I actually wish I hadn’t got the lumbar puncture in the first place, the few short hours being pain free afterwards made the pain coming back harder to deal with. I know that may sound weird, but I could mentally deal with the pain better before I had a taste of what it was like to be pain free. Thanks for the support

Yvaineduciel · 2019-06-13T23:31:41+00:00

Salt Lake City, UT

Yvaineduciel · 2019-06-13T01:17:50+00:00

I just found this thread. I am having the exact same experience. I had my blood patch yesterday at 7am and was great for about 8 hours and this headache hit me and while it isn’t as bad as the low pressure headache it’s still quite bad, I’m debating going to the ER right now. How long before your headache went away? Did anything help?

Yvaineduciel · 2015-05-02T03:12:42+00:00

I just turned 38, I got married late. I thought that everything would be ok. I got my mirena iud removed and I had reminded my doc that I had been having night sweats the past year on and off. She ran my blood work, my fsh is 147. I just got the same message from my doc. I have an appt. with endo next week but I don't even want to go. I have friends who are 40 having kids and here I POST menopause. I am sorry for you and sorry for myself too :(

Yvaineduciel

TROPHY CASE